Anyone heard from Rosemary?

I know. I got crazy with the egg and pancake thus nmorning. Then induced diarrhea with coconut water but I see no signs of the egg and pancake. It must be stuck in me. Walked earlier but getting too weak am napping now. Was in so much pain last night. I overdid yestrday. have to stay on the ensure clears. RJ

You may not see much from the egg and pancake. They are both pretty much low residue. So your stomach may have completely absorbed them.

Tomorrow I have to have a retrograde gastrograffin enema xray in thru the stoma to see what the issue is. Likely tons of scar tissue that lysing would only make worse but we shall see. There is some reason solids have such a hard time getting out of my stoma as the stoma is wide open and the surgeon could easily pass her fifth finger in and out of it without incident.

I have no idea why the covidien company in massachusettes manufactures sprayshield adhesion barrier yet does not market it In the states. Manu other countries use it with great results. Keeps adhesions from growing back. Has to be some ecxonomic thing. That has nothing to do with patients. Still wish this doc had not removed my unused colon. We did not discuss its removal prior to surgery. Each procedure begets more scar tissue.

The contrast for this test can result in massive diarrhea so I mauy end up at the er mayo az for iv'a and special drainage bag. If there are more adhesions further in and are just band adhesions that can be taken lapro then thaty may be ok. But anything major I just gotta check into the euthjanasia thing in oregon washington and montana. To think I muy case I did not even have a disease and did not even have the internal prolapses operated for back in the east. I am besdie muself and taking it one day ata time. Sooooo hot here. Am doimg little walks and lots of naps in thje ac. Went to a museum, a resort, and a mall. But that is it!

Thoughts and prayers are with you and your procedure today. Hope it goes well for you for a change and you get some good results.

No kinks or narrowings found. But I know I am loaded with adhesions. Those don't show on xray. Diarrhea severe. Hung around for 3 hours emptying bag after bag after bag. Then came back to hotel on shuttle. Was told to drink and stay hydrated. But each time I swallow the contrast diarrhea starts up. Am flat on my bed for a nap. Do I do the drinking sips well spaced out. I have not peed since early this am and feel dehydrated. I pray some of what I drank absorbs. This is brutal. The doc said if I get dizzy or pulse goes way up I have to get to the er for an iv. I have no clue where they will put it. I am worried my heart will have some issue with electrolyte imbalance. Keep fingers crosswd for me.

Got the docs op report finally. She said in preop I asked if it was possible for her to remove my unused colon. That is not what happened. I never saw her in preop. At an appt 4 days prior I asked if she could suction cecum mucous out of my colon while I was asleep for the ileo stoma revision. I was not wanting of the additional procedure of colon removal. She states that I had to have mucous suctionongs every month. I had written to her that I only had to have them evry 5 or 6 months. I wish she had left my unused colon in me. Less scar tissue had she done that. R

Ok so I had water and gatorade and started to pee. Now I see some white. Scrape on the top of my stoma likely from the test. So late in the day I had soft foods like the phys assistant said to do. I had yogurt and some puDding and some more gatorade. Am going for a short walk. Praying that my stoma and its workings are ok tonight. At some point I should see the pudding and the yogurt. I pray. I am peeing but not tons. What is coming out is still real watery from the contrast. I hope I will be ok.

To think that all of this is needless as I did not even have the sigmoidocele or need its removal that lead to all this is absolutely mind boggling! Pray for me and I appreciate your prayers. Rosemary

I am a severe internal adhesion former. I did have inactive diversion colitis but only one active case of it last july. I did not have to have monthly suctionings of it but only a suctioning every 5 or 6 months. Very livable. But this surgeon at the sept 14 surgery did remove my whole unused colon though I had not and would not have consented to that. That is a huge procedure that no doubt created many adhesions. She said I had requested colon removal which I did not. I only requested and consented to revision of ileostomy stoma and probable lysis of adhesions. My former two colorectal surgeons who did ileo stomas left my colon in me for just that reason, to avoid makinfg more adhesions. Prior to my first ileo and take down of adhesions I had an entire year of adhesion small bowel obstructions from the pelvic organ prolapse surgery. I would be the last one to request a total colectomy in addition to the ileo stoma revsion. What I requested was removal of colon mucous while I was under sedation. I need to file a short letter for my files saying there was a misunderstanding as if I had requested total colectomy it would be like I was setting myself up for more adhesions. You are right the message type thing is for superfiscial adhesions not the kind that give small bowel obstruction.

Rosemary, how are you doing? Are you still in Phoenix?

That is the best post I've read from you in a long while!! Fantastic news Rosemary. I know you're still not quite out of the woods but you sound much calmer and happier. That's awesome. Well done for getting out and about and taking things slowly. I don't think I've seen you write the word 'fun' for a long time!

I have to say I agree with your surgeon. Having just met a new surgeon here, he said the same thing about my diverted colon. Contrary to what my previous Dr had said, he said it cannot stay in there long term and mucous perforation is a risk - so regardless of what he does next, the colon would have to go. Be glad to be rid of it. I think it's probably better in the long run.

You've had a really rough ride lately and it's no wonder you have inflammation after all that surgery. Let hope that settles and you can get back to eating a little more normally.. and that it doesn't turn into adhesions. Thinking of you and really pleased to hear you sounding better. Long may it continue. Hang in there and stay positive. Well done Sarah x

rosemary hang in there. Keep getting out and enjoying yourself. Rest lots. Eat/drink stuff with lots of protein. And stay hydrated. Seems like your are on your way to healing. We are all happy for you.

Thx. Today was cooler in the 80's so I went to the cactus botanical gardens but I did not last as long as I had hoped. I am getting too tired. So came back and was going to go to bed but it was nice out so walked to the hospital caf and had strained clam chowder and. Lots of ice cream. That late in the day I did not dare mess with any solids. So far liquids are passing. I actually had yogurt and cereal juice and coffee this am for breakfast and it passed ok.

I had a protein shake but have to get into more of these. So hoping I can eventually pass solids again. Last night when I woke up on my back my bag wa full of air this is a good thing means gas was coming out of me.

So wish I had moved to az back in the 80's when I was in my 20's! Love it here. RJ

I have all kinds of consistency in terms of output, but egg is usually a thinner output. Not quite liquid, but on the thinner side. All of the stuff you seem to be eating come out as very thin output for me.