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return of the pyo...

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Posted 12/16/2012 10:24 PM (GMT 0)
Or maybe I should say "new appearance of the pyoderma." My original sore is much much better. But now the skin directly circling my stoma seems to be affected. It has been silver/blue for a long time. Now it's developed the pulled melty cheese appearance (aka the skin looks stringy). Wohoo! More trips to Cleveland are probably in my future. I love burning the entire day for the pyoderma.
Posted 12/18/2012 1:13 PM (GMT 0)
So sorry to hear...PG is as creative as IBDs:-(

Don't look at it as burning the day if it can help the outcome...keep your chin up!!

(((hugs)))
Posted 12/18/2012 1:27 PM (GMT 0)
I had a new spot open up too - ****** PG! I treated it immediately at home with what I had and contacted my WOCN/GI to make them aware and schedule appointments. By the time I got to see them (2 days later) it had already corrected itself. My peristomal skin looks like hell - WOCN mentioned vasulities. It is silvery/shiny everywhere and I feel like it is just WAITING to open up and swallow my stoma whole :( Thank GOD I don't have the pain that went along with the ulcerations though, it was just horrendous.
Posted 12/18/2012 10:36 PM (GMT 0)
That is very true Equestrian Mom - I will not be burning the day...but my skin is certainly burning now ;).

All Blue - Not that I want more pyo, but I just have visions of me showing up tomorrow and it being corrected. I haven't had my bag off since I originally identified it...as I didn't want to torture the skin more than necessary. It's definitely burning though.

How would vasculitus appear on the peristomal skin?
Posted 12/20/2012 12:32 AM (GMT 0)
Well, I went to the appointment and the pyo had ulcerated..and grown...alot. It was about 2 inches by .75 inches. I just noticed it forming on Sunday and by today (Wednesday) it had gotten that bad. Back to my biweekly trips and steroid shots! :).
Posted 12/20/2012 4:52 AM (GMT 0)
Dang it, I was hoping it would have gone away on its own for you. Has your doc talked about switching from the Humira to something else? Honestly I dunno what corrected/put mine on the back burner since we were doing more than one thing at a time but I for sure think the Cimzia had something to do with it. I think she mentioned the vasu***is b/c it is an inflammation and pretty much my whole body is inflamed. You can see the blood vessels/capillaries whatever they are running all over in the peristomal area - like they are super close to the surface or something?

How jacked up is it that I need this stuff to clear up so I can go back to the operating room? Who WANTS to go back to the OR? Oh, that's me! She won't even entertain my talking about it right now :(
Posted 12/20/2012 5:10 AM (GMT 0)
Oh wow. The v things sounds not so fun. I wondered about switching to something else. Humira is helping the other things sum, but not completely. I think I would need something that helps both the UC type symptoms and the arthritis type symptoms. I know the UC meds but not the arthritis meds.

I completely understand about wanting surgery. I so want my next one to get rid of the rest of my colon!
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