HealingWell
Search Close Search
☰

Is anyone going to the CCFA half marathon in Las Vegas Dec. 2?

Support Forums
>
Ostomies
✚ New Topic ✚ Reply
12
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 8/23/2012 5:59 PM (GMT 0)
It would be so much fun to meet people there. Here is the link: www.ccteamchallenge.org. I am meeting up with my team in two weeks for training etc. I am so excited!
Posted 8/23/2012 5:59 PM (GMT 0)
I'll be there!!!! yeah
Posted 8/23/2012 6:22 PM (GMT 0)
If there were something like that in Eurpe I would defiitely go.
Posted 8/23/2012 6:28 PM (GMT 0)
I really wanted to do this!!! After missing so much work last year there is no way I can. Maybe a bunch of us can meet up at an event like this in the future . . .
Posted 8/23/2012 7:39 PM (GMT 0)
Running in an event doesn't sound fun to me (if they had a swim...... ), but having a bunch of us meet up at something like this sounds like a lot of fun.
Posted 8/23/2012 8:31 PM (GMT 0)
Sounds good Sub.. go for it!

I actually organise a half marathon in the UK (as well as run).. have been tempted to bring in prizes for 'First runner with a stoma'.. I wonder how many takers we'd get?? If anyone fancies a trip to the UK, we could go for the 'Team Stoma' prize? ;-)
Posted 8/23/2012 9:57 PM (GMT 0)
The half marathon is definitely on my future "to do list" once I get rid of this awesome UC. I was ready to train for one before I got sick. Hopefully in the future I can meet up with some wonderful people.

Surgery countdown - a little under 7 days!!
Posted 8/24/2012 2:48 PM (GMT 0)
I am going to be there !! Training right now for it ...
Posted 8/24/2012 4:48 PM (GMT 0)
I would so be there if it were on Sat. Why are they all on Sunday? I do the Saturday races. Have fun!!!!
Posted 8/26/2012 2:48 AM (GMT 0)
Ironmum, Did you see the Ostomy fashion parade in London this Spring? It was incredibly fun and very avant garde. It had the feeling of the gay pride parades in New York in the 90s.
Everyone, I amtexting on a tiny phone so please forgive the short response. I am part of a walking not running team. Our city is entering two teams, one running and one walking. We are being provided with weekly physical therapy and training from local hospital and fitness clubs. We have broken up into smaller groups for daily work outs. I cannot believe how organized and supportive this group is. OK the opiates are starting to make me loopy. I cannot wait to meet so many of you. Trigirl, maybe we could meet on Sat?
Posted 8/27/2012 5:37 AM (GMT 0)
Equestrian mum and uc free, are you walking or running? Have you ever done this before? I just learned this is a night time event. I have never heard of nighttime marathons other than our city's naked New Years Eve cyclathon. That is a truly bizarre event, best seen with dark sunglasses.
Posted 8/27/2012 12:24 PM (GMT 0)
Subzero, I am fasinated that there are teams of ostimates in your city. I could not get my surgeon to tell me how many there are in my city. How many are you?
Posted 8/27/2012 5:43 PM (GMT 0)
Subzero~this event is a BLAST!! This will be my second time at Vegas, but first one at night. It's actually one of the very few times they close the strip completely down (which is probably why they're on Sundays).

I am a run/walker person but plan my run/walk splits closer to race day. The last time I ran my daughter had had a serious car accident one month before so I didn't train that last month but still finished close to my goal (2:43:19)!!

Make sure you smile at all the cameras, too, since the pictures are awesome with the hotels/casinos as the backdrop!
Posted 8/28/2012 11:54 PM (GMT 0)
I'm walking/running as well, but am trying really hard to run the full distance. This will be my first half marathon .. which is exciting.
I trained last year but got sick and couldn't go ... this time I'm all in :)
Posted 8/29/2012 3:53 AM (GMT 0)
B'Dereh, We have 40 people There are 20 people on each team. One team walks and one team runs.
UCFree, I am on the walking team too!
There has been a big hitch in my joining up. The fine print of the registration contract has me giving up all copyright to any materials I write or produce about anything to do with the race or my medical condition during training or the race in perpetuity. It also gives them my image rights in perpetuity. That is a really silly clause for them to include about anyone. This is a problem since I already have a contract to write about the physical therapy and training I already started at our club. Another stickler was the contract requires all participants to release CCFA from observing federal health privacy laws. The local CCFA manager thinks it will not be a problem and said he would send me an amended contract. I hope he is right. I really want to do this!
Posted 8/29/2012 7:33 PM (GMT 0)
Subzero, that is a quite stupid condition. But since most people aren't writing; maybe they will change it for you, because you already have a contract, and I doubt they would insist on exclusivity at the risk of losing you from the team. I'm not a lawyer but I also don't think they can insist on the rights to your image if you do not want that. Please do make a stink about the contract and see what happens.
Posted 8/30/2012 4:56 AM (GMT 0)
They have amended the contract so everything is fine. I needed to retain rights to my own copy written material or I cannot make any money from my own career. I finished my first workout which was really easy, three miles across a ridge above the city. It was so beautiful. I am allowed to bring my Siberian puppy to most of the training sessions. She loved all the attention. This week-end there is a clinic on nutrition for competitive training on a low residual diet. I tried solids today but it was too painful so I am going back to liquids. The core exercises and weight lifting felt great. I hope I can keep up with everything!

Post Edited (Subzeromambo) : 8/29/2012 11:00:09 PM (GMT-6)

Posted 8/30/2012 8:29 AM (GMT 0)
Sub, you are doing so fantastically and are an inspiration for my own fitness and yoga ambitions when I return to real life.

Could I ask you to send me a link to all this info and organization?I am going to lok for it anyway, I want to show it to my GI here who is involved with ibd awareness.
Posted 8/30/2012 3:40 PM (GMT 0)
[www.ccteamchallenge.org] this is in the first post too. The main organization is the Crohn's and Colitis Foundation Of Amerca. I cannot get my iPad to format it as an URL so please cut and paste.
Posted 8/30/2012 6:22 PM (GMT 0)
Thank you Subzero! They are really well organized. There is nothing like that in Germany.

Another thought, if I don't get pouchitis by Sept 19th, my jpouch's six month in-use birthday, I will have a dinner party.
Posted 8/30/2012 6:29 PM (GMT 0)
I ran the Vegas night half marathon with Team Challenge last year. Also ran the Virginia wine country one last year. I raised nearly 10K for CCFA last year with these 2 events.

Virginia was a fabulous, gorgeous... well executed race. Vegas was so very overcrowded and the race was not managed well at all. Far too many walkers and run/walkers put themselves in the wrong corrals.... totally screwing up things for the runners. I spent most of the half marathon dodging walkers with linked arms. Very few bands during the race. One area was actually very dark and very scary. Had to actually stop before the finish line because it was so jam packed. Massive pileup at the finish line. Really ticked me off cause I was trained and definitely ready to break the 2hr mark. Couldn't even get to water or food at the finish. I was one of the lucky ones that managed to snag a medal in the finish area. Lots of people didn't. Frenzy in the hotel with people trying to get through after the race. Ended up with lots of people hospitalized.

Anyways - the idea is great. But I really do wonder how much of the dough raised actually goes to research. CCFA sure spends a large fortune paying for full time employees, kit, marketing stuff, mentors, run and walk managers. Our local team never seems to have more than 15 participants actually making it to each event, never raising much money in total.
Posted 8/30/2012 11:03 PM (GMT 0)
Ddd45,
$10,000 is a great accomplishment! Any fundraising advice you would like to pass along? I can certainly understand your frustration about the finish line. It sounds like you deserved so much better after your hard work. I am at the opposite end of things.

This is my first public athletic endeavor since I was felled by mega toxic pan colitis in 1999. I will be impressed if I actually make it to the finish line! Lol. Thank you for the heads up on the Vegas crazy ending. I had a feeling it would be a zoo but the chaos sounds overwhelming. Why were so many people hospitalized? I use a headlamp in the winter around here. It sounds like I should wear it during the race.

According to the charity watch our family uses, 80% of funds CCFA raised during 2011 went directly to research, and programs such as Camp Oasis. The remaining 20% is fairly evenly split between administrative costs and fundraising costs. Executive salaries were a little below national averages. There is only one local employee. He is paid $22,000 a year for managing the office and fundraising. The mentors, run and walk managers, physical therapists, nutritionists and trainers are all volunteers. I do not know if this is the same for all cities.

I confess that meeting my personal goal of simply completing a half marathon and getting to know other people with ostomies and j-pouches are my real reasons for doing this. We also have a team member who heads up a CCFA genetic immunology research project at our med school.

I appreciate your honest opinion and look forward to reading your fundraising advice.
Posted 8/31/2012 3:18 AM (GMT 0)
A six-month celebration sounds great, B"Dereh, especially a dinner party!
Posted 9/1/2012 7:19 AM (GMT 0)
Ron,
You can walk, walk and run or just run. I tried to post a picture of me from today's training but I cannot figure out this website's coding. I am carrying a poster that reads "I run faster than your couch!" I raised $150 in an hour just from the silly poster.
I started out walking two blocks and can now do four miles. Tomorrow I will try to do five miles. I have a collapsible cane in case I get in trouble and my family is prepared to pick me up at any time. i still cannot eat solid foods but I seem to be doing fine with all of the protein vegie drinks we have been making. It would be great to see you. If this doesn't work out, we will think of other events!

Post Edited (Subzeromambo) : 9/1/2012 1:28:23 AM (GMT-6)

Posted 9/2/2012 12:51 AM (GMT 0)
I will look forward to it!
✚ New Topic ✚ Reply
12