Reversal Scheduled!

Update from me. I stop fybogel and stop medication two weeks ago. It was rough at first but now, with the help of veggie and more solid food, it is bulking up. I still needs to rush to the bathroom once in a while during meal time but it looks much more solid now. I suggest you to eat only cooked veggies instead of uncooked ones. That will reduce the gas. Definitely fiber did cause me to go to the toilet a little bit more but it also bulk up my stool. I take lots of brocolli and spinach.

Sigh... i feel you... i am still under antibiotics right now too... surgeon removed my stitches a week ago and realise that my surgery wound is weeping alittle. So he prescribe augmentine. Since then I just do dressing every two days because the wound looks fine. Yesterday when I was doing my own wound dressing, I saw two holes!! One is pretty deep in cause when i squeeze out the stuff, it comes with bubbles. So sad sigh... hope it heals. And hope everything will be ok from your side too.

Grandviewacres,

Just want you to know my holes are getting better! I think the holes are either caused by suture from my internal stitches of my muscles layer or because of the small injuries during the process of removing my outer stitches. Because doctor used a blade instead of a scissor, guess the pulling must've damege some of my skin cells. And my bm these past two day is only about 3-5 times :) I did not use adult diaper and i am able to control my bm all little because ever since the reversal, i have tried to hold my urgencies as long as i could to train my anus muscles. i finished my antibiotics today.. and i am not on any medication :)

Do not worry too much. I believe blksteeda and I are very happy with the reversal. Just to share some challenges along the way to ease each other's recovery.

I cant wait to hear about your reversal and your recovery journey :) At least by then blksteeda and I will be able to share our experience with you if you encounter any challenges. But i hope your recovery will be smooth!

The most important thing now is to have positive thinking, this will definitely help before and after surgery.

Cheers!

Post Edited (AccidentSurvivor) : 1/14/2014 8:27:25 AM (GMT-7)

sorry if these are a little too gross but this is what my opening looked like the day after my reversal surgery...all that was needed was to just keep it covered. You can see the white knot of the suture...

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and this is what it looks like as of today...

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my stool results came back...the doc hasn't reviewed it but the nurse when over what she saw...it was negative for all types of infections... C Diff, Salmonella etc but it did show white blood cells in my stool. From what I read that is usually present in inflammatory diarrhea. I'm due for Remicade tomorrow so I'm hoping it will help calm it down and I can get my bowels back to normal. I'm nervous as my infusion lasts about 3-4 hours and the urgency pops up suddenly. I'm not eating very much at all the remainder of the day to hopefully slow down my output. I'll be wearing depends and bringing extra supplies with me....crossing my fingers

Gordon

Hello, just to drop by to check on you. How's everything Blksteeda? Hope you are well!

as of my appt yesterday with my surgeon, I no longer need to see him for follow up care unless something arises. He's leaving it up to my GI now to continue my treatment of my colitis, colonoscopies, etc.

I'm still doing fairly well. I still have issues getting my stool to firm up and had one bathroom accident this morning. The area around where my ostomy was is very sore. Sometimes when I move around a lot it happens and I need to sit still for a while. I'm hoping it goes away in time. saw a couple incidents of blood in my stool, not much but it was there. It's gone now. I'll follow up with my GI next week and see what meds he may want to add.

quincy said...
Hi Gordon! I've been remiss to follow you here (timing)....but thought to catch up and see how you're doing.

All good news regarding your reversal at this point. I do hope that the Remi kicks in to get your colon functioning after its holiday ;-) considering the diversion colitis, etc.

Your ostomy site has healed nicely...wow!

Curious what fibre supplement you were using?

Are you still on any rectal meds at this point? could help if you have any inflammation there. Maybe that's where the blood is from at this point since it's fleeting.

Good to hear no invaders have taken residence in your colon....that means no antibiotics which is good at this point.

Just to add...hopefully no more kidney stones to plague you!
q

The Remicade started to work a couple days after my infusion and it slowed down the bad diarrhea I was having but over the last few days the diarrhea and incontinence has returned. I'm having some bowel accidents again that I just can't control to save my life. I believe the blood was from a hemorrhoid as I can feel a couple small ones while wiping. I haven't seen any blood recently. I am seeing some undigested food coming out...corn, rice to name a couple. I've tried Benefiber and Fiber Choice chewable tablets. I haven't started the rectal meds yet, my GI is starting me back slowly on medications. I'm starting now to taper prednisone and I'm down to 10mg. I see my GI next week. I need a solution to this diarrhea. I've tried every over the counter med possible with no help. Even the script my doc gave me doesn't work. I see him next week and we'll go from there. Oh, I'm not eating any gassy foods but my gas is NON STOP all day, sometimes painful but I just can't get it to stop. I've tried numerous gas meds too.

I spoke to my doc yesterday, he's raising my prednisone to 40 again, having me do more stool tests, is checking for remicade antibodies and also wants to possibly do a colonoscopy. We've discussed going back on Colazal as well as 6MP after these tests are done.

I am currently taking Align for a probiotic, I believe I should get a stronger one.

From what I understand, yes this can be issues from surgery, BUT, the last stool test showed a high white blood cell count which my doc said is an indication of an inflammatory issue somewhere. I'm not seeing any blood at all. He's determined to get to the bottom of this if it's something other than usual surgery issues.

well I just got a surprise call from the nurse from my GI's office... "I just wanted to make sure you're on clear liquids today because the doctor may want to scope you tomorrow"....that was the first I've heard about that. I told them I ate this morning as this is the first I've heard about being scoped. I see him at 3.15 today and he'll decide from there. If I didn't have the runs bad enough...here comes miralax.

well I had my colonoscopy today and it showed inflammation all over my colon...not severe but it's inflamed. We're waiting on the prometheus test to see if the remicade is still working. He's having me start 6MP again. If remicade isn't working we're going to try Humira. He actually used the words "colon removal" to me as well :/

it's odd for me in a way...the section of my colon they took out was where my inflammation always was and the rest of my colon was always clean...now that they took the bad section out, the inflammation has hit what was normally always clear in my scopes.