Surgery Monday

So Monday is THE day. The plan is to try to reconnect my small bowel to colon and give me a loop ileo. Will have laparotomy this time and he intends to have a 'good rummage'. They'll then take a sample of colonic tissue away and run all sorts of tests on it to try and diagnose dysmotility. It's unlikely he'll just do a reconnection without an ileo, unless he finds something very obvious which was the cause of the problem.

If they find no markers for dysmotility, then in 6 months we'll try a reversal.

I asked him about removal of the ileocecal valve and he didn't seem to think it was too much of a problem. Maybe loose BM for a while, but should settle down.

So.. there we have it. This is now my 5th surgery and although I'm scared, I am at least prepared and know what to expect. It's not a clear cut situation though.. so quite mind boggling.

It would just be nice to have a working stoma at the very least!!

See you on the other side.. will try and post an update. Thanks for your support everyone x

Good luck! Although there are a lot of questions, at least you will be able to eat again shortly. Will be thinking about you. Keep us posted when you can! Hugs!

Looking forward to hearing from you on the other side!

I am so excited for you! You are in my thoughts and prayers. I look forward to hearing good news post-surgery.

Yay! Best wishes for Monday!

Sarah,

What a LONG wait you have had with such misery and lack of nutrition. Will pray for you. You deserve some workable situation. Depending on what we have all been thru I can see why you would settle for a good working stoma.

(Still experimenting with foods..............these are long ordeals...........I will be thrilled if my new stoma keeps working. I do hear you.)

See you on the other side. Go easy on the weaning back into eating thing no matter what the doc ends up doing because you have been without food for so long.). Will be praying for you. Rosemary

sara.. good luck on monday.. and for a speedy recovery. thoughts for your family too through this as I know this is out of town for you and that is difficult. Sweet dreams about all the wonderful food you will be able to eat soon. happy thoughts. stay strong and positive. we all will be waiting to hear from you.

liz

Thanks everyone.. am just fretting, trying to organise (my disorganised) husband and kids to make sure they manage whilst I'm gone ;-) My son has special needs and is on medication, so it's challenging to say the least.

The thought of 'real food' at this point is nauseating and I do wonder if I'll ever eat normally again. The smell and sight of food now just makes me want to throw up. Just hope I get my appetite back at some stage, but don't worry I'll be taking it super easy on that front.

I'm going in today, so will be organised for tomorrow morning. Have had my hair and nails done and trimmed my bikini line... well you never know ;-)

See you all on the other side... will try and post from hospital. Thanks for your support xx

{{{HUGS}}} and prayers coming your way. Hope your recovery is an easy one this time.

Best wishes Sarah! Rosemary

I laughed with the haircut. I went to my haircutter before my big surgery and said I wanted a cut where I wasn't going to comb or wash it for five days.....she didn't even flinch..... my partner said I looked less sick than all the other women on the floor, just because I had short hair that wasn't all tangled up.....

Thinking of you today, perhaps you're in there now....

Hi folks.. Am done and in ITU unable to sleep despite sleeping pill. Am all ovr the place. Writing from my phone so forgive the grammar etc.

All went well no complicatios. I have a longline incision and a new loop ileo. He said there was a mess behind it with lots of bowel loops and twists.

He fixed the 'end' back up to large bowel and removed cecum, ilececal valve and appendix. And have a nice new stoma which will work. So in 6 months (min) he'll then do a reversal and then the fun will begin.

Have only had ice chips and clear liquid so far. Had a nasty nausea spell whiich seems to happen evertime - nothing like vomiting with a abdo incision ouch! Lots of antinause meds tho which is helping.

So there we go.. Another step on the path of this crazy journey. The care and team in this hospital ia amazing. Thanks for all support.. Will keep you posted. Sarah xx

Oh this is so fantastic!