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j-pouch, diet and weight gain

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Posted 7/25/2010 3:42 AM (GMT 0)
Hello fellow survivors,

I am new here with very little experience with UC( no symptoms then diagnosed with advanced dysplasic UC and tumor) and 19 months experience with colectomy and j-pouch recovery.

Sparing you,and me, the details of an arduous journey...here is my issue.

After the colectomy, I lost 55 pounds. Yes I was pretty gaunt! Now  I am gaining more than is healthy! My waist is bigger than my hips! Also I am sleepy, and in the bathroom about 15 times a day. My poor bottom!

My take down was 8 months ago.

I wouyld appriciate input on weight issues and foods tolerated. Thanks

Posted 7/26/2010 10:25 AM (GMT 0)
Welcome to the forum!

Unfortunately, we have to monitor our food intake and exercise, just like a 'normal' person! You can keep a food journal to track what foods are making you go more frequently.

You may find that eating less will decrease your bathroom trips, too!

Good Luck
Posted 7/26/2010 1:26 PM (GMT 0)
Thanks for your input and support Ohio 76. I will keep a journal as you suggest.
I met someone yesterday who told me that my diet was "Too healthy" ! She eats alot of beef and rarely consumes fruits or veggies. Can't imagine for myself.
Posted 7/26/2010 2:15 PM (GMT 0)
It seems that some jpouchers avoid fruits and veggies to keep their frequency down and some avoid those foods because they make them uncomfortable. I have had my jpouch for 9 years and I eat everything. Not only do I prefer a diet higher in fruits and vegetables, but the increased frequency is not a problem for me. Yes, regaining my health after UC has meant that my wieght is higher post surgery. I'd love to lose 10lbs but am not motivated at the moment. I do engage in regular cardiovascular exercise as I feel it's important for overall health. You can meet more jpouchers at www.jpouch.org

Sue
Posted 7/26/2010 4:30 PM (GMT 0)
Suebear,
I love your name...the bear is the symbol for healing!

Thanks for your input. I am omiting a few foods to see what happens. Are you still a vegitarian?
Posted 7/26/2010 6:39 PM (GMT 0)
Thanks! I did not know that bear is the symbol for healing?

I am not a vegetarian but I do eat a primarily vegetarian diet. I only eat meat items when I dine out which is about 1X per month. Mostly I live on fresh fruit and fresh vegetables. But you can meet vegetarian jpouchers at the jpouch site. Kathy, on that site, is a vegetarian and has had her jpouch for 18-19 years.

Sue
Posted 7/29/2010 4:34 PM (GMT 0)
mantis
Do you have a internal J-pouch?

Leslie

Posted 7/29/2010 5:03 PM (GMT 0)
hi leslie,
yes, I had a colonectomy Feb 2009 and a take down Nov 2009.

I was useless for a year but I am doing pretty well now except for huge appitite and weight gain . While my scar is almost invisable, my belly looks like my rear with two fat bulges.
My waist is bigger than my hips! and I am easily tired.
I see by your history that you are no stranger to suffering. Hope all is well now. Dw/Mantis
Posted 7/29/2010 5:03 PM (GMT 0)
hi leslie,
yes, I had a colonectomy Feb 2009 and a take down Nov 2009.

I was useless for a year but I am doing pretty well now except for huge appitite and weight gain . While my scar is almost invisable, my belly looks like my rear with two fat bulges.
My waist is bigger than my hips! and I am easily tired.
I see by your history that you are no stranger to suffering. Hope all is well now. Dw/Mantis
Posted 7/29/2010 5:51 PM (GMT 0)
I have a loop ileo and I wish I could gain my weight back :(

I used to weigh 175ish now I'm only 120lbs. I'm eating lots of protein and carbs but it's like it doesn't even faze my body.
Posted 7/30/2010 12:14 AM (GMT 0)
I was a scarecrow before my "take down". Now I am gaining like crazy.
Bet you will be back to your desirded weight in no time after September!
Posted 8/2/2010 4:23 AM (GMT 0)
I have gained almost 60 lbs since my j pouch (10 yrs ago) , even when I have been in the hospital on all fluids...drs cant explain it. I see alot of cheerleading about j pouches, which is all well and good, but I think that drs misrepresent how well they work for most...if it wouldnt involve major surgery, I would have it reversed.
Posted 8/2/2010 4:44 AM (GMT 0)
newshinycd-try icecream for breakfast, nachos for lucnh, and baileys for dinner, its guaranteed to pack on the pounds! :D
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