I hear ya Marianne. Saturday will be four years that I had my total colectomy with end ileostomy. Funny how life throws curve balls at ya, but we were able to knock them out of the park! For twelve long years I suffered with ulcerative proctitis and it just got progressively worse. Two years prior to surgery my quality of life sucked...it really did. But, I just procrastinated until I was practically at death's door.
Now things are sooooo much better. Even though I have a "bag", I am able to do so much more than before surgery. I can go out in the mornings!!! Wooo HOOOO....before surgery I was trapped in my house and daresent go anywhere before 1pm. I was able to dance at my youngest daughter's wedding on Sept. 29, 2012 and now looking forward to a new grandbaby in August!!! If I didn't have that surgery...I KNOW I would never be alive to enjoy these events.
So to those of you out there, feeling frightened at the prospect of having surgery to remove your diseased colons...weigh the pros and cons of your decision....but in my personal case, as well as those who have had successful j-pouch operations...life is so much more enjoyable after surgery.