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Posted 8/10/2012 9:35 PM (GMT 0)
I had my total colectomy w jpoach, temp ileostomy 8.3.12, released from hospital yesterday and am on dilaudid 6mg every 4 hours and am in absolute agony. The area surrounding the stoma is exploding with pain the incision the pelvic area has no relief just hurts.

Any suggestion? When does this stop? When can I walk, situp again? Even laying down hurts.


Also I keep having this crazy urge to pass stool the old way. Earlier today I passed some stuff that looked brownish red, called doc they said everythings fine but since then have had the feeling that I need to go to the bathroom really badly I try to sit on the toilet and can't go.


I am also registered as brian-legacy cant remember password.
Posted 8/10/2012 9:41 PM (GMT 0)
Brian sorry to hear you're in so much pain. Passing stuff from your rectum is normal, and is a mix of blood, mucous and stool, so try not to worry about that.

It doesn't sound like your pain is being managed very well, so you should contact your doctor/surgeon. I don't know what Dilaudid is as I'm in UK, but you shouldn't be in 'agony'.. your pain med regime should manage your pain level down to a tolerable level with ups and downs during the day as it wears off. It may be that you need something stronger/more regularly.

Get in touch with your doc and explain how bad you're feeling. You shouldn't have to suffer so badly. Do take it easy though, you've had major surgery so don't push too much too soon and get lots of rest.
good luck.
Posted 8/10/2012 11:04 PM (GMT 0)
This doesn't sound like normal post op pain to me. They sent me home with Vicodin and that worked very well. I would have the urge to pass something and I would pass mucus and that is normal. Unbearable pain is never normal. If it's still going on please get your doctor on the phone right away. I will add that 1 week after I was home from the hospital I did develop severe back pain and it was because an abscess developed in my pelvic area that needed to be drained. I was also running a fever. Unfortunately these are possible complications of the surgery. Get it checked and feel better soon.
Posted 8/10/2012 11:27 PM (GMT 0)
Although there should be some discomfort the pain medication should be sufficient to help to keep it manageable as already stated. You need to get in touch with them again. If you were my husband or son I'd be bringing you to the ER if you are in that level of pain. Something isn't right. Too much pain medication can slow things down and constipate but you have to be out of this kind of pain too.

Insofar as discharge I know nothing about that since my husband was totally sewn up due to no possible chance of a j-pouch so you should have some depends or some kind of padding to help with the discharge for you.

I hope you start to feel better with each passing day. The first few weeks are not easy but my husband found each day there was improvement little by little and hopefully it will start the same for you.
Posted 8/11/2012 3:47 AM (GMT 0)
I'm surprised they sent you home with that, but if its not working something isn't right. It's normal to still be in pain, that lasts a while, but it shouldn't be to the point where oral meds aren't working.
Posted 8/13/2012 2:59 AM (GMT 0)
I did have the same amount of pain after the total colectomy but my husband called the surgeon right away. Dilaudid did nothing for the pain. I was switched to morphine for about a month then vicodin. I would definitely call your surgeon. Dilaudid does not work for everyone.
Posted 8/13/2012 4:16 AM (GMT 0)
Brain, ouch! I feel your pain. I had to have a stoma revision in June due to a severe stenosis and I have this palm sized diameter around the stoma that really hurts. Then part of the stoma collapsed. THEN a resident (at another place, my doc was away) accidentally caused 2 tears doing a finger check of my stoma after a food blockage. I feel your pain. call your doc about all these things and best wishes. Right there with you. Rosemary
Posted 8/13/2012 2:51 PM (GMT 0)
I was in a lot of pain post op, and for me, the meds would wear off before I could take another dose. Then there was the issue of taking too much tylenol in one day since tylenol is an ingredient in the prescription of percocet that I had. I too was switched to Vicodin and that worked way better for me. I still had a short period between doses, but it was better. Definitely call your surgeon for a switch, but pain can be normal after this type of surgery.
Posted 8/13/2012 3:22 PM (GMT 0)
The pain started to calm down yesterday however with the urinary issues im having now it just seems like the pain is moving there, hopefully that gets resolved today.
Posted 8/13/2012 3:34 PM (GMT 0)
Glad you have an appt. today. This really sounds EXACTLY (urinary issues and all the pain) like what I experienced with the abscess in my pelvic area that needed to be drained.
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