subtotal colectomy colonic inertia please help

Hello i have questions for anyone who has had it. I was diagnosed with colonic interia last week. I have read nothing but horror story's on the internet about more problems afterward and it not curing the constipation. My surgeon said that there is 0 chance that I will need a bag and that BMs should be 2-3 times a day and no diet restrictions. he said the only risks are the same as other major surgerys. Can anyone comment here on theres went and if they are 100%. thanks my suregery is schedule for next may because I can afford any down time right now.

Thanks for reply. did you have the bag? how are your bowels and do you have diet restricts? is this what you had or did you have other issues as well. thanks again as im tying to gather as much information as i can.

Can anybody on the forum give me advice. I am awaiting to have my unsuccessful ileal-rectal anastomosis switched to an end-ileo. The problem with the ilea-rectal anastomosis, rectal inertia, I cannot evacuate from the rectum without using suppositories, I cannot even pass wind without turning myself upside down. The problem is that my surgeon says there are too many risks involved with removing rectum. He is willing to take it out if I opt for ileal-anal pouch reconstruction (which I dont want) but not just for end-ileo because I dont have cancer or chrons etc. What worries me is that when I had the temporary loop-ileo I had terrible problems with mucous getting stuck in the rectum, nevermind the pressure but I was also getting frequent symptoms of cystitus, burning pain in pelvic and urine, it was excruciating. No amount of antibiotics solved the problem. Only when the mucous was evacuated did these symptoms go away but that was difficult . I think it is temporary cross-infection from rectum to bladder/vagina. Since resection I dont really have these symptoms, only when rectum is full of stool, but I when manage to evacuate from rectum, with great difficulty, these symptoms subside
The surgeon first suggested that this was a bladder problem!!! It isnt. He also suggested it was in my head. It isnt. He said that as it would not be a loop that no bowel contents would be going into rectum, so maybe I wont have problem with cross-infection? Anyone have this problem? So then my only problem would be with continuous mucous being produced in rectum and having to get it suctioned out, lovely, ongoing problems. He got so annoyed with me for raising these concerns that he threatened to send my file to another surgeon, I think he is aware of my wish to sue my original surgeon as I requested that copies of all my files be sent to me. I was in tears when he said this, I have been through so much, none of which was my fault at all, they all back each other up. When he asked if I wanted a second opinion I was afraid to say yes in case he got annoyed again and sent me away to whomever else would be brave or honest enough to take me on.
I conceded, under pressure, that he was the specialist, albeit a general surgeon, and that he knew best!!!

My worry is also the following: He said that he would take as much of the rectum as possible to reduce the production of mucous but would avoid going down too far into pelvic region where it gets complicated. I appreciate his concern but other people get their rectums removed, what are the statistics of nerve damage? My worry is that I will continue to have problems with mucous getting stuck in the rectum and that I will need further surgery to remove it. That would not be good, going in and taking some out, healing occuring, then going in again to remove it all, what about the risk of adhesions? Did he think about this or is he not concerned that I will have ongoing problems with mucous getting stuck in the rectum. The result of the biopsy from the rectum was that there were ganglion cells in some of the rectum but a portion without!!! He gave me a date for surgery, December 20th, what should I do, I would appreciate your input and thank you so far for all the advice so far, Im just so sick that I never get around to thanking people. My surgeon hates that I know so much about my problem and keeps telling me to stay off the forum, that would be convenient for him, no questions, just undying trust in one's surgeon until we start having adhesions. How come he is happy to take out the rectum for ileal-pouch reconstruction but not for end-ileo. I should have just said yes to the first suggestion but I just want to be finished with surgery.

cloite. is sounds to me that you need to seek out a very experienced colo-rectal surgeon. I would never allow a general surgeon to operate in this type of situation. In addition, the rapport you have with this surgeon seems far less than desirable. This is your body and your life. You must stand up for yourself. I believe you need a highly educated, highly experienced, board certified colorectal surgeon caring for you.