Hey Rosemary,
Well, the picc line was left because from the 1st two hospital stays I got really sick. The 1st time when I had my original surgery on June 2nd; I got discharged and then I got very sick; picc line was out. I could not produce a bowel movement at all; I was passing gas, and I felt like something was there, but I just couldn't do anything. Also, my abdomen was full of blood. Stool and blood caused for a very distended tummy! I felt like I couldn't stand up straight! I had a hard time keeping food down. I didn't throw up, but I just kept on burping, burping, and burping; nausea, and felt like I was going to vomit. The surgeon did a ct scan with contrast thinking I had a possible leakage anastomsis, so I though I was going to get an ileo. However, emergency surgery a week later on June 9th, rectum was narrowed for some reason; they dilated that; put j-pouches on me; an ng tube; and tried to get all the blood out of my abdomen. I felt awful!!!
So, the second hospital stay I wasn't really allowed anything until my bowels woke up. The doctors were being extra careful this time. Finally, when my bowels woke up, as the first time, I thought everything was going through me. They left the picc line in me just in case just because I am thin, and when I get constipated; I get very sick and nauseous, and then have a hard time eating because I just burp; it is like my gas comes upward most the time; gas only comes at spontaneous moments downwards.
When I got discharged the second time, a few days later, I just did not feel right again; started crying and was getting constipated again. I did not know why my bottom kept on shutting down. I was burping a lot again; getting awful heartburn with only taking a few sips of a drink and few bites of food. They moved up my doctor's appt. earlier for when I was suppose to get my staples out. The surgeon was getting concerned again, so I was readmitted for the third time.
The third hospital stay was a wasted trip! Plus, the insurance company did not want me in there that long because they did not see a point I guess according to utilization review. I thought the doctor was right away going to a scope on my to check my bottom. However, he didn't! I just a enema finally a day later, then a magnesium citrate bottom to get me cleaned out. They just did a KUB on me, and the doctor said everything looked fine according to a person without a colon besides stool being in there. Again, they left the picc line in me again b/c if I get sick again, they want me a tpn because like I said I get nauseous. I was just discharged by a quick rectal exam on the night I had the citrate bottom (bad timing), discharged on heartburn medications, and the instruction on using fleet enemas and miralax at the time. So, the picc line was left in me again, just in case, I start feeling nauseous and sick again; I am suprised when I get that I way I don't throw up. Of course, I feel I have always been more a dry heaver; like I have a fear of throwing up. The other night I did feel me puking upwards a little soup. Yucky!
This past week; I have been doing better with keeping food down, and I have felt better about that. As far as my bowels, I have been trying the miralax since Saturday, and I am still not sure about it. I think it sorted makes me feel the way I did with my colon, not as bad, but just a little full and bloated for some reason. Of course, I still think my tummy is a little swollen, too. I still have been using a suppistory everyday. I have moved my bowels by myself at times, but it still feels like it is hard to do at times, or I am walking around, I feel pressure down there, but then have to work at getting it out. Last night, I am not sure if it was something I ate or not, but I had an awful gas pain that I couldn't let out. Then, finally later, I started passing gas, and all during the night I passed gas here and there, so that is good. Woke up in the middle of the night, and passed a little stool. However, I just feel like something is still not right. It necessary does not have to be a lot of stool at one time, but it is just like I feel pressure down at my bottom, and I just can't do it! It is really annoying! Like I said, I can at times, it just takes work, or sometimes I still don't have that awww, I feel better, or couple nights I guess I though about a bowel movement in bed, and I had a little leakage in my underwear! Whoops! What do you think?
Right now, I am scheduled for an anal manometry test on July 18th because I didn't have that test pre-surgery. Also, the doctor talked about starting some physical therapy, biofeedback. The surgeon told me right now he thinks that maybe all these years of not going and things not reaching down there; I don't know how to have a bowel movement; however, I still feel like I am getting a little bloated and full of gas at times that doesn't what to come out. I know it is still early from surgery, and some foods I have to go easy on right now. I am just a little frustrated b/c I know I don't want use suppistories all the time just relieve some extra gas and stool. Also, I just really hate laxatives; I just hate them. I still think they don't agree with me. One thing that doesn't bother me is colace, but I really don't know if it does anything. I am keeping a journal of foods I eat right now, my bowel habits, the pressures I get at my bottom (whether I struggle to get it out, or get it maybe okay). I just know when my bowels woke up both times at the hospital it was like everything was moving through me with ease, and I thought I would be wanting an immodium now like the doctor orginally thought. Anymore suggestions is greatly appreciated!! Maybe I just need to experiment so more, but I just know by the end of the summer, I really want to get this straightened out, or maybe I am complaining about nothing. I don't know!
Post Edited (hurtboy) : 6/30/2011 7:22:17 AM (GMT-6)