WHO ARE TOP ADHESIONS LYSIS SURGEONS IN THE US AND ABROAD

Just a little opinion poll here. If anyone has had issues with adhesions who is the best adhesion docs in the US or abroad?

Rosemary

So far so good with me, but asking on behalf of a friend who is in real trouble.

I Googled and found Clark Gerhart in Pennsylvania. Also Dr. Matthius Korrell in Germany. That's all I have so far. Rosemary

JETZY1

Yes, your research matches mine. The Karen Steward book is really good. I have also heard conflicting things about Dr. Kruschinski.

I have so far not had any adhesion reobstruction after the original ileostomy and adhesion lysis surgeon worked his magic for me. A PRIOR Gyn surgery at another hospital cost me the use of my rectum and colon permanently and for 7 months the use of my small intestine. I was unable to eat for 7 months and lost 1/4 of my body weight.

The lysis of adhesion doc who lysed very dense small bowel adhesions (detected at Mayo but not addressed) then made me the needed ileostomy retired! I got him only 2 months prior to his retirement from surgery. Mayo detected the adhesions on CT ENterclysis test but said they were too dangerous to deal with. They just wrote in my records I should keep using my PEG nutrition tube which I never had! You are right Mayo is NOT interested in adhesion lysis. I live in Mass and only 1 doc out of 11 I had to see nationwide at 7 major medical centers could/would help. If not for him I would be five years dead by now. I was only 50 at the time. Scary, huh?

I had heard of Dr. Cooke in California. Clark Gerhart is very responsive and even responds to emails and seems very anxious to help out if I ever had another issue from adhesions. BUT some doctor rating site said that he did an unneeded bowel resection, but the other reviews are fine. He was all for doing robotic lap if ever needed after me having all open surgeries. My current ileo doc said this is very dangerous as you are apt to run into scar tissue around the small bowel which may be there and not be symptomatic but you can accidentally puncture the small bowel. But who knows Dr. Gerhart may have skills that are above and beyond. Who knows?

I just hope i never have any other issues and that this "fix" lasts as long as I do and that I have no other surgeries needed. On review a previous hysterectomy and the GYN surgery that got me into this whole adhesion thing were not needed. So I went through all this needlessly. VERY SCARY. Rosemary

Rosemary,

Dr. Matthius Korrell is not, according to google results, connected to any hospital or university in Germany. Stop right there.

charlesp said...
i am 95% sure that Dr. Kruschinski is a fraud and that karen steward is delusional bint pooling patients for him. There is far too much smoke bellowing out of articles containing his name for there not to be a fire. i spoke to a former patient from the uk he said he felt poorly cared for when he was there and the (expensive)surgery only changed the symptons of his adhesions and not for the better. I'd be very wary of any one claiming they're the answer your looking for, if they have to claim it they're probably lying.

If any one has any more information regarding good surgeons please let me know as i form adhesions like they're going out of fashion.

all the best.

The posting above is malicious and completely misleading. Dr. Kruschinski is the leading expert in adhesions surgery. I'm not sure why people want to harm the one surgeon who can help us who suffer from adhesions, but any reader should ignore the lie, as it is a lie and posted only to lead people astray. Once you contact Dr. Kruschinski he will provide a patient contact list and you can call his patients and speak to them directly. I joined a facebook adhesions forum and also met many of his past patients there. I spoke to Karen and her daughter and both women were the most supportive people I have ever met. After talking with me Karen mailed a copy of her book to me and it helped me make the decision to go to Germany. I am now working again, enjoying my family and this after so many years and surgeries that failed me. I've gone from lying on a couch in pain day after day to living life like a normal person who has never had anything wrong! I am running marathons now which was something I only dreamed about before. I am disgusted by the posting at what is supposed to be a helpful healing forum. I suspect this person is the same one who posts all over the web, just a hater who has no life. When Dr. Kruschinski did my second look I had no adhesions at all and I was already eating without becoming sick as I normally did. I would make the Germany decision a million times over!! There is nothing like being able to join back in life and activities with one's family and friends. People tell me I look so good and it is because I finally feel good! My only regret is I wish I would have gone sooner!

And why do you attack? Very wrong. Why did you not call out the attack on a credible surgeon if you are policing the forum? Why also do you not notice the posting that is an attack on the surgeon was a first and only posting? For a veteran member you are not very kind.

Oh Nick, one more thing. There is tons more criticism of Dr.K on the web in German than in English, which makes sense given that most of his patients are in Germany.

regarding Charlesp post regarding Krushinski, touche'. My mental health was questioned and thrown to the wolves when I dared reject even some of the things posted by Charlesp. I am not saying that Dr.Krushinski can not perform a laproscopic adhesiolysis BUT he is NOT the one and only and the "jury is out"- regarding Spray gel vs Adept as the better barrier product-fact. I have had surgery in Europe and have NEVER been asked to wire money ahead. I have had surgery by four surgeons over the years so have no allegiance to any,they all had stellar records yet my results varied greatly from surgeon to surgeon. Part of this is because of changes in barrier products, different techniques and frankly my body. To the point thank you Charlesp. Ms. Steward may be understandably greatful to Dr. Krushinski but WE ALL DESERVE OUR OPINIONS and it amazes me that people like you and I are jumped on for saying something not liked YET the propaganda from some that think so highly of this Doctor is unrealistic. After hearing from only a few women one told me she had to go back two years later for another surgery due to an obstruction but went back to him and that is HER CHOICE but two years would personally give me reason to pause. Free country, MY OPINION! I prefer a surgeon that will give me the facts, give me the good with the bad and let me make my choice. I had to seek out my surgeons, no big marketing for them and two of them are heads of their departments in good large hospitals on both continents.

B'Dereh, you are very astute all I wanted was a sight that people
would share real experiences and ALLOW people to speak. I feel sure your reference to Googling Dr. Krushinski's name is right on the money, good for you. What happened to free speech.

Rosemary passed away last April I'm sorry to say. She got tired of it all and checked herself into hospice and stopped all food and fluid. It was very heart breaking to us that talked to her often, but she was sick and tired of being sick and tired. Tomorrow she will be dead for 1 year. I sure miss my friend. RIP Rosemary.

Post Edited (answers4me2) : 4/9/2015 12:49:56 PM (GMT-6)

Yes, already a year tomorrow. We all are like, wow, a year has flown by so quickly. She suffered with adhesions like many of us, me included. I sure hope some scientist, doctor somewhere is looking for a cure/fix for adhesions as they end many lives everyday.

That was Rosemary's wish.

I am also sorry to hear about Rosemary's passing. If she did have issues due to adhesions, then it is understandable that she just wanted to let go.

I still have not managed to find anyone in my area who even wants to talk about adhesions. It is a very sore topic across the entire medical community, where it seems as though there is a literal gag order on the subject. Plus, I still come across comments from some people in the medical community who insist that adhesions are no big deal and don't cause any pain or other problems- they choose to be in denial. This type of attitude certainly would not help with any urgency to find a fix for the issue.

I know of one patient who is going to try the Clear Passage Physical Therapy in the near future. I will be waiting to see how it goes for her. This therapy currently costs about $6,000.00 for a one-week treatment. I find it hard to believe that they could accomplish much in one week, and I would think that it would be painful to do it so fast. But since they only have a few US locations, none of which is near me, there would be no way to do it slowly since I would have to travel quite a distance to do it. And there is no way to verify the % of satisfied vs dissatisfied patients who have done this therapy so it would be a gamble if I ever went for it. Obviously, you can't rely on the Clear Passage website for patient reviews, all of which are naturally glowing ones.

I have tried 3 physical therapists, and one visceral massage therapist with no success. The visceral massage helped a little for a day or so. But it never seemed to reach the deeper areas, like the low back part of the sigmoid colon, where it feels like everything is pulled down through the groin into the thigh.

I read of a sad story about an Australian woman named Nancy Crick who developed abdominal adhesions after cancer surgery. While the cancer was gone, the pain and problems due to adhesions were too much for her. She finally went with assisted suicide.

I wish that someone like Michael Moore would do a documentary on this subject. Someone needs to blow the lid off of this hushed up, minimized by the medical community issue. I have been dealing with adhesion related disorders for over 30 years. Didn't learn about it until about 10 years ago. From all of my research on adhesions, I haven't heard of any real progress as far as the recognition or treatment for it.

Adhesions are scar tissue on the inside.... so handling organs is the cause of them. You can get them from one surgery. Laproscopic surgeries reduce them... my first surgeries were lapro, and I was very clean inside... but this last one had to be open. I know the surgeon tried to handle my intestine as little as possible to try to avoid adhesion.s