Did your pain pre-surgery with UC, radiate to other areas?

I originally got diagnosed with UP, but it's since progressed to left sided colitis. The past few years, I've had unexplainable 'dull' aching on the right side of my abdomen (if i look down, it's to the right). This was always bizarre to me since my UC doesn't go this far.

I had ultrasounds done, colonoscopies, etc. and there's never any inflammation there. I figure this will go away once I have surgery, but it's still weird. While dealing with my current flare, even though the colonoscopy showed only left sided UC, the cramping and pain extend all the way across underneath my belly button. Just unusual since I figured pain would be limited primarily to the areas of inflammation.

I guess I get a bit scared because it makes me wonder if I have Crohn's (thinking that if there's a gap in pain in areas, or if it extends to the right side, yet doesn't show inflammation, maybe it's that). But the tests/biopsies and Prometheus labs results all came back as UC (although I do think in one of my papers it said indeterminate UC).

The only time a gap ever came up with colonoscopies was a couple years back, and my doctor felt that it was because some of the medicine was hitting some parts and not the others (since I was doing both oral and rectal meds). But I haven't had any indication from my doctors over the years that it's Crohns. Maybe I'm just freaking myself out.

I had pain all over my abdomen, but I did have pancolitis... I also developed terrible pains in my lower back towards the end of my flare and my GI said it was just from having bad inflammation. It went away. "Referred pain" is very common and I don't think you should worry that your pain is indicating where hidden inflammation might be.

Have your scopes ever reached the ileum? Sometimes in the presence of severe inflammation or if the GI isn't super awesome at scoping (haha) they won't get that high, but they're supposed to. If you have access to your colonoscopy reports you can see if they visualized the terminal ileum and if it was clear.

Either way... you really have no idea where your ileum is or if what you're feeling is "ileum" pain. I wouldn't worry! Especially if you're going to a top surgeon, he or she will convince themselves that you are a good candidate for a j-pouch way before they get you to the OR.

I have this pain that radiates down the back of my left leg & it certainly coincides with the days severity of symptoms. I also have what feels like a constant bruised tailbone & is very uncomfortable to sit for any period of time between the two. My disease is severe in the rectum and mild just a small ways an the left.

Yes, it is. As a child I bruised my tailbone & it's a distinct sort of pain! I've had this for a year and a half now >:/