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Aloe vera suppositories

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Posted 7/2/2016 2:27 PM (GMT 0)
I am having a rough time with problems inside my anus. First of all, the UC is back in there and the Canasa/and or/ Cort suppositories are NOT helping. The surgeon said I have strictures inside there. This comes as no surprise since I've had biopsies done and God knows what else digging around in there, which probably caused them. UGH. I have read online about the aloe vera suppositories and was wondering if anyone else in here ever used them and if they are any good. I would have to cut them in thirds since I only have like a 2 cm opening. I have a rectal cuff, but no rectum.
Posted 7/2/2016 6:24 PM (GMT 0)
Christine,
Sorry about your rectal cuff troubles. I don't have an answer for you on the aloe-vera stuff. But, I do have a question. If I remember those suppositories, they 'run-out' kind of quick. Maybe you need some other kind of anti-inflammatory based CREAM that would 'stick' better to the insides of your rectal cuff.....you might want to ask your Dr. about that.
Posted 7/2/2016 7:12 PM (GMT 0)
I've also tried the proctofoam which actually burns..ugh. Don't know what else to do. I still swear I have a tiny fistula up under that cuff which leaks into my vagina. Had tests for that too and they cannot find it. I was told not to worry about that because I don't use my butt to defecate, which is fine. I don't worry about the fistula, I don't really "worry" about the disease either. I just don't like feeling the discomfort from the stenosis.
Posted 7/3/2016 5:32 AM (GMT 0)
Have you thought about hemp seed oil? It is extremely anti inflammatory. You can buy it at the health food store. Has to stay refridgerated tho. You are dealing with such a small space the problem is how to get it in there since it's not a suppository. You almost would need an eye dropped lol. Anyway look on Amazon at all the reviews. I drink it and haven't had any problems with my dry eye syndrome since I started it. I mix it w grapefruit juice and gulp it down. Taste pretty nasty.
Posted 7/3/2016 2:30 PM (GMT 0)
I hate to say it, but i can't imagine any OTC stuff really helping. You remember how unresponsive our UC was to everything. Not even topical steroids could touch the inflammation for some of us. I wonder if you could have a procedure that would help, that doesn't necessarily involve removing the anus (since I think I remember you saying that it's too dangerous for some reason). Did you ever get details on WHY? I think I would seek another option on that. It seems cruel to leave you with that to worry about. What about mucusectomy of that little cuff, is there some way that might help?
Posted 7/3/2016 2:33 PM (GMT 0)
Thanks...never heard of hemp seed oil. Anything is worth a shot. I am beginning to think the colorectal surgeon I am now seeing is just padding up his bill. I have NO idea why he feels he has to look up there every time I go to him, which is every three months. Nothing is done, he tells me the same thing over and over again, "try the proctofoam, try the Canasa suppositories, try the Cort suppositories", and I keep telling him I DID!!!! Then he says I may be facing surgery in the future...UGH...well, if he keeps irritating it, I will need surgery!!!! He told me I need to have biopsies every two years...well then, I will just make the appointment for the biopsies. I so wish my original surgeon was not retired. I am on the verge of quitting this guy and going to Dr. McClane who I went to for a second opinion. He agreed with the surgeon I am seeing now, but McClane is a lot younger, head of colorectal surgery at Cooper Health Systems in Camden, NJ and trained at the Cleveland Clinic. Wish I had known about him before starting with this guy.
Posted 7/13/2016 3:20 PM (GMT 0)
Christine, i can't believe you are still suffering with this anus issues. Ugh. I know you are pissed. Are you in pain from this daily? Is there another opinion you can get?

I just had my 4th parastomal hernia repaired and my doctor who is known for making beautiful stomas has left with the weirdest, ugliest stoma i have ever seen. It is awful and hard to bag. I'm furious!!! I have to wear convex wafers again and my skin underneath is already broken down.

I'm losing faith in doctors!! I will have to see a different one if this doesn't get better.

And my surgery was in June and they literally almost killed me. They refused to give me extra fluid, i couldn't drink enough, and i ended up incoherent and with a blood pressure of 70/40. My mom said I had a roomful of people all night and I had tests ran and I don't remember anything. I can't trust that doctor anymore. And here he left me with this screwed up stoma. I'm beyond pissed.

Sorry to gripe so much..ugh... I'm angry. And it makes me angry that you are still in such a state. Your doctor should have removed the anus in the first place since you have UC in the rectum. Just seems crazy what they do and think.

We are real people and we need real doctors, good doctors, great doctors!!!!

At my general practitioner i can't even see the doctor, only PA's. Don't get me wrong, the PA's i see are great, but I can't ever see the doctor, ever.

I just don't know what's gonna happen to us all with medical care.
Posted 7/14/2016 2:00 AM (GMT 0)
Oh wow Tracy, so sorry you are still having problems too!!! Actually, since I last posted, I have been doing better. I am taking sitz baths with Epsom salts and inserting about 1/3 of a Cort suppository nightly. I also use Calmoseptine around the area. I really believe my present surgeon worsened my condition by constant probing inside. I decided that I am going to cancel my next appointment with him, which is August 17th and if I start to have any more problems, I am going to the head of the colorectal department at Cooper Health Systems in Camden, NJ, Dr. McClane. I went to him for my second opinion and he does agree with my present surgeon, that it would be too much of an operation for me. Apparently, it isn't as easy as one might think to remove the anus. Since my original surgeon is retired, the new one doesn't know what he would bump up against once inside. I think my original surgeon left the anus because, in his opinion, there are more complications when they remove the anus. He did take the rectum and colon and the rectum was my main problem. All my colon had was minor diverticulosis.
Posted 3/29/2017 2:55 PM (GMT 0)
Bumped up this thread. I'm still having a problem. Had my hubby to the ER yesterday because he felt weak. He is a heart patient. They ran tests but everything checked out fine. While there, I was talking with a patient rep who is presently in remission with her Crohn's. Seems like she really had a rough time of it before taking matters into her own hands. She drinks distilled water with aloe juice every day, is a vegan and eats organic foods. She isn't proclaiming to be cured, but she has been in remission ever since starting that routine. I was wondering, with my anus issues, if I should try an aloe suppository? I would have to cut it in thirds because of the small space in there, but I don't think it would hurt. Any suggestions out there?
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