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Nightime Leakage

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Posted 5/18/2015 3:47 PM (GMT 0)
Hey,

I'm about a week and a half post take down. I'm doing great during the day, no problems with urgency, cramping ect. However, my nigh time "leakage" is pretty unrelenting.

What's everyone else's experience with this? Do you have any tips or hints, and how long will this last before it gets better?

Thanks!
Posted 5/18/2015 11:49 PM (GMT 0)
I'm sorry I don't have any first handanswers for you...thinking out loud: have you tried any 'bulking' products? You may not be far enough post-op? Did you have a ileo reversal or ileo takedown for a j-pouch?
Posted 5/19/2015 12:21 AM (GMT 0)
Don't worry too much about it, this can happen the first few weeks after your takedown. your body has to learn again, your sphincter is just relaxing when you go to sleep but your body will learn and adjust.

You can wear a maxipad or diaper for a few weeks.

It's never happened to me so I have no first hand experience. I'd try to look at it positively that you are sleeping well and totally relaxed which probably a lot different than when you had UC.
Posted 5/19/2015 6:33 PM (GMT 0)
What's the difference between a take down and a reversal? I had a temporary loop illeostomy, where one hole led to the pouch and one hole allowed for output into the bag until I was ready to have everything reconnected.
Posted 5/19/2015 10:44 PM (GMT 0)
In my mind the two terms are interchangeable. As far as nighttime leakage, it's happened to me a couple times. Not a lot and I just wore a pad to bed. I'm 3 months from surgery and it hasn't happened in awhile. I do have to get up quite a bit at night but it depends on several factors: what I ate, how late I ate dinner, etc. I still get more sleep than I did with UC. Overnight and early morning was always the worst times of day for me. Hang in there!
Posted 5/20/2015 6:19 PM (GMT 0)
It's very normal as ks1905 mentions, especially being that you're only a week and a half post takedown. I'm exactly the same. No leakage or anything during during the day. Sometimes if I eat a lot for dinner, it does leak so I end up putting a pad on daily before bedtime. It does get better with time. I'm 2 years post takedown and I hardly leak at all anymore. They say that climbing stairs help build muscle in that area. It's great to know that you're doing well, though :)
Posted 5/22/2015 7:20 PM (GMT 0)
I had pouchitis or possibly cuffitis and this was the reason for the nightime leakage.
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