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Odor when burping bag--help! I stink!…Also, change appliance after swimming?

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Posted 9/5/2015 3:54 PM (GMT 0)
Hi,

Hope everyones summer is going well. I have kept up reading posts, but never feel I have good answers / advice, so I rarely post. Was just thinking, I could at least offer emotional support to people!


But,

I have a colostomy, output varies between watery to solid, pretty randomly. Usually get 5-6 days wear time. Ok, so when I burp my bag to release gas, the air stinks at least 10 times more than when I just empty my bag. It truly is horrible. I use deodorizers in the bag, M9, Devrom, but it remains awful. Anyone have the same issue? How do you deal with it? I know the time will come when I have to burp it in a public restroom or worse, at a friends apartment--I WILL clear the space, quickly! Please help!


The other question I had is about swimming--do you change your appliance each time you swim? Mine seems to hold ok, but am I just asking for an accident to happen? I'm starting water aerobics next week and am nervous about that (social anxiety) also worried about the appliance coming off.


Any advice you have is welcome. I'd greatly appreciate it. And wish me luck in the aerobics class--I am the least coordinated person on the planet!

Thanks,

Sunny13
Posted 9/5/2015 9:13 PM (GMT 0)
Sunny, I believe I've told you twice before what I use. Safe and Simples pouch deodorizer (the one without the lubricant...blue liquid) has been a miracle product for me. I believe that both times when you've complained about this problem, I've given you the phone number and email address. They'll send you a nice size sample...not just a little, one use pouch.
I don't know why you continue on without trying it. I have ZERO odor. I could burp my bag in a movie theater and no one would know. Before I started using it, I was buying all kinds of bathroom sprays. Now I use none!
If for some reason you don't want to try it, and I see you complaining about this problem in the future....I promise not to suggest it again. Lol.
I hope that everything else is coming along for you. 😀
Posted 9/5/2015 9:16 PM (GMT 0)
http://www.sns-medical.com/newone_005.htm
Posted 9/6/2015 12:10 AM (GMT 0)
I'm going to try a bottle of this stuff. I'm using something that's a deodorant /lubricant. It's not m9 but something similar and it does absolutely nothing for me!
I'm only 2 and a half weeks post op but the smell is definitely not something I think I'll ever get used too. I ordered some devrom the other day too. Hopefully those help as well!
Posted 9/6/2015 1:09 AM (GMT 0)
I will request a sample too! I have awful odor when I burp and it's the type of odor that hangs around for a LONG time. It's insane. I have been using a variety of deodorizers but none seem to do very much. I have spray that I use after in the bathroom and that helps a ton but I don't particularly like the odor of the spray. it smells like a nursing home.. It's better than stool odor. I also have a lot of problems when I burp. Many times, I've had the output be up in the flange and it comes oozing out. I have had to change the pouch many times because of faulty burping.

I usually put on a smaller pouch for swimming and change back to a fullsize after but i bathe in my pouch and I blow dry it and go on with the day. I am sure you could do the same after swimming.
Posted 9/6/2015 2:58 AM (GMT 0)
They should give me a commission! I've turned my whole support group onto it.

My husband thinks it's one of the greatest inventions!

Remember....ask for the one without the lubricant. I give a couple of squirts into my bag every time I empty. And I filled a little travel sized spray bottle to keep in my purse.

Other deodorizers never worked for me...and I don't like the ones that smell minty.

I originally read about it on Veganostomy's blog and I am so grateful!!
Posted 9/6/2015 9:11 AM (GMT 0)
Things like OJ and vinegar can help reduce fecal odors. I haven't horribly offended myself yet since drinking OJ in the morning and eating a fair bit of vinegary foods. Also, matches are better than those nasty chemical room sprays. Just light one, let it burn for a wee bit, then wave it out. It'll kill the odor faster and burning wood is a lot less offensive than artificial flower mess.
Posted 9/6/2015 11:43 AM (GMT 0)
Caren, which product do you use? The website has 2 non-lubricating products, one called pouch deodorizer, the other odour eliminator.

The amount of gas I produce has slowly decreased over the year and a half since my surgery. It's been a while since I woke up in the night with the bag completely full and hard as a rock. So I can usually avoid venting when I'm out and about. I do carry a small air freshener spray for those occasions when I must. At home, I have a strong enough exhaust fan to clear it out in five minutes or so. I usually turn the fan on, stand right under it and let 'er rip.

I've used both Hollister(Adapt) and Coloplast (Brava) lubricating deodorants. The Adapt smelled almost as bad as the output, but the Brava seems to help with odour. Not so much with the gas, but I'm not getting the occasional whiff from the pouch. Neither of the two is an effective lubricant for me. Right now, I'm on Day 4 and have yet to drain the bag -- just opening it up and removing output with toilet paper.

Anybody know if there's a Canadian supplier?

Ann
Posted 9/6/2015 11:55 AM (GMT 0)
Pouch deodorizer. Blue liquid. 👍🏼👍🏼


The odor eliminator must be new...I've never tried it. I'm sure they'll send a sample of both.

😀
Posted 9/6/2015 1:27 PM (GMT 0)
thanks for the responses and the conversation about this problem. i am obviously not alone.

it's weird b/c i don't have issues when emptying my bag, just when burping it.

carenz--i have a sample of the safe n simple stuff and have used about half a bottle so far. seems to help with odor when emptying, but not w/ gas.

i will not complain again.
Posted 9/6/2015 3:14 PM (GMT 0)
Sunny, complain away! That's the only way you'll get suggestions, recommendations and support! I meant that I won't suggest it again because I'll assume you've either tried it and didn't like it, or aren't interested in trying it.
I wasn't suggesting that you should stop complaining. We're all in this together!
😄
Posted 9/6/2015 3:51 PM (GMT 0)
@CarenZ--Thanks CarenZ! I appreciate your input about my output. And thanks so much for the comment about the complaining, cuz I wasn't sure if you were serious or not. (The biggest problem with computer stuff is misunderstandings.) So I greatly appreciate your extra little note--I am one that always thinks I am wrong, etc.

@notsosicklygirl--I know what you mean about the odor hanging around. It's just like, come on, go away sometime this year-please!!


I even thought of trying to hold a dryer sheet over the little spot I open to let the gas out!! Felt like I had tried EVERYTHING and was feeling so desperate.
Posted 9/6/2015 4:19 PM (GMT 0)
Just sent in a sample request again. Used my parents address, etc.
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