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Posted 1/16/2015 4:01 PM (GMT 0)
So i had ulcerative colitis for 2 years. I got it at the age of 12. I had to got the hospital a lot.None of the medicine was working on me so the doctors kept saying that if nothing else work i might need surgery and since i couldnt deal with the pain i asked for it and now here i am with an ileostomy. I missed a lot of school 2 years before and all of my class mates and other grades thought i was going to fail but i passed with 100's and 90's and I also got scholarship in 7th grade. Then before 8th grade started i got my ileostomy surgery and i missed school again. The only thing my classmates talk to me about is my illness they ask me stuff like "How's life" and "i feel bad for you" they cant ask other sheit but that.Thats why i only like talking to my best friend she's not that smart and talks a lot but she makes feel happy and makes me laugh a lot. My parents say that i dont have to put too much pressure on my self to get good grades as long as my health is good. But its been two months since my surgery and i still feel depressed may be its cuz of what people say or im not being active or that i have other illness too like thalessmia and other problems. I really like art and dancing. They said i can do anything i want so i was thinking of taking dancing classes or martial arts something like that. Is there anything else i can do about my depression im turning 14 and i dont want people to think im some sad pitiful person I really hate it when people think of me like that. I dont know anyone with illness like me except this girl with brain cancer but she lives all the way in Malaysia while I live in america.
Posted 1/17/2015 1:13 AM (GMT 0)
so sorry to hear how you are doing emotionally? is there someone you can talk to? i assume you are being treated by physicians like GI or hematologists, why dont you and your parents talk to the physicians about referring you to a psychologist that works with adolescents and peple who have chronic illness?
this could be really helpful.
Posted 1/17/2015 2:02 AM (GMT 0)
I use to have a psychiatrist but they said i was fine and now i dont see her any more and im a really shy person and really sensitive
Posted 1/17/2015 4:17 PM (GMT 0)
Hello! Sorry you are having trouble. You seem pretty similar to me. I am also pretty young. Not as young as you, but I am 19, diagnosed with UC at 17, my senior year of high school. I've had to miss a lot of school also but just college which is not as hard as missing middle or high school. I give you props for that. You seem really strong and brave! I also could not fix my symptoms with medicine. I had one surgery in December and now have a temporary ileo. Is yours an end ileo? In February I get it reversed and will have the j pouch. I totally understand how you feel. I get depressed and frustrated with the bag a lot!! And people are always feeling bad for me saying "oh, you're so young and going through so much", stuff like that. So I understand. My parents say as depressing and horrible as it is, just look at all the positives and don't focus on the negatives. Find something everyday that makes you happy. I say do what makes you happy. If you want to take dance classes I say go for it! Anything that you think won't harm your stoma, etc. it is better to get out and socialize and do things to take your mind off it! Hope this helps!
Posted 1/19/2015 1:19 AM (GMT 0)
Thank you that actually makes me feel better ^_^ when the weather gets better i'll take dance classes
Posted 1/20/2015 8:50 PM (GMT 0)
Wow you are brave and very smart figuring so much out. I do think being active has something to do with stress reduction and being healthy.
Posted 1/21/2015 7:55 PM (GMT 0)
Hey Mei, doing any sort of physical activity whether it be dancing or martial arts will take your mind off of things as well as release dopamine, which is the feel good hormone.

Also remember that high school is such a very small part of your life and sooner rather than later you will be off to college and no one will even know about your past unless you decide to tell them.

You are probably a lot more mature than people your age and they don't always think about your feelings before they say something, but as you get older people are a lot more caring and think twice before saying something that might upset you. =)

I too, and I think everyone in our shoes who has gone through with Ileostomy surgery has been depressed at some point but as time passes you learn to live with the cards you were dealt in life and make the best of it.

As a previous person asked, is this a permanent Ileostomy or a temp as you wait for possible Jpouch surgery?

Post Edited (Virdent) : 1/21/2015 1:12:22 PM (GMT-7)

Posted 1/22/2015 2:41 AM (GMT 0)
Its tempory and this summer im going to get my reversal surgery

Post Edited (Mei Neyha) : 1/22/2015 11:05:53 AM (GMT-7)

Posted 2/4/2015 1:06 PM (GMT 0)
Hey i know exactly what your going through. I'm 15 and I've had it since I was 11. I had my surgery in August of last year and my final one is this month. All I can tell you is to stay strong. i have missed school more than you imagine. I wish you the best.
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