Surgery for Pelvic Floor Dysfunction kpouch and option?

I have posted my journey before on here and have been reading and adding comments to others post. And have found this to me the best place to help male big decisions from others feedback through their experiences.

I met with the surgeon yesterday as I am ending my biofeedback program. I have not had any success with biofeedback and am at the point I feel like the constipation is cause toxins in my body (face broke out ,itchy all, exhausted, I could go on and on). I have decided to continue a few more weeks lf biofeedback to male sure ive given it my all. He relayed to me my only option at this point was an ileostomy . I was a bit shocked in the office so all my questions are just now coming to mind. He said I would keep my colon and rectum this worries me because I have read on here and other forums that the colon can still expel gas and mucus which is very painful at this point as well. So is this going to continue to cause me pressure/pain in pelvic floor with colon still there?

I have also read about a kpouch has anyone had this done with pelvic floor dysfunction . Being 30 I worry about my life with a bag on the outside but think I would be happier with a hidden option.

Any feedback on having ileostomy keeping colon or the kpouch would be appreciated!!!

I'm facing a similar dilemma. I have scheduled and canceled ileostomy surgery about one dozen times over the past three years including just this week. My primary concern has been as Karen stated, that I would be trading one set of problems for another.

In your case, if you have not already, I would recommend trying the Botox injections as they have helped some people. You want to be sure you've tried everything.

Having shared the concern about gas, I can say that the unused colon cannot continue to produce gas if it is done as an end ileostomy rather than a loop. Stool can also bypass a loop ileostomy. Either way though, you will pass mucus and dead cells. If that gets to be your main problem, then you will still have the options of having the colon removed or the operation reversed. It's still been hard for me though, considering the difficulties and risks associated with a second surgery.

I think the conventional treatments for pelvic floor dysfunction failed in my case because I believe the condition was more iatrogenic, having years of watery (and often burning) stools from milk of magnesia use. That was for chronic moderate constipation that long preceded any symptoms of pelvic floor dysfunction. Ironically, I wouldn't have any problem with something more large, hard, and dry. I actually find mucus comforting in my current state and wish there were more. Liquid or gas I could not deal with.

Seeing the rate of complications and management of an ileostomy has me wondering which is worse, so I will be interested to see the responses here.

Post Edited (Jack Sprat) : 5/10/2013 5:35:37 PM (GMT-6)

Thanks Karen for the information and others for the input! Lizzie I would def like more information if you would like to private message me.

I do know I can't continue to live the way I have been so if surgery is an option for even little improvement I willing do iit. Just want to make sure I have all my concerns and questions answered beforehand.

Jack
Are you unable to find a surgeon who is willing to remove rectum and colon?

Extreme misery i sent you an email to your hotmail account.

I didn't :( SOOOOO SORRY!!! I was in hospital and things have been messy. My email is [email protected]'ll check again. Hope to hear from you soon.
Lizzie