Hi Sarah,
Yes, actually infertility is a huge issue to consider. I had my jpouch (2 step) done 19 years ago, when I was 15 years old.
I found out last year that I am infertile. Many women will have uni-or-bilateral fallopian tube scarring that can complete blockage of the tubes, making IVF an option.
As well as both tubes being blocked, my ovaries were scarred and they stop releasing eggs about
three years ago. I had no idea this was happening to me. And at this point, I have no eggs to freeze.
Before having my jpouch removed for a perm end ileo last Oct, my colorectal surgeon suggested I see the fertility doctor she sends her jpouch patients to, so that we could freeze my eggs prior to surgery. It was after I met with the fertility specialist and we ran a bunch of tests that I found out the news.
Some studies show infertility rates as high as 80% - but know that IVF may be an option if you a suitable candidate.
My fertility specialist feels my early (I was diagnosed at age 10) use of drugs and chronic severe inflammation in the area that my reproductive parts are what affected my ovaries, and obviously, my tubes are scarred from the surgeries.
It's a gamble, and it's true, you may not find out until you start family planning to find out if having kids is a possibility for you.
My response isn't meant to scare you at all, you have to put your health first, but for me, of course hindsight is 20/20 and I would have either gotten eggs prior to the jpouch , or stuck with an ileo until after having kids.
Also, a perm ileo doesn't have the same affect on fertility as completing the jpouch procedure does, at least not at the hospital that performed my surgeries.
Post Edited (PoucherInTO) : 6/21/2014 2:32:21 PM (GMT-6)