Ileostomy output or lack thereof

You are not being silly to be so concerned. Be sure to only give her clear fluids until she has output, or until the drs. say otherwise. Nausea, lack of output and fever are all symptoms of a blockage or just a partial blockage... could it have been something that she ate? It also could be just a kink and there are many things, like hot baths, that help to relax the body and let the body work together. Is she able to lightly massage the area that "doesn't feel right"? Try to have her to keep moving, rolling in bed. Sometimes caffeine, ie tea is a great idea, will move things along. Do stay in touch with the drs. And let us know how she is doing...

Thank you! She still had no output this morning so her surgeon had us come in right away. I guess this morning a little boy passed away from blockage so the dr wasn't taking any chances. When I heard that, it did made me cry knowing it can happen. Anyways, the dr did an x-ray and checked for stenosis. There was no narrowing but she did find that some stool had solidified in the stoma so it was causing the lack of output. Like you guys suggested already, she said lots of fluids, to keep moving around and warm baths. She also said no gas producing foods for the time being. If Sami starts to vomit or starts running a high fever, then to bring her back in and they will reassess. Still not sure about why there was some blood though. Her labs from last week were as normal as they can be for someone with Crohn's. The dr also said that she wasn't a very gassy person as the 2 gas pockets that Sami has, doesn't show alot of gas in them. I guess that's a good thing?

*sigh* you think you know everything you can about the disease and the surgery, but then you find out more. Like finding out 2 yrs after surgery that not only did she lose the large bowel, but 20% of the small bowel and now needs B12 shots because she no longer has the part of the small bowel that absorbs it.

Sami's mom,

Glad your child got seen. I assume she has an ileostomy. Anything beyond 6 hours with no output is an emergency!!! WHere was this doc's head? It took another child to die to get some action???????? Jeeeze! LOTS of hot tea and walking often breaks up a food blockage. Normal for no output from an ileo is only 2 hours. I once had a potato blockage that took 10 hours, a gallon of hot tea, and endless walking to clear. Important to discern there are no adhesion narrowings. A CT Enterography shows this best. All you do is drink plain water for the contrast (lots of it) then they do IV iodine and send you through the CT machine.

Oh, yeah, that B12 is a well-kept secret. Nothing ever ceases to amaze me the secrets that are kept. I did not lose the last part of my ileum along with my ileostomy, my B12 deficiency pre-existed and I had to have the ileo to save my life due to irreparable damage to rectum and colon, but for those like your child, I would think they would have mentioned the B12. The terminal ileum (last part of small intestine) is the only place in the digestive system that absorbs B12.

ALSO, did you get her vitamin K levels checked??? Vits K1 and K2? Vit K is produced by the colon. Without the colon in the loop any more, my Vit K was VERY low. Now I am on supplements of Vit K and it is fine. Vit K is important as it has to do with our ability to have our blood clot. Your mention of bleeding had me thinking this might be lack of Vit. K. Rosemary