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Has anyone regained their normal weight after an Ileostomy?

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Posted 4/15/2011 3:30 AM (GMT 0)
After having an Ileostomy 6 weeks ago due to U.C. and losing about 15 lbs.

total from before and after procedure. I'm curious as to how many of you

have struggled to regain your normal weight or how long did it take?

Posted 4/15/2011 4:17 AM (GMT 0)
Hi Rock,

First I had a Sub-Total colectomy (2009) and I lost 30 pounds.  The sub-total didn't work out for me so in Nov. 2010 I had an ileostomy.  I have only been able to gain back 3 pounds since the ileostomy!  I am rarely hungry plus everything goes thru you quickly after an ileo.  I have talked to people who actually gained back their pre-surgery weight plus more though, so don't get discouraged!  Maybe you will gain back the weight quickly.

Good Luck!

Posted 4/15/2011 10:30 AM (GMT 0)
I was very sick at the time of my surgery so I had already lost 30 pounds before the surgery. I gained 20 pounds back within 2 months, and now it's been a year since the surgery and I've gainved back all the 30 pounds and then some. I am now trying to watch my weight.
Posted 4/15/2011 11:28 AM (GMT 0)
hi - i was well underweight at 8.5 stone for many many years & could only put on a few pounds when on prednisone - durning my hosp visit i dropped back to just under 8 stone but now after my perm ileo in may '10 i have steadlily gained weight to a normal 10.5 stone & i am keeping my eye on it so as not to go too far up - i have a good appetite - i dont recall when exactly how long after the op when my weight began to rise but i suspect that it did take a month or two to begin probably when most of the healing was well under way & i was over the shock/ trauma of the process

i wish you a great recovery
Posted 4/15/2011 12:54 PM (GMT 0)
Hubby has lost a lot of weight over the years before surgery which he needed but definitely not losing it that way. He actually looks very good and it was a help I am sure for the surgery as well. I think about 40 lbs altogether. He has put on about 7-8 pounds since surgery 4 months ago but has NO plans on putting on any more either as he feels better with the weight off and also prefers the way he looks right now too.

Plus I have told him I have read that it is really not a very good idea to put on too much weight as it can adversely affect the wafer etc??? I think.
Posted 4/15/2011 6:07 PM (GMT 0)
When the CD is in remission I can maintain my body weight at 12.5 stones and I put weight in after my ileo surgery. Then again as I only have a small amount of small bowel and have absorbtion issues I need to eat approx 4000 calories a day. Bring on the donuts!
Posted 4/15/2011 8:50 PM (GMT 0)
I had a temporary loop ileo for 3 months and the whole time I had it I ate anything I wanted and never gained an ounce. It seemed like everything just passed right thru me. I had the ileo reversed (I had J pouch surgery) and once I was all hooked back up, I finally put some much needed weight back on.
Posted 4/15/2011 10:55 PM (GMT 0)
I had total colectomy performed with many serious complications, including a temp ileo.  After hospital discharge of 38 days, I lost over 30lbs.  In 3 months, I gained 20 and then over Christmas I gained the remaining 10.  So, in aprox. 4 months I gained all of it back.  And everything went through my ileo also, my weight gain was remarkable.  I can eat whatever I want, no restrictions except some raw veggies...just scared.  Everyone's different, it takes time though, and also what meds your on, I had recurring diverticulitis so no meds before or after.  Good luck!!!
Posted 4/16/2011 4:24 AM (GMT 0)

I understand all of us have different medical issues regarding the ileostomy procedure, for which makes it hard to regain your normal weight. But it's good  to know the majority of you were able to get back to your normal weight and maybe more. The fact that the more you eat, the more you empty out much quicker. It made me wonder if regaining your weight back was possible.

   My appetite is real good, no meds at the moment, but I guess I need to be patient and possibly try some different nutritional meals that won't slip out as quick.

     I want to thank all of you for your honest answers and hope others who have had or in the process having the Ileostomy procedure understand some important experiences that will be part of a strong recovery.

     

Posted 4/16/2011 9:59 AM (GMT 0)
Bear in mind, it's 35 years since my surgery. Now I'm having to diet and am happy to say I've lost 13kgs (26 pounds) in the last 5 months but still have another 13 kgs+ still to go :(
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