Silent Lucidity

Any update? How are you?

Sorry you have to wait. On the other hand, it's amazing that you have some answers. I wonder if you can get the pouch in 100% working order. My GI said some people need low dose extended courses of antibiotics for pouchitis if it's chronic but you will have to wait and see how it goes.

Treat it first and see what happens. I still can't believe that they haven't treated your symptoms in 8 months, I'm sure that you've been vocal about them.

Once they start your treatment you'll know in a few days if that med is working. Sometimes finding the right me takes a couple of tries. Sometimes you need to combine meds to treat the Pouchitis, like flagyl doesn't work for me but it works very well when I combine it with Augmentin.

Right now I am taking a break from Antibiotics for my Pouchitis, I've been using Entocort. It's much easier emptying my pouch, I think it's because it's a Steroid.

There are many other treatment options for Pouchitis including immunosuppressants and Biologicals.

YES! I was just thinking about you this AM and I was going to write here to get an update. I didn't want to jump the gun though, I want to hear the good news that's hopefully coming :)

I think you should try another med or combine Flagyl with it. Flagyl and Cipro do not work for me individually but they work for me when I take them together. What works best for me is Augmentin and Cipro.

I've basically had pouchitis since my takedown. I'd encourage you to try additional meds, pouchitis sucks when it is not treated but when you find the right combo it is very manageable for me.

You can take 5ASAs like Sulfasalazin, it can help with the pouchitis but it really helps with tailbone pain.

There are other antibiotics like Xifaxan that you could try.

Some time in the near future I am going to stop the antibiotics and start 6-mp or Imuran. I keep having to battle Thrush from all the antibiotics.

You still have options. I'd encourage you to try a few more meds before giving up on the pouch, surgery will take some time to recover from.

Well, things just keep getting worse. I woke up three hours after going to bed last night, to find myself swimming in crap! And this was after a conversation with a friend earlier, explaining how bad my pouch is, but at least I have continence, how ironic!

Keith, I think the "accident" was just because I worked more hours over the weekend and was so tired my intestine never woke me up. As for suppositories; already tried Asacol (Mesalazine) and Predsol (Prednisolone), so that's another thing that brings no relief. I don't get a say in the anti-biotics, that's up to the doc here.
To be honest this is getting to be like the UC, constant misery, trips back and forth to docs and hospital, and a never ending cycle of a cornucopia of drugs, none of which work. I really m wondering what's the point? My ostomy ended all that and was easy enough to live with.

Well, I'm left in limbo at the moment. My GP is out of his depth and was meant to be contacting the Hospital, asking them to see me sooner than the end of September appointment they promised, which hasn't been sent yet anyway.

Not to hijack SL's thread, but I've been having some ridiculous urgency this week. No accidents so far, but a few close calls. My stomach goes through phases of sounding like it's gurgling for England, it feels constantly sore and uncomfortable, with occasional excruciating stabbing pains. And finally I'm having low-grade fevers.

I certainly know I'd rather have c. diff than the other 'C' word. Is it even possible to get c. diff without a colon? Have a feeling my GI will tell me it isn't.

The chances are lower, but yes, it IS possible to get Cdiff without a colon....and yes, there are some doc that will tell you it isn't possible. I guess they figure small chance is close enough to NO chance...but that's not the case. I hope you are just having and adjustment period and don't have either "C" problem!