After surgery..

It happened to me when i was anemic and when I was on steroids. I haven't had it since surgery. After step 1, things were, pretty much, a breeze for me. my stoma was great and functioned really well, I didn't empty that often and the output wasn't liquid so it was easy to manage and I got great wear time with the wafers. You have that to loo forward to after step 1. I took no medication once I was off painkillers. I was only on them for a few days due to them making me feel sick.

After step 2, I've been battling low blood pressure and dehydration. I am also taking immodium but nothing else - for me, that is a huge win because i was taking up to 10 pills a day before surgery + infusions. I am taking it one day at a time and looking forward to the next step :) You should have improvement in the Tachycardia after the flare up subside.

My heart rate was also very high, over 100 most all the time, while I was in my terrible flare that led up to surgery. As I healed after surgery, it started to normalize. My resting heart rate is now lower than it ever has been...typically in the mid 60's. My blood pressure is quite low now also.

Marianne, do you mind me asking why you still deal with anemia? Are you still having internal bleeding? Thanks!