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Posted 8/22/2009 3:44 PM (GMT 0)
Hi everyone. I have UC and really dont want surgery, however I seem to think that if it comes to this it may be better then taking all the meds. I am wondering what your limits are, can you swim, what about having a bath. do you have complications, Im doing a raw foods diet and it is going ok but at the same time im not going to be stupid and say it will solve all my problems. Let me know thanks. Are you happy you made the decison over meds?
Posted 8/22/2009 5:20 PM (GMT 0)
I was like you and did not want to have surgery either. I held out for 7 years, but the meds stopped working, so I had to have surgery. Much to my surprise, I really like having an ostomy. I am not sick anymore and have energy that I haven't felt in years. I can swim and bathe with no problems.

All in all, life is good, and I'm very happy that I had surgery.
Posted 8/23/2009 12:01 AM (GMT 0)
surgery is a wonderful thing,lol.
And you can do everything, swimming, showering, pudding wrestling (lol) hot tub, getting in a creek or lake. Anything you can do now you can do after.

Im not sure about the raw food diets, i would think it would be ok, just be sure you drink lots and lots of water with it. So you wont get a blockage
Posted 8/23/2009 2:42 AM (GMT 0)
HEY!

I have a season pass to the water park here in KC. I go swimming every week (well, it's been too cold this week :( )

Surgery is WAY better than taking all those meds and still suffering.
I was taking 20 pills a day with u/c. Now I take......wait for it......NOTHING!
Woo hoo.
Posted 8/25/2009 1:38 AM (GMT 0)
Have you tried any of the other meds? That may be something to try before surgery, but it's a personal thing.

I've had an ostomy for MANY years, but my diagnosis is Crohn's, and I wouldn't trade it for anything. I am more active and involved in life and wish I'd done my proctocolectomy much sooner. I did try many drugs but for one reason or another they stopped working or I was allergic.
Posted 8/25/2009 2:01 PM (GMT 0)
Well... I've had to give up my reading time on the loo. Simply no time - two minutes and I've emptied and I'm out of there!

I also can't wear a bikini - but then this body was never meant for a bikini anyway - one piece bathing costumes are fine. I swim all summer long.

I haven't actually found anything that my stoma has stopped me from doing that I want to do. I've been rock climbing, canoeing, ridden elephants and camels, been on rollercoasters, travelled the world by myself (visiting internet friends), worked full time since finishing school (I've had my ileostomy since I was 10 years old), plus I eat anything I want (and it shows!). I even know ostomates who regularly crawl through caves, have parachuted (why jump out of a perfectly good plane?) and bungee jumped (I'm not that silly!).

Good luck with your decision.
Posted 8/25/2009 4:54 PM (GMT 0)
If you try everything you want first, then when it happens at least you won't have any regrets. You will know it was the best you could do for yourself. I fought it for 5 hard years and still wish I could have come up with something else, but no, there was nothing else that worked, I have made my decision and will work with that now. I"m only 3 weeks post-op so, still working things out.
Posted 8/26/2009 10:07 AM (GMT 0)
Thanks- It seems the raw foods diet is holding me in remmision. i hardly take meds. Im not even taking the asacol at the moment as it seems to just feel like i put a match up my bum. any way thanks for your posts i feel alot less scard now of UC.
Posted 8/27/2009 11:09 PM (GMT 0)
I don't regret having it done. Gave me back my life! I can actually DO stuff now...no more lying around all day in pain, or long sessions on the toilet...wooo

Matt
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