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arthritis is getting worst

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Posted 5/6/2018 6:01 AM (GMT 0)
I have had joint pain ( arthritis ) since my early 20's around the same time I was diagnosed with UC it's been pretty manageable. When the weather changes and the barometric pressure changes I feel it in my joints. But once again all manageable for 20 years. Scans show Osteoarthritis in the knees too.
I had my second surgery last month creating the J pouch and ever since my joints are all killing me especially my ankles and knees almost daily. Night time is the worst.
I came across a site and it mentioned Lupus the only symptoms I have similar are hair loss, mouth sores, and stiff joints all day all new in the past 2 months. Has anyone else experienced any of the above?
Posted 5/6/2018 4:21 PM (GMT 0)
One thing that's been known to happen after the diseased colon is removed, is the UC attacks other parts of our bodies, joints are one of the more common ones. We remove the diseased organ but we do not remove the autoimmune disorder in the body. I know some days I walk like I'm 100 years old my joints are all stiff.
Posted 5/7/2018 11:48 AM (GMT 0)
Blksteeda that’s exactly how I feel . What do you take to elevate the pain , I kept my boyfriend up half the night . sad
Posted 5/7/2018 6:39 PM (GMT 0)
for me it's not so much pain as it is stiffness, especially after I get up from sitting for a while. I try to take a joint supplement to help. I haven't seen a doctor yet about it as it's more of an occasional nuisance than anything else. I just can't do very much until they loosen up
Posted 5/8/2018 5:25 AM (GMT 0)
Ohh I am stiff too but its the twisting of my joints that is all so new. The only thing that helps is my percocets if it gets really bad and I cant sleep. I feel like I just traded in one Autoimmune disorder for another.
Posted 5/9/2018 11:20 PM (GMT 0)
I’ve had something similar and it was sparked in the fall after my takedown surgery. I’ve been to my primary care and she sent me to a rheumatologist. He has been keeping my eye on my def rate and C-reactive protein bc that’s a good indication that something is up. He finally put me on sulfasalazine- an anti inflammatory for the joints. It’s similar to Asacol, if you’re old enough to remember taking that for UC. It seems to help a little.

He said the arthritis can come and go- not really predictable. Here’s hoping you can find some relief.
Posted 5/11/2018 4:59 AM (GMT 0)
Hi Doggiedo, yes I remember I was on Asacol years ago for my UC, I am waiting for the Go part to take place in my joints because I am sick of its here all the time phase. I have an appointment with my GP on Monday getting into a specialist could take months down here. Meanwhile, I will see if my GP can prescribe the sulfasalazine. I am not big on immunosuppressive but I also can't live with the constant pain in my joints. Rubbing Voltraren cream on it does help a great deal.

Thanks for the advice
Posted 5/12/2018 6:17 PM (GMT 0)
Have any of you been tested for Lupus?
Posted 5/13/2018 2:30 AM (GMT 0)
ks1905 I have my doctors appointment on Monday so one of my questions will be can I get tested for lupus
I was on humria for a bit last fall not too long because I was so sick the surgeon would not wait any longer to remove my ulcerative colon . I know lupus was listed as a side effect 😐
Posted 5/17/2018 5:31 PM (GMT 0)
What did the doc say?
Posted 5/18/2018 4:26 AM (GMT 0)
ks1905 did the blood work for lupus and it showed negative and my CRP levels for inflammation were ok . I know my levels were tested every second day during my 5 week stay in the hospital and they would be fine 10 one day and the next they would crazy high 99. The test only tells you if you have RA . The Doctor wants to put me on Celebrex (celecoxib) which is a nonsteroidal anti-inflammatory drug (NSAID). We both have concerns with the increased chance of stomach bleeding but right now I have to try something
Blood work for my hemoglobin is up for the first time 101 was 69 a few months ago but my ferrtin is extremely low.
Overall I am doing ok
Just glad lupus wasn’t on the table

Has anyone tried celebrex ?
Posted 5/22/2018 4:46 PM (GMT 0)
Valli,

I'd prefer that an RA with the approval of your GI prescribe Celebrex. My GI always told me to run things like that by him first and if you need to take it then you take it and we treat it if we have to.

I'd also run it by your surgeon, look like you are having another surgery in a month or two. Not sure if it will increase your bleeding risk. They wanted me off certain meds atleast 60 days prior to surgery.
Posted 5/24/2018 4:10 AM (GMT 0)
ks1905 my doctor seems to think the joint pain is also from my low ferritin levels and I read up on it and it does say joint pain as a symptom. Not keen to go on Celebrex been avoiding it all week. Started exercising this week and that seems to help a bit. Rather feel that pain then the joint ones.
Will look into meds to avoid before surgery. Thank you
Posted 5/24/2018 3:25 PM (GMT 0)
Be careful with nsaids. I had a appt with my doc this week and he’s sending me back to my rheumatologist bc my symptoms are still there. He said no matter what, make sure they do not put me on nsaids. It’ll cause super inflammarion. I have a pouch now- and he said even with that, it’ll cause inflammation. I pretty much can’t ever take them again. He said Rhum docs are known to put peeps on nsaid drugs. That drug i mentioned to you- sulfasalazine isn’t an NSAID. So that’s a bonus!! I’d def run it by your gastro doc before you take anything. Good luck!
Posted 5/28/2018 2:46 AM (GMT 0)
Ok will mention that to the doctor and I don't like the idea of NSAIDS either. Filled the scrip but I am not taking the Celebrex
Posted 6/9/2018 4:37 AM (GMT 0)
I had my colon removed in 2007, but I couldn't have a take down operation which was a real bummer. Recently, I have started to have arthritis in my right knee and leg, ankle. It has been awful. I was reading how you all don't like Celebrex. I started it about 3 weeks ago and it helps but I am afraid it will hurt my stomach. So I am starting Synvisc shots in my right knee and I soak in Epson Salts every night. Plus I do the ice thing. If anyone comes up with a solution, please post.
Posted 7/15/2018 11:12 PM (GMT 0)
I've been reading up on this subject about the aches, fatigue and other symptoms associated with IBD. I have the jpouch and still have the same old aches, fatigue and everything else mentioned. Honesty, what we need is a Dr. that has this disease that can relate to what we go through. I'm tired of Dr.'s looking at me with tilted heads and having no idea what to do. We're the one's lying in bed at 2am with the aches, shakes and everything else, what the heck do we do? If there is a Dr. out there I'll gladly pay, fly or whatever to talk and get this ugly thing under control.
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