constant pain after end ileo; also bright yellow output!

Hello Gilda,

I'm Serenitee, and I had a Temp. Loop ileostomy May 10, 2011. I see my colon/rectal surgeon September to discuss about making it permanent & removing my rectum. I definitely want this surgery. However, I had a couple questions for you...What is a "end ileo" does it just mean its permanent. When you went from the Loop to the End, did they leave your existing stoma site or change it? The reason I was asking is I like me current stoma, the size and its function is great. So I am concerned if I have the permanent surgery will they change my current stoma in any way?

 

As to your concerns. I am so sorry you are having such pain and worry over the color of the output. I can relate to unbearable pain day in and day out. Especially with having to worry if there is something really wrong that the Doctors are just missing. Very Stressful & scary I'm sure. I am so sorry to hear all you are having to go thru.

 

I currently suffer from absolutely excruciating, unbearable pelvic & bladder pain. I was just diagnosed w/Pelvic & Bladder Trauma & Dysfunction. I can hardly walk, sit, lay down, sleep as it is the most pain I have ever had to deal with. I'm am supposed to be starting physical therapy for pelvic floor dysfunction at the Hospital. They literally want me to go 8-12 times a week (thats at least 2x a day, I might as well bring my sleeping bag...Lol) Apparently, they attach electrodes inside the vagina and rectum. I am so not looking forward to this at all.

 

Besides all my intestinal problems...Between having 7-kidz (and the damage it caused in my pelvic region) along with a little over a year ago my colon tore thru the vaginal wall and then the colon and bladder fell out of my body. This was my 2nd bladder prolapse but the first one didn't fall out of my body. I've had 2x bladder lifts w/mesh, 2x rectoceles, 2x enteroceles, hysterectomy, C-section, ruptured appendix (almost died from), Psuedomembraneous Colitis, C-Diff too many times to count.

 

I'm so sorry I rambled on & on...Would love to chat some more. Look forward to anymore of your posts or if you wanted to email me my email address is listed under my member profile. Best of luck to you, and I will be saying prayers for things to get resolved for you and the pain under control.

Hope to receive an email from you and would love to chat.

Your Healingwell Friend, Hugz & smiles sent your way.

Serenitee

 

Bipolar 2, Manic-Depressive, Borderline, Anxiety/Panic Disorder, Ptsd

 

Gilda,

Is the stoma output clear yellow that comes out very rapidly and fills bag after bag and you need 4 immodium to thicken it and slow it down?

If so, I have had this and in my case it was either due to too much sugar, too much salt, bad tap water I had swallowed, or in one case unknown cause. The last time I had this it went on for 7 hours and I ended up with dry heaves from dehydration. Luckily 4 immodium kicked in.

OR is what you are saying is that your actual out put is the color AND consistency of lemon pudding? This I would not even have a guess as to what is going on. The pain, my guess is may be adhesions as by now you have had multiple surgeries. Only a guess on my part. You can have adhesions that are painful yet are not obstructing your small intestine. If these were obstructing, they would have showed a narrowing of the bowel on the CT scan. A more accurate imaging test you can have is a CT enterography, just like a CT scan you drink stuff and they put in IV contrast. Then the scan itself is fast.

Sorry things went downhill for you as you had been doing quite well and moving on with life.

This is all I can offer for ideas. I would not let anyone put a pain patch in a place that would interfere with the adhesive or too near the stoma. But ask your surgeon. Good luck. Rosemary

     Gilda, what does your diet consist of?  Perhaps the yellow color is from something you are eating.  Bile is usually green but I suppose it could be yellowish. 

     If you continue having this pain, I would consult the surgeon.  I had problems post op, not so much pain but bleeding from the vagina and I am twenty years past menopause.  My surgeon thought it stemmed from the surgery but still insisted I see my gyn doctor.  Had to have a transvaginal ultrasound..ugh and MRI's.  All were fine, so the surgeon was correct but better be safe than sorry.  Did any doctor suggest MRI???

Thanks for everyone's replies. The output I had was I guess more the consistency of jello and it was a bright, bright yellow! It really scared me and I felt awful for several days. Then, 2 days ago i got some Lidocaine Patches and they are helping to control the pain. Usually I have absolutely no energy but the Lidocaine seems to be giving me some! I have lived my life at doctors for many, many years now so I am hesitant to go see anyone else. If these patches continue to control the pain then I will use them and stop "searching for answers" none of my doctors seem to have. The biggest problem I have tho is that my pain is usually coming from the stoma or an area near the stoma which is covered by the wafer. I have used the lidocaine patches for 2 days now and I just put them as close to the wafer as possible; sometimes they overlap the adhesive that holds on the wafer. Whatever, as least yesterday I was pain free and had some energy. Thanks everyone for your responses! I still have a problem with almost always feeling weak and very tired but like I said, yesterday I had energy and the LidoCaine Patch is the only new thing I am trying. Talk to you soon. My best to all of you.

gosh Gilda, i wonder what this pain is all about. you didn't have it right after surgery, did you? when did it start? how far from surgery did you start feeling this? what most concerning is that the drs don't know what it is either. i'm so sorry. i hope it goes away just like mine did.

Gilda,

I'm glad the patch helped .... sounds so hard. Thinking of you.