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Posted 6/12/2010 11:21 AM (GMT 0)
So I know it is normal for the jpouch to have stuff coming out of it after surgery, but for the past few nights I am waking up with my boxers well, you get the rest.
Since I'm in the hospital cause of my blockage, I've been folding towels and putting them in my pants so that the leaking won't run everywhere.

Question, is there a male pad type thing that I can by at CVS or Walmart that I can put down there until the leaking stops?
Posted 6/12/2010 1:08 PM (GMT 0)
I'd just buy regular female pads in a large size. If you're in the hospital ask the nurses for some of the big ol maternity pads for women. They know what you're there for and won't think you're weird
Posted 6/12/2010 1:51 PM (GMT 0)
Stayfree Ultra-thin Overnight Long maxi pads with wings works great for minor leaks. They come in either 16 or 32 packs, look for the purple stripe on packaging, and even though this is a thin pad, it's highly absorbent.

Don't laugh, but 11 years ago when I was finding my way after having 2 bowel surgeries and minor drips along the way (ostomy was reversed 8 weeks after my colon resection), I read on a colon cancer message board that MEN were wearing these pads. No lie.

I am never without them. I wear them at least 50% of the time and I'm now 55 (so I no longer really need the product for what it's intended for, lol).

What I like about them is they are wide, thin and go way the heck up back in your underwear. Just the exact spot you need it. I also like the wings (sticky flaps that secure it beneath your crotch on either side of your underwear).

If you have minor leaks or drips, sometimes you don't even need to change your underwear, just the pad and you're good to go (this is great for traveling purposes).

Just my 2 cents on a product that is meant for another reason but it helps folks with occasional bowel issues as well.
Posted 6/12/2010 3:20 PM (GMT 0)
So uh those things would stick to boxers right?
Posted 6/12/2010 3:47 PM (GMT 0)
Yes they would. Buy the smaller package to try first, 16 count. That would only run you about $3 or $4 at the most.

They also make an ultra thin maxi pad in just long. So that would work.

But either way look for:

Stayfree
Ultra Thin MAXI pads
Long and/or Overnight
With wings

Now I have images of that old Mr. Mom movie when Michael Keaton's character has to buy feminine products for his wife at the grocery store.

But they do really work and because they are thin, quite comfortable too.
Posted 6/12/2010 3:57 PM (GMT 0)
I just went to the Stayfree website. I know we're not permitted to provide links but if you type Stayfree, you'll find it. From there you click on heavy protection but key words are "ultra thin" and either "long or overnight". These are extremely thin pads but highly absorbent as I posted. I would imagine men would prefer these pads over the thick ones women wear.

I also saw that Stayfree has a brand new ultra thin overnight/long one that features a dry max wicking type material. Which I would also think a man would like as well.

So I know this is all confusing, but if you keep those above words in mind, you'll do fine.
Posted 6/12/2010 5:01 PM (GMT 0)
Yep, they will stick to your boxers just fine
Posted 6/12/2010 6:00 PM (GMT 0)
NewshinyCD, I was just bragging to a friend about how well you were doing after surgery and then to read you had a blockage! OUCH! So sorry! What do you think caused it? I do not want to suffer any blockages after surgery and was thinking I may need to stay on a liquidy diet for a few weeks after. Is your ostomy okay now? When do you get to go home?
Posted 6/12/2010 6:54 PM (GMT 0)
marksy-i love that movie, lol.
After i had my son, i bled so badly that i had to go to those poise pads for a while, those would probably work too.
Posted 6/12/2010 7:58 PM (GMT 0)
What caused my blockage? Steak and Shake. I was being ignorant even after you guys told me to take it slow with the food. But I figured a hamburger from there wouldn't hurt...WRONG.

Anyway, I'm guessing there is a learning curve with the jpouch? Just a few minutes ago I was able to tell when I was about to go, plus I was able to hold it in cause I have to disconnect my ng tube, unplug the IV machine and push the IV machine to the restroom. Anyway, I could tell that I needed to go but when I sat down, I couldn't figure out how to "push" it out, it just kinda fell out...is that normal?

Also they did xrays so far and they can't tell what is going on (even though the stoma is emptying now) and they are wanting to do a CT scan.
Posted 6/12/2010 8:55 PM (GMT 0)
Well, it is good that you knew what caused it....how was getting the ng tube? For some reason, I am terrified of having one of those and especially of getting one while I am awake. How long do you have to keep the ng tube?

I am not sure about the j-pouch....but is it supposed to be working already? Is poop coming out, or is it just mucous?
Posted 6/12/2010 9:24 PM (GMT 0)
Its like a mucus, blood, poop mix. Surgeon said its fine to see poo in there cause there may have been something leftover in the portion of the small intestine below the ileo. He said that it is normal to have stuff coming out cause sometimes with the loop ileo stuff may "jump" into the hole that goes to the jpouch. He said that it should slow down in a couple of days.

ng tube was NOT fun. The part that hurts the worst is the back of the nose but after that it is just uncomfortable, cept I have a bad gag reflex. I dunno how long I will keep it, it doesn't bother me now, it feels like I have a sore throat when I swallow.
Posted 6/12/2010 9:35 PM (GMT 0)
I hear you about the NG tube...it took them 6 trys over 2 days to get one down me! By far the worst thing about the whole hospital stay! Once its down it is not so bad.  I can tell you that the thin pads work...I use them for small seepage.
Posted 6/13/2010 2:39 PM (GMT 0)
I'm not sure what the amount of leakage is but if it's just a small leakage you can just use an ARD pad (hopefully the hospital would have these) and you don't have to worry about your boxers. Keep doing your kegels and it will help strengthen your muscles. You will most likely have output from your pouch until takedown. Some have more, some have less. As a female it was easy because I just emptied the pouch when I had to pee. BTW - The falling out vs pushing - for me was totally normal. It still is although I think I'm pushing I think I'm really just tightening my ab muscles. I think it's all a gravity thing now and we can control the open and shut at the bottom (sphincter valve). Some days I can take awhile in the bathroom but I'm getting better. Hopefully Suebear can fill us in on if this will continue or if the pouch gets some muscle control. Good luck getting your output flowing. I ate a McD's cheeseburger a few weeks after surgery #1 (had to give in to the craving after almost 2 years without) - nothing but cheese, ketchup, and mustard. Chew lots and drink to help things move through.
Posted 6/14/2010 12:34 AM (GMT 0)
In the past couple of days I've gotten a lot better at holding it in. The amount and frequency has dropped dramatically.
I think it was my body getting used to a jpouch instead of a colon/rectum.
Also I had my ng tube removed today and I'm on a liquid diet. I feel MUCH better. This time around I'm going to take it slow with the food. NO eating out.

With that said, is there a place on the internet to get some good recipes?
Posted 6/14/2010 12:52 AM (GMT 0)
Shiny,

Glad you are better :-) Now I can use some humor on you. Repeat after me: jello, ice cream, pudding, yogurt, scrambled egg, white bread chew, chew, chew, milk, Boost shakes. Also, there is this protein powder called "Show me the Whey." (I kid you not that is the name). 18 grams of protein in one scoop. Add it to yogurt, milk, etc to increase the protein content.

Get a good liquid or chewable vitamin. Also get your vitamin K monitored. I learned the hard way that it is manufactured by our colon flora. I have an ileostomy (permanent) and because I have no colon flora anymore, I am seriously low on Vit K. I can't eat green leafy veggies because I have the ileostomy. Sooooo I have to take vit K pills. I am 54 and have lost serious bone density in my spine due to this. Vit K is also important for blood clotting if you cut yourself. So much to the human body!

I'm sure you will do fine on your new diet. Advance very slowly. Best wishes, Rosemary
Posted 6/14/2010 1:12 AM (GMT 0)
What about boiled/poached eggs, pasta, chicken, tuna? I'm just trying to think of recipes that my fiancee and I can have together cause we got in the habit of eating out when I was in a flare up; she would get fast food and I would eat chicken noodle soup or something.
It would be nice if we could start having our meals together again.
Posted 6/15/2010 12:51 AM (GMT 0)
So glad you are feeling better. My son went through the exact same thing after having his J pouch built and protected with a loop ileostomy. Do you know where your blockage was? Close to the stoma? He also had some leakage from the pouch for the first little while but it did stop and quite quickly.
Posted 8/21/2015 10:31 AM (GMT 0)
esoR thanks for that post. It is very interesting, particularly about Vitamin K and bone health.

I had panprocolectomy with ileostomy in 2009 and since then my clothes size has changed a lot. I feel I am shrinking. There are several other issues too.

Originally I put this down to age. How did you get your Vitmain K checked? Was there any difficulty with GP getting this organised?

I realise this is an old post but I would love to find out more about this, from an ileostomist's point of view.
Posted 8/21/2015 11:05 AM (GMT 0)

Pablo2 said...
esoR thanks for that post. It is very interesting, particularly about Vitamin K and bone health.

I had panprocolectomy with ileostomy in 2009 and since then my clothes size has changed a lot. I feel I am shrinking. There are several other issues too.

Originally I put this down to age. How did you get your Vitmain K checked? Was there any difficulty with GP getting this organised?

I realise this is an old post but I would love to find out more about this, from an ileostomist's point of view.

Hi Pablo2....Sadly Rosemary (esoR) passed away a little while ago. Since this is an old thread, it's best to start a new one with your questions so more people will see it.
Posted 8/21/2015 9:10 PM (GMT 0)
Thank you ByeByeUC.
Very sorry about that.
I will post a new topic.
Posted 8/22/2015 1:06 PM (GMT 0)
edit: sorry, didn't realise it was an old thread.

Post Edited (AnnaIvy) : 8/22/2015 8:28:36 AM (GMT-6)

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