What (post ostomy) are you proud of?

Yesterday, on a higher output day (along w/ sores on my butt from discharge), I took a chance and went to an outdoor play. There was a port-a-potty nearby, but not so easy to function in one of those w/ near darkness and a messy situation. But I survived.

Even though I've had my colostomy for 1 1/2 yrs., I'm proud of myself for taking the chance. I haven't done a whole lot of things where I was stuck and not able to get away to a bathroom. Can't really excuse myself and walk in front of everyone during a play!


What are you proud of post-ostomy that you have been hesitant to try?

I guess I feel like I need to be near a bathroom because my guts are so unpredictable. I go from having no output at all for 3-4 days to days of having my bag go from empty to nearly blowing up in about 3 seconds, all w/ no warning.

I have a neurogenic colon, meaning the nerves are so damaged they don't function normally. They sort of do what they want when they want, and never give warning as to what is about to happen. Doesn't matter what meds I use or other treatments, they do as they please.

Thanks for the tip about the ziplock bag. Any help is always appreciated!

Happy for you that you can enjoy life just as much as everyone else…I have that feeling some days too.

When I get to about 4-5 days of no output, it's a big problem for me. Because we are having such trouble finding something that works consistently, sometimes I just try everything I can think of and then wait. It can get to be quite miserable.

I started irrigation last week, and it does help a little. I do it every other day right now (should probably do every day). It was supposed to take about 45 minutes each time, but of course, with my slow gut, it takes several hours to finish. At least it helps though so I shouldn't complain!

I went swimming yesterday and didn't think about my bag at all. As long as it stays in place and doesn't puff up suddenly, who cares??? Another victory!