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Posted 5/30/2014 1:26 PM (GMT 0)
I am Home and doing well. Surgery went smoothly, my pain was luckily not severe, and no problems with the bag so far. I am still really tired and whenever I do much my heart rate jumps up. I can feel it pulsating in my gut. It's been only one week, so I am trying to be patient. I slept on my side a little this morning, my back has been bugging me. Other than that I am trying to stay calm and waiting for my follow up when I find out the pathology results. Also taking Metamucil twice a day and gradually increasing my diet.
Posted 5/30/2014 1:42 PM (GMT 0)
Glad to hear that everything went well and that you are now home! It is so much easier to rest in heal at home than a noisy hospital room. Getting tired easily, feeling your pulse in your gut, sore back...that all sounds quite normal to me! I tried to get to where I could sleep on my side as soon as possible! I'm curious as to why the doc has you taking Meatmucil. I was told to stay low fiber/low residue for 6 weeks after surgery. All the different approaches/ideas we hear about on this forum are interesting to me! I don't know anything about JPouch surgeries, but can surely help if you have questions about the bag. Good luck and happy continued healing :)
Posted 5/30/2014 2:33 PM (GMT 0)
Allswell,

Did they build your pouch during the 1st step or just the Colectomy?

Patience and time will be your friends, it takes a little while to get use to the ostomy and changing it. Are they sending a home nurse to check on you and help with your bag changes? I felt really good after my colectomy but about the 6 week mark I started to feel great.
Posted 5/30/2014 3:34 PM (GMT 0)
Sounds like you're doing great! 1 week is a very short time after major surgery... you'll notice improvements in how you feel weekly, day to day it's tough to measure! I too, don't know much about j-pouch surgery, but I do know about colectomies! Are they waiting on the pathology to do a j-pouch? Take it easy on yourself, rest a lot, & drink H20!
Posted 5/30/2014 5:15 PM (GMT 0)
Good to hear you are home and healing up. Were they able to do the j pouch too? I remember you said they wouldn't know until they got in there.
Posted 5/30/2014 6:21 PM (GMT 0)
Smooth healing and recovery! Measure things week by week rather than day by day and enjoy little milestones without setting any stressful goals. Keep yourself well hydrated and take it easy and gradual on transitioning from low residue, and try and pick the brains of experienced stoma nurses as you learn the swing of your ileo issues.
Posted 5/31/2014 12:12 AM (GMT 0)
wow, for a minute a I just panicked and had to call the floor I was on - but yes I had the pouch formed. She said she had to go really low on the rectal cuff, 1/2 cm. Picking the tape of the bag is hard. I also felt better as the day went on, but looking forward to bed, of course that means bed with five pillows wrapped all around me propping me up. I kinda miss those hospital beds.
Posted 5/31/2014 2:04 PM (GMT 0)
That's great. The less surgeries the better in my opinion. And that's also great that they got most of your rectal cuff. I never asked my surgeon how much he left of mine. I have my annual scope coming up so I need to ask him....I'm just curious. Four years and knock wood...not one problem.

I had to sleep in our reclining chair in our family room. I couldn't do the bed for about a month....just couldn't get comfy lying down.
Posted 6/3/2014 5:14 PM (GMT 0)
well I think I overdid things yesterday, walked to much. My daughter wanted to ride her bike to school and theres a portion without a sidewalk. I woke up feeling good so I said she could and I would walk behind. It was way too much, now today i am having anal spasms and more mucus discharge and am back to feeling winded. Lesson learned and trying not to panick. " Week by week, week by week."
Posted 6/4/2014 12:11 AM (GMT 0)
Allswell ill be watching your posts like a hawk. I have step 1 on July 7th.

How far was this walk you went on??
Posted 6/4/2014 12:24 AM (GMT 0)

allswell said...
well I think I overdid things yesterday, walked to much. My daughter wanted to ride her bike to school and theres a portion without a sidewalk. I woke up feeling good so I said she could and I would walk behind. It was way too much, now today i am having anal spasms and more mucus discharge and am back to feeling winded. Lesson learned and trying not to panick. " Week by week, week by week."

Yup, take it easy. If it makes you feel any better you sound like you're doing WAY better than I did after my first step. I couldn't even get off the couch for almost a month! It's good to walk but just don't over do it.
Posted 6/10/2014 11:30 PM (GMT 0)
So I had my follow up and its definitely UC. But I continued to not feel well so I have started lomotil even though my output was around 1100cc and I am trying to eat more and drink more. I pretty much was told to eat everything except the no nos. I think I do feel alittle better. But I am still having anal discharge. The spasms have stopped but I still feel like theres always something down there. I know she said my rectum was severe and really low so maybe mine will take longer to heal. Nervous though. It will three weeks since my surgery on Thursday. i go for a scope in three weeks to see how everything looks. Luckily I have no pain, can sleep on my side and have had no bag issues yet.
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