HealingWell
Search Close Search
☰

GI appt today...good and bad news.

Support Forums
>
Ostomies
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/21/2010 11:22 PM (GMT 0)
I met with my GI today. He's really pleased with how I'm doing. I've gained 17 lbs since my surgery 5 weeks ago, and my CDAI score went from like 150-200 to 26!!!! INSANE. I'm almost off my pred and he thinks I will be ok without a maintenance drug (good since I don't think there's one out there that I haven't tried) and I'm coming back in 3 months.

The bad thing: I had outpatient surgery 2 months ago for chronic urinary retention and was recovering well until my proctocolectomy. They removed my catheter after having my colon removed and peeing has been a nightmare ever since. It's as if I never had the bladder surgery. I have to pee CONSTANTLY. I'm so uncomfortable. And it's so frustrating becuase I'm doing SO WELL with my ileostomy--it's like super irony and I just want to feel well. My GI said I probably have a stricture in my urethra from having the catheter in during the surgery. I am SO MAD and I am going to call my urologist tomorrow. The treatment options for a urethral stricture are dilation or surgery. I'd rather have surgery and just get it over with and be better but I have missed SO MUCH WORK in the past 3 months with these two surgeries. Plus I live alone and my family lives 1,000 miles away and I have already had them come stay with me TWICE for my other surgeries in the past 3 months to take care of me. UGH I hate this.

I don't know what I want--advice, words of wisdom, I don't know...I'm just so frustrated and angry and I just want to feel better and live my life. :(

Posted 4/22/2010 12:24 AM (GMT 0)
Stephanie  Well you have just had it haven't ya?  Don't blame you one bit.  You would think that all you have been through that it would be enough......sorry that your having these issues.  My prayers and thoughts are with you, and all the others suffering today.

 

I am 2 months post-op from my total colectomy and could not be happier...yeah   Just hope that things continue on this way.  Only thing I need now is some energy...but not complaining...turn   So take care of yourself the best you can..

 

Leslie

Posted 4/22/2010 2:44 AM (GMT 0)
I need a vacation...i'll come over!!
*hugs* You'll figure out what is the best thing for you!

-Allie
Posted 4/22/2010 5:56 PM (GMT 0)
ALLIE,,,WHERE DO YOU LIVE SOUNDS LIKE A GOOD TIME..

LESLIE yeah

Posted 4/22/2010 11:54 PM (GMT 0)
Stephanie,

I'm glad you're doing well with the ileostomy, but am sorry to hear that you might have to have another surgery. But, you have to do something, because that sounds really uncomfortable. sad It's too bad that you don't have family closer, but hopefully, you'll bounce back quickly once you're feeling better. Please keep us posted on what your Urologist says.

Big hug,
Cece
Posted 4/23/2010 10:50 AM (GMT 0)
I TOTALLY understand your frustrations!! I'm scheduled for yet another MAJOR surgery in July.. it will be my 6th surgery in the last 14 months!! I also understand the bladder issues.. as my last surgery in December messed my bladder up again, and I'm having trouble peeing! Hopefully - this will be our last surgeries and our bladder issues will be better as well!
Posted 4/23/2010 1:34 PM (GMT 0)
Jenise, I'm so sorry to hear about all your surgeries!! How frustrating for you. It just seems like when it rains, it pours. How did your last surgery mess up your bladder? Was it like mine--the catheter? Or something else?
Posted 4/23/2010 2:58 PM (GMT 0)
Stephanie, they had the catheter in and on day 3 removed it - but nothing came out. They put it back in another 2 days, and then removed it.. but the flow was/is weak and I just never could empty it. The real issue is.. that I have had reconstructive pelvic surgery - due to a bad childbirth. My bladder was prolpased, and I had that repaired and a sling put in.. 13 months ago. Then in December, I had my colon surgery, and the colon surgeon had to cut the mesh that was holding everything in place, and apparently - he rejoined it and it didn't hold, so now my bladder is prolapsed again.. It's better then it was 4 months ago, but I have to strain/push to empty it, otherwise it just trickles out and it doesn't all come out! I guess it's raining pretty hard for both of us.. I just worry how much my body can take with all these surgeries.
✚ New Topic ✚ Reply