Nine days.....

Hi everyone!

Haven't been around much....been busy living life, working and getting ready for the holidays! Hubby and I have started some woodworking using pallets and making wine racks and signs (even sold a few! )

Anyhow, in the busyness of life, I realized this evening that it's been nine days since I changed my appliance. Now, I am pretty organized and change every 6 - 7 days but for whatever reason, time this week just flew by. Hubby even looked surprised when I told him it was nine days.

In those nine days I have:

Done hot yoga twice
Showered every day and twice on the days that I did yoga
Built, sanded, painted and antiqued three wine racks and four signs
Worked all week full time
Wrote two papers for my university course
Went to a Christmas party
Went out to dinner and took a long walk to see the Christmas lights and had a wonderful hot chocolate!!!
Cleaned the house and did the laundry (blahhhhh)
Cooked too many meals.....
Helped with homework

So, I guess when I recap my days, it's easy to see where 9 days went. It also reminds me how darn good life is now living with my ostomy and not suffering with Crohn's disease! For those new to this world, it is possible to live a normal life and to do all those things you couldn't while you were sick!

Hope you are all well!

Kelly

Yeah, it is nice to hear this. It's nice to have a reminder that there are some people with permanent ostomies who are completely happy with them - I think I need such reminders right now :-/

Eva, well, I've had two tests - pelvic MRI and flex sig - which showed the Crohn's was back. Was prescribed mesalazine enemas and suppositories. Judging from my reaction to the suppository, I won't be able to tolerate rectal mesalazine any more than I could the oral stuff. Got an appointment with the surgeon on the 31st December.

I know one thing and that is: I ain't trying any more mesalazine. Where I go from here, I don't know.

Oh out of curiosity what appliance do you use that lasted 9 days and hot yoga?!!!

so I had a one piece Mio on for 5 days & it leaked... they always do, those stupid Mio's! Granted, it's always at home, when I wake up. So not a big deal, I just change everything. Why are you seeing a surgeon, NCOT? And hope things go well today, cupcakes!

well, obviously it'd nicer if I didn't have an ostomy on my stomach! But even then, I tend to be a negative person. Not so much negative, but skeptical, cynical, etc. So even when I was perfectly healthy, way before UC, I can't say I was ever completely happy! Seriously though, I don't mind the ileo- living with uncontrolled UC for over a decade makes one REALLY sick of anything to do with the butt! I have no qualms about never using that part of my anatomy again. I've been lucky with it, the ileo, so if I had a bad one I'm sure I'd feel much differently. What will the flex sig tell you, if inflammation is back? And what type of surgery are they talking about???

for what it's worth, the forum can use some *****ing & moaning- it's not all sunshine & smiles! If the flex sig shows nothing, how would they see a stricture? I hope you get relief though- one way or another.

that sounds exactly like what I felt when I had a stricture, before surgery. That was the main reason I opted for surgery when I did- my colon had narrowed to the point where my GI could barely fit the scope thru, which is what, maybe 1/4 inch diameter?? But I'd feel pain, pressure, gurgles, & a sensation of things being stuck, in one spot. At least an MRI/CT scan is totally noninvasive! Flex sigs don't go that far up either, so you could have narrowing from scar tissue that the flex sig scope isn't able to see. Whatever... it gets tiresome! Not you, just health problems.

Hey Kelly, glad to hear that things are going so well for you! How's the butt wound doing?

OK, just did....