Posted 11/12/2014 3:43 AM (GMT 0)
Hi Everyone,
Can't remember for the life of me what I have told you about and what I haven't.
Met with the urologist last week, not sure whether bladder sling will be done during the colostomy surgery. It's kind of a situation where they do it then, or never. Going back in at some point in the future would be too dangerous and too complicated, so now or never. Have testing coming up early Dec. and he will talk to some other docs too about what should be done.
Colorectal surgeon says for now, just kinda in a holding pattern. Need to wait and get all info before scheduling surgery and then of course all the pre-op appts and stuff. Said that January is when surgery is likely to occur. But, for now I'm managing to keep busy with other health problems......
Waiting to hear about an appt. date with my GI doc regarding significant episodes of acid reflux or gastritis or whatever is going on in there. Burning from top of throat all the way down to upper abdomen several times a week. Trying a couple other OTC meds he recommended until I get in to see him. Apparently he's thinking of repeating the endoscopy. Right now, I don't care, just want to go to sleep (can't lay down when the burning is going on, just makes it worse!)
Then went to the rheumatologist yesterday, and after ruling out everything else and doing nearly every test under the sun, it was decided I have fibromyalgia. Gonna start on Lyrica maybe early next week. Really want to talk with a couple of my docs about it first. Not sure what I think of it yet. But it sorta makes sense. The issues really aren't with the joints/muscles themselves, they are not in bad shape, it's just the pain signals are all f-ed up. At least that's my understanding.
Been doing PT for the pinched nerve and bulging discs/degeneration/stenosis.
And tomorrow is a super fun purge day!! Get to drink the darn colonoscopy prep and feel awful and have many accidents. Can't wait to have the colostomy, at least that will take care of the issue of crapping my pants.
I guess overall though, I am surviving. Doing ok. Just very tired and overwhelmed. (Was thinking earlier today that if I could just delete the past 12 months, my health would be pretty darn good!! But I haven't figured out how to delete it, so just have to deal.)
Hope you all are doing alright!
Thanks as always for the support and for listening. I have hope.
UCWhat? I will email you tomorrow. Just exhausted right now, thinking I will have lots of time tomorrow to write.