small bowel adheion obstruction esoR

Ugh! Not sure if I have posted since my oct 5 severe small bowel adhesion obstructiin. Since having my stenosed stoma relocated and revised I had a partial sbo sept 22 only 2 weeks poost op. Then oct 5 I had a severe small bowel adhesion obstruction. Tossing up pooo, 12 days in an ng tube, suctioin, and clamoped trials. It dud "resolve" but when I eat I am totally nauseaus. I also have short bowel syndrome now the doc said he had to take 5 feet of small bowel but that some other stoma revision doc must have taken a lot because he said I only have 5 feet of it left in me. I know I have a ton of adhesions. I am In a riugh spoot and should have just kepot the stenosed stoma that I could live on liquids with for however long I could. With Boost vhc and all I could drive, walk in a park, and sleep well. Now I am in chronic poain, have short bowel, dehydrate, and have had these 2 sbo's. I am terrified. I am a mass of scar tissue and I think it is too late for much hoope. Sorry of spellos. Not feeling well and doing this from a cell phone. EsoR

Thx survivor. I just cannot believe all of this has happened. Need for stoma in first place due to injury/adhesions from a gyn surgery. First stoma and lysis of adhesions went fine and I was great for fiur years and travled the world by cruise ship. Then that stoma stenosed and 4 revisions later I have the above situ. You are so young. Your story is something! I wish you well. Hoope you don't form scar tissue lkike I do. Thx for response.

Thx Blue. I am gradually able so far to resume a soft diet, but the short bowel syndrome necessitates eating thickeneing foods and taking immodium. The residents hesitatet to oput me back on the high doses of immodium I was on before thinking that may have contributed to the small bowel obstruction. Your doc was in as attending that night I was readmitted. She said that once a bowel twists on an adhesion it can twist again. I am not so sure the immodium had anything to do with it or not but a gradual approach I guess is always better. Just don't want to dehydrate. Every day I am low in potassium due to the tremendous fluid loss due to the short bowel syndrome. My surgeon said I have five feet of small bowel to my name! We cannot figure out where the rest went. First stoma only included. 4 inch loss as the stoma was made 4 inches north of ileocecal valve. Secind revision was only a few cm's. 3rd and 4th revision the op report did not specify. This doc had to take out 5 feet of what he called twisted small bowel tho oprior to this stoma relocation surgery I had no sbo's. But that would leave a LOT of small bowel unaccounted for as we begin with 20 feet. I just can't win! Thx for your support. IDK if I could go thru another sbo. Ng tube for 11 days. Auugh! But so needed! Decomopression a must when one needs it.

The short bowel thing, I really wonder if I got it here or ay mayo az where I got the 3rd and 4th non working stomas. What I was told here was that they must have taken a LOT of small bowel. But logically if they had and I was in dnager of short bowel then how would I have not dumoped a ton of output living on all liquids? This doc had to remove what he said was a ball of small intestine all wadded up behind the stoma. This would account for loss of 5 feet. But which hospital really has the rest of my small biwel. The uissues I now face besides the sbo and the high volume output when the new stima is working, is that I get so dehydrated with high volume loss that I don't opee without an iv. Then of course the sbo which was a 2 week nightmare that I just can't do again. Then there is some big scar tissue area where they ckosed the old stoma to pout it on the other side. I really at this ooint wonder if it had to be moved. The old stoma hole now closed seems to be where stuyff get ls hung up as in feeling gut travel. And trapped gas. This was my last shot and I think I chose wrong doc after so much research. The use of seprafilm that I thoiught was so important as my first stoma odoc used and I was fine for 4 years, I think it may havenow been his technique rather than seprafilm that that time got rid of my sbo's. The act of eating is fun, but I don't feel well after I do it. Hioe this makes some kind of sense.

Rosemary, gosh can't believe how much you have gone through. Have the docs mentioned putting you on TPN through a port in your chest that you hook up to at night? I refused to have it through an NG tube as it was so invaisive. I have just over 6 ft of small bowel left so not quite classed as short bowel but I was given TPN to get the vitamins & minerals the body needs as well as keeping me hydrated I was also able to eat small amounts of soft solid food if I wanted to but if not it didn't matter as the TPN was feeding me.really hope that you get a break from all of this, you are amazing the way you cope. Big hugs to you Bev

Can you request the surgical reports from your last surgeries? I believe they will have to provide them, whether they are accurate is another story. I would definitely read through them and potentially get someone in malpractice to review them. This all doesn't sound right. eating is a major activity in many people's lives but sometimes it's overrated. Often I wish I didn't have to worry about what to eat, who to go with, when and how much it will cost me... at least if you're on tpn, you can focus on doing some of the stuff you enjoy and getting your life back. eating may not be the main focus but as you heal, hopefully you can introduce some new types of food over time.

So did you like my surgeon? Or were you in too much pain to form an opinion?

Ugh that's a lot of days w/an NG tube.....sigh. Hope things are getting better.

Rosemary, how are you doing? Any improvement? Hoping time is helping you to heal.

Hi just got back from yet another small bowel adhesion obstruction episode jan 15 to 23. My fourth sbo and my fifth hospitalization since sept. I am on TPN thru a hickman catheter. They want me to eat along with the tpon so my liver will stay safe and fir the short gut syndrome they want me eating bulky foods and taking loperamide to slow gut transit but for the small bowel obstruction issue they said very bland foods and no loperamide. I am caught between a rock and a hard place.

I am so ready to hospice out of this. How long would it take to starve and dehydrate with lots of pain killers that would be needed due to the pain of dehydration should i decide to go that route?

Hadit tent times over! Rosemary

I have the hickman with tpn port and the blood draw port. How is that different from a chest port. I do not know how to balance this short gut with all these adhesionm reobstructions. In mid non thru jamn 13 i was able to just focus on the short gut issue and tpn$ that consisted of eating thicklening foods, taking 4 mg loperamide a day and focusing on stayimng hydrated in the day then letting the tpn do the hydrating for me at night. Now with the new obstruction the docs are like go to one loperamide a day (would a pill really cause an obstruction????) And go from thickenoing foods to bland. What do i do?

I am so sorry to hear this rosemary. I was hoping you would be healing and maybe away because you were getting a break from all this crap. I have you in my thoughts. I wish some kind of miracle would happen that would allow you to eat normally.

The chest port I mentioned is the Hickman port that you have. Most people don't know what a Hickman port is so I just say a chest port.

I'm sorry you are having such a tough time.