Diversion Colitis/pouchitis

So on top of all my leaking issues I now seem to have this. My jpouch is still there but can't get it reconnected. Tried Canassa, didn't do anything, now trying fatty acid suppositories. My main problem is urgency and blood in mucous. I also wonder if this causing my fatigue. Ugg, anyone else dealing with this? I really don't want more surgery to remove the pouch. Can u live with this? Waiting on blood work and biopsies. Does it ever end?

Options exist but are challenging. Toughest is surgery to remove rectal stump. Another option gaining popularity is fecal transplantation making the contents of an enema from your stool in warm distilled water by blending them. Google this do-it-yourself process at home or speak to your GI doctor. You'll need to hold the solution in about 45 min. Can be messy but allows needed short-chain fatty acids to re-populate the area that suffers from inflammation and winds up bleeding, etc. You may have to repeat the process but it seems to work for about a month. A more comprehensive transplantion of the entire gut for certain dysfunctions is not approved by the FDA except for C. diff but can be obtained outside the U.S. For diversion colitis, you shouldn't need to take such a comprehensive approach.

Good luck!

After having this loop, I can say that if yours is anything like mine, I don't think I would want to live like this forever. The end ileo I had was SO much better. it was lower in the intestines and it moved slower, the contents were more formed and easier to deal with - the pouch filled up slower. This thing needs to be emptied too often. I am also always dealing with dizziness/dehydration. Did your doctor say anything about a plan? I think you could treat the colitis in the pouch but the bigger issue is living with a loop. Maybe yours is more manageable than mine. The m9 seems to have helped the odor a ton on the positive side.

Hmmm, I don't know re output from the ileostomy. When I read about this transplantation, it refers to stool and it may be too liquid if not from a colostomy or lower ileostomy. If this doesn't sound too gruesome and you know someone with a good diet who's healthy, you could use someone else's. That's what's done overseas for the colon or gut transplantation that is monitored. Donors are quite healthy but the transplant is going thru the whole system of non-ostomates and not just several inches or a foot at most down below.

I don't think the VSL contains short chain fatty acids. The probiotics are helpful for the gut and disgestion but probably won't help with the blood and mucous. Those acids are in stool which are now diverted away with an ostomy. Transplantation puts them back where they used to be. I use the pouches of VSL -- the powder -- in water and drink it. Think that's the best way but am not a doctor. A prescription reduces the cost. Suggest talking to your doctor re all this but know that the procedure is not approved here so (s)he'll probably have you "do-it-yourself" at home and not in a facility as thats not rec'd medical approval.

Luck to us all with this issue! My surgeon never told me about it in advance. May not have changed my mind but do wish we'd been alerted. It's alarming to have brown or reddish liquid leak out when we have stomas. But it's not fatal although I do hope the inflammation doesn't get worse. When it occurs, I feel pain in my sigmoid and that's not fun.

Yes I was scoped. Canassa didn't work, now trying fatty acid suppositories. :( reversal wood work but then I would get sick with pouchitis again. It's a no win situation :(

I'm in NY and my Drs worked with a pharmacy here to make them. Yes short chain, not working, getting pain in my rear now :(

I tried FT for pouchitis last year and did not work. Good luck