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Total Colectomy Part 37

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Posted 9/23/2010 7:32 PM (GMT 0)
hey guys, been away for a while, well first my computer broke, took few days to get the new one, then holidays..... so much to catch up on..

Leslie, oh my gosh.... that description of what happened to you when you fainted is horrible! poor girl! i'm glad you're investigating this, should not let this go   nono   i just still get so worked up every time i think of what happened to you.

Tracy, so sorry about that yeast, hope it's better soon. about the wafer, when i used hollister's it peeled off of me very easily too in the shower, it couldn't last for more than 2-3 days, but coloplast's wafer sticks so much better for me, even if i shower 2/day (so hot and humid here too), it still lasts for a whole week! that is just awesome!

i also SO wish i could have the rectum removed. the enemas are not working so great for me, i hate it. did a second enema few days ago (second one since surgery). well what happened is that i lay on my left side and inserted the stuff in and... it was so weird, the stuff made it's way out through the nonfunctional hole of my ileo right into the bag.... lol it was just so awkward smhair   then i sat on the toilet and had the rest out the regular way (had to strain really hard), but the mucus itself DIDN'T come out mad  . an hour later when i peed, a bit of mucus came out, but not all of it. this is just too frustrating!

Janie, hey hon, thanks! i'm still not sure what i'm gonna do. my boss is back on Oct. 1st, i should decide till then. sorry about the teeth situation, believe me, i know how unpleasant this is, hope it works out soon!

Gilda, gosh, i'm so sad to hear about your isolation sad   and i can so relate. if you have to strain so hard for a bm (even watery stools), so maybe that's another reason for your multiple trips to the b/r, cuz apparently your evacuation is incomplete, what makes you run to the b/r again and again. the straining is also really not good for you. it's one of the main reasons why i chose to have an ileostomy, cuz i could feel my whole pelvic was starting to deteriorate and my last defecography also said that my pelvic is starting to descent, something that didn't show on the previous one i did 2 yrs ago. so i realized that for me, the straining is ruining my whole pelvic with big steps, so by having an ileostomy, not only that i don't have pain and obstructions any more, but i'm also saving my pelvic from further issues and maybe even future surgeries. i agree with your other dr, an ileostomy will give you relief.

Allie, sounds like your mind is pretty much set on having the ileo. the rectal spasms do sound awful, so yes, maybe in the future they'd agree to remove it. i hope your parents get over their fears and worries soon for your sake. prayers things work out for you at last, sweetie!

Posted 9/23/2010 9:45 PM (GMT 0)
Hodaya,

I know you have only your small intestine hooked to your rectum so your colon is not part of the picture. If the water from your "mucous enema" actually came out through the mucous end of your loop ileostomy it means you put in WAY too much water and dilated your whole small intestine! This is not safe! Keep your "mucous enema's" very small. Only a small amount, for multiple tries rather than a large amount will be the way to go. If you don't get mucous out rectally don't worry about it. The fact that you don't have a colon means you are not producing enough mucous to worry about. Only your rectum is producing some. You will not have large amounts of mucous produced like me and Tracy because we still own our colons. So for us, as bigger enema is safe because the water is dilating our colon not our small intestine.

I'm so glad you posted what you were doing so I could warn you. The small intestine is not meant to be distended with water from an enema because the walls of the small intestine are so thin compared to the walls of the colon, so small amounts of water into your rectum will be the safe way to go.

Rosemary
Posted 9/23/2010 9:46 PM (GMT 0)
By the way to anyone with an ileostomy,

Does tomato juice or V8 juice make anyone's effluent WAY too thick? Does mine. I'm downing grape juice now to thin it down. Rosemary
Posted 9/24/2010 12:33 PM (GMT 0)
Rosemary, gosh i don't know, i didn't realize it can cause any problem. there was also a tiny bit of bright blood when i wiped. i didn't think much of it, but confirmed with my surgeon anyway, and he said it's nothing to worry about, that when the rectum is not in use, it developes athrophy (sp?) and the mocusa there becomes thin and tend to be hurt easily, but nothing to worry about. i didn't mention to him about the enema coming out of the stoma end tho. but how can it hurt the small intestine if water go through it?

i drink a bit of tomato juice every morning, but right after that i drink my pear juice, so i don't notice a slowing down. what's V8?

Marisa, such upsetting news :( so sorry honey. pray you can stay strong through this. tons of love and hugs your way, sweetie!

Sarah, really saddens me to hear about all you're going through.. it's hard enough to deal with so many health issues, but to also need to justify yourself to these drs.... makes me SO mad!!! i'm so sorry sweetie, you surely don't deserve this. i hope it is soon proven that you don't have an eating disorder and those drs realize your need serious help!!

Gilda, wow.. that's very encouraging about the diflucan, i really hope it can help you with the diarrhea. if the pelvic issue can be solved, then maybe there's a chance you'll manage w/o an ileostomy, there's still hope.

as to your questions:

1. for me it's the opposite, i hardly have any ouput on my own, only with the help of thining foods in large amounts. my system is REALLY slow and if i eat little, i won't have output for days. but for normal ppl, the whole digestive system produces juices all the time, the stomach, bladder, pancreas and the intestines produce juices, it all go through the system eliminated through the rectum, so even w/o eating, there's always stuff to come out.

2. i empty my bag 5-6/day. since my ileo op on July i still havn't gone out much, only couple hrs for errands, someone else's house, the mall, the dr etc. there's a b/r always and i have no problem using them.

3. i feel very weak most of the time, but i started feeling this weakness even way before my colectomy (Aug 2009). this weakness started maybe more than 3 yrs ago and i thin it's related to my COPD (lung desease). i don't feel i'm able to function like a normal person, b/c of my weakness.

i really hope things work out for you, pls keep us posted.

Lizzie, are you for real, hon? how can we ever forget you?? miss you SO much honey and so happy to hear from you! i am so so sorry about the leaking problem. after all you've been through i would have at least thought you'd finally have some peace of mind, but this leaking sounds rough. i can't imagine having to change 2/day..... i change once a week with coloplast's appliance. i hope they can offer you a good solution for the indent.. darn, it's just so frustrating you can't finally have some rest and still such issues to deal with. love you SOOOO much, always will, and so want things to finally work out for you. Allie is a true blessing and i'm so glad she was there for you when you most needed it. you're both always in my thoughts and prayers. Allie, good luck at Mayo!!
Posted 9/25/2010 2:46 AM (GMT 0)
Hi Hodaya,

I was just worried you were using so much water in the enema to chase the mucous that you may have filled all your small intestine with water. Not a good thing to do. Keep those enema's small. The rectum (and in my and Tracy's case the colon) does become sensitive from not being used so a bit of rectal blood after and enema is not abnormal. Sorry to hear you also have COPD, I did not know that.

V8 juice that thickens my output is a blend of vegetable juices sold here in the U.S.

Lizzie, Hope your appt went well and the CC team can get you an appliance that adheres. Praying no more surgery for you.

Allie, good luck at your appointment.

Thinking of you all. Just tired from packing for my next trip. I got gas. But otherwise I'm OK. Thank heaven for Gas-x.

Rosemary
Posted 9/25/2010 3:50 PM (GMT 0)
Lizzie - Great to 'meet' you.  So sorry to hear of the complications you’ve had. 

 

Leslie – I’d talk to your doctor about transferring to another, less potent, seizure medication.   There are plenty out there which have less side-effects than the one your taking.  In the UK, Depakote isn’t prescribed  for controlling seizures.  The closest drug is Epilim (Sodium Valporate).

Gilda -glad the diarrhea is sorted and good luck with the rectal tests.

Allie - glad you had a good chat with your mum and things have now improved.  I know what you mean about ‘having a life’.  At the moment, we are just existing, and that’s certainly no life!  Good luck at your appointment.

Sarah – glad the appointment went okay.  Praying they will agree to do some tests before your in-patient stay.

I’ve had to stop taking Prucalopride as the side-effects were far outweighing the benefits.  It was giving me 1 bm per week, which was certainly a big improvement, but the adverse effects were making it very difficult to function normally. Really disappointed, but at least I gave it a try. confused I’ll be seeing my Neurologist next week to discuss things with her, before I next meet with the Gastroenterologist.  Still waiting for an appointment date for my first Biofeedback session.

Posted 9/25/2010 7:15 PM (GMT 0)
Rosemary  HEY THATS GREAT THAT YOU HAVE GAS...THAT WILL SAVE YOU IF YOUR DRIVING...JUST BEND OVER AND FILL UP THE TANK....LOL

Well the depakote makes me sleep all day, so I went down to one pill yesterday and still slept the day away.  Can you believe this I just woke up at11:00 am today...so I hope that after my shower I am just going to keep moving and see if I will stay awake...have to go to the fruit stand...WAAAAAAAAAAAAAAAAAAAAAAAAA  its like heaven to me love the fruits.  Going to try corn on the cob for the first time tonight since  my Total Colectomy...you think it will be ok???

tell me mother hen oh wise one

Leslie

Posted 9/26/2010 4:25 AM (GMT 0)
Rosemary, i hope i didn't damage my nonfunctional part of small intestine. but why didn't it happen the first time i did an enema?? when i did this last enema it was already pouring through the stoma while i was still inserting the enema, it was too weird. i never had luck with enemas, like i'm always doing something wrong trying to do it.

when are you leaving for your cruise? you'll be really missed around here :( but glad you're out to have fun! :)))

cookie, sorry to hear that, but at least you gave it a try. what kind of side effects did it give you? keep us posted on your drs appt.
Posted 9/26/2010 9:02 PM (GMT 0)
Bon Voyage Rosemary! When exactly are you leaving? Tell me, what in particular do you find so appealing about cuises? I have only been on one (from Florida to the Bahamas) and while it was fun; you seem to absolutely love them! Tell me, tell me . . . I am so anxious to have some fun once I am feeling better (and have some extra $). Try to write before you leave or otherwise; we can all still reach you sometimes when you are cruzin; right? You will be missed around here!

Has anyone heard anything about Lizzie. I have been texting her and she hasn't been answering. I am kind of worried. I pray she is doing alright (at least making progress each day).

Gilda
Posted 9/26/2010 11:43 PM (GMT 0)
Hey everyone! I'm post op day 4 right now from colectomy, and I'm feeling pretty good! The doctor said my bowel was pretty dilated when he got in there and it made exposure a little difficult, but they were able to do it laparoscopically with a single incision port. He also did a side to side anastomosis instead of an end to end like I thought, but no biggie. I had my first BM yesterday and it's a lllll liquid but they're very tolerable. I had 8 yesterday, down to 2 today, but I've only been upped to a full liquid diet. I'm tolerating the diet pretty well, though I have to eat slowly. My incision is only about 3 inches long, and it looks really good. So far I'm pretty happy with my results! I'm kinda nervous about the next couple weeks, but hopefully I can get past that and start looking toward a healthy future!
Posted 9/27/2010 12:06 AM (GMT 0)
Leslie,

LOL LOL LOL, you are so funny. Yeah, I got gas so I save money big time when I pull up the car to fill up the tank. I could just uncap my stoma and fill the tank myself.

Mother Hen says NOOOOOOOOO on that corn on the cob. You knew I'd say no, huh?

Well, if you ate it I hope all passed well.

Gilda,

My favorite part of cruising......DANCE HOSTS!!!!!!! They are retired men who have good social skills and can ballroom dance. Plus they dress up formal and look classy. They are employed by agencies who screen them then rent them out to some of the cruise lines to dance with single women who like to ballroom dance and have nobody to dance with. IT IS SOOOOOO AWESOME! I loved ballroom dancing before my "injury" and it makes me feel alive again. It is an escape where I get to feel like the old me again. All of the horror I have been through disappears when I am dancing with these guys. They are very nice. So, that is the scoop on my love of cruising. Plus the port stops are pretty cool too. AND the main thing is I don't dare fly any more because I don't want to take any chances on air pressure issues with my guts. It MIGHT be OK, but I figure after all I've been through I don't want to tempt fate. So Gilda, when you are well, hit these cruise ships: Cunard, Holland America, Regent Voyager, Silver seas, and Chrystal. As I understand it, these are the ones with the dance hosts.

Allie, do you know how LIzzie did at her Fri. Appt at CC? I could not find the article about making impressions of uneven scarred skin areas to get a good appliance fit, but CC must know about this. You get sort of a custom made appliance. WOuld sure be easier than having her functioning stoma moved.

Hodaya, Nah, I don't think one enema that came out of the down side loop of your loop ileo did any harm, but keep those mucous enema's low.

I leave Oct. 12th and have all my stuff, but I just can't seem to get packing. I'm a bit nervous like I always get. This is a long cruise 3 months until Jan. 5. One whole suit case full of ostomy supplies and another for all my baby food. I take no chances on food clogs!

Mother Hen will be checking in from the ships as she has a chance. Wishing you all well. Keep your fingers crossed for me. I'll likely check in before departure. Tomorrow I have to force myself to open those suit cases.

Rosemary
Posted 9/27/2010 4:23 PM (GMT 0)
Thanks for answering, Rosemary. I do envy you; going on all of those cruises! My husband and I plan to do some "cruizing" after he retires (maybe in 3 yrs if we can ever get my medical bills paid off). For now I usually have to just find "fun things to do" in San Diego, which isn't difficult . . . . it is a beautiful city! I have said this before and I really mean it; if any of you on this site ever want to come and enjoy some of the many attractions San Diego has to offer, my home is open to you! We have 2 extra guests rooms and I would love to have some fun with women who really need and appreciate a break (like so many of us do after dealing with all of these health problems). I think it would be so cool for a few of us to get together after sharing our struggles and encouraging each other for so long (on this website). Of course, I have other friends (many from my years of teaching), but they really don't understand what I have been thru and sometimes that gets frustrating!

Hodaya, I know I recently read that you feel angry that you lost 17 years of your life to this illness and that makes you depressed. I totally understand how you feel (I was quite ill from age 20-58). I am currently 58 but just recently I feel I am doing quite a bit better (maybe bec. of treating the yeast infection with Diflucan?) and actually I am feeling younger each day! I used to ride horses a lot plus I played on a Basketball League just 5 yrs ago. I hope that I am not fooling myself but maybe I can "live my life in reverse?" What I mean is that now, I can become more active, instead of less active as most people do as they get older. I saw your picture on Facebook (on Lizzie's Facebook); you are a beautiful young woman. I really think that you will meet someone special and get married if that is your desire! I am really hoping that you are still doing well after the Ostomy. Let me know, o.k.? I have an 18 yr. old son (adopted as an infant). If you want children and feel your body can't handle a pregnancy, you could always go the "adoption route." Anyway, I guess i am just "full of ideas" today!

Take care Everyone and let me know if you hear any news about Lizzie!

Gilda
Posted 9/27/2010 4:29 PM (GMT 0)
Hodaya,  One other thing I forgot to ask you:  Once you mentioned that your "brother-in-law" (I think) is a doctor in San Diego.  Maybe I am wrong about this but, if not, what is his name?  I feel like I have seen at least 40 doctors in S.D. and i just wondered if I know of him.

Thanks,

Gilda

Posted 9/27/2010 6:20 PM (GMT 0)
Hey Gilda,

WOULDN"T THAT BE GREAT if the Diflucan solved your diarrhea issue and you did not need a bag. Oh, yeast can be the most debilitating yet least thought of infections around. some Colorectal docs actually deny that it can exist in the digestive tract, can you believe it?

Glad you are feeling well. Rosemary
Posted 9/27/2010 6:30 PM (GMT 0)
future, so glad to hear surgery went well and you're ok :))) are you home already? so good to know you're happy with the result. praying for a continued smooth recovery.

Rosemary, wow that's a long cruise... sounds like SO much fun!

Gilda, thank you for your understanding and kind words. i think that when someone gets really motivated, then it makes no difference what age he is, he can reach any goals he wishes to - it's just all about will and desire. i think it's great you're full of ideas - that's how anything would get started, it has to be brought to mind first then to doing, right? so positive-active thinking is a good start. well i'm gonna quit with the philosophy for now lol.

i'm so glad to hear you feel younger and not the opposite :)) and wow, i didn't realize you were so athletic. i think with no doubt anyone can accomplish anything at any age, so go ahead and feel free and comfortable to "live your life in reverse", feel free to feel 20 all over again and DO what you desire!!! go for your goals!!

phisically i'm doing pretty good, thanks. yes, i have a lot of depression, mostly b/c i do feel i missed life. i try not to dwell on it and just focus on starting new - work, activities, get married and maybe even go to school again.... working on buiding up my motivation.

lol, yeah my BIL is a dr, but not a colorectal surgeon or any kind of surgeon. he's an internist and his name is Brian Abramowitz. maybe you're confusing with his friend Bard Cosman - i mentioned him here few times, he's a colorectal surgeon at UCLA, he's SO nice and was very helpful with advising me - maybe you know him? lol that would be so funny :D

and Gilda, keep those ideas coming :))))) and it will be only a matter of time till they're out to actual doings.
Posted 9/27/2010 9:53 PM (GMT 0)
Hi Hodaya,

No, I guess I don't know your BIL after all; he is in Los Angeles, I live in San Diego. I am glad that you are feeling better (physically) and that you are thinking about what new things you could now do. What is going on with the job situation? I had to retire from teaching 2 years ago but if a major part of my problem really was the "severe yeast infection" I might be able to at least substitute teach a couple/days a week. I am not thrilled about "subbing" but it would add to our family income which would make my husband happy.

Keep feeling better!

Gilda
Posted 9/27/2010 10:30 PM (GMT 0)
Gilda and Hodaya,

Gilda, I really hope that conquering the yeast can get you back to at least subbing and main thing getting out of the house. If it was the yeast GOOD THING you tried that Diflucan prior to having an ileostomy! Good for you for living your life in reverse and for Hodaya to do the same thing.

I personally feel like I'm living my current life as in life after death mode. I'm not being morbid; I am being realistic as I was being left for dead prior to my one surgeon doing the ileo and adhesion take down to save my life. ONLY NOW, am I able to sort out what is important in life and what is not. I held all the wrong things in high regard and did not focus on the important things.

I put my career above all else. I let my mother virtually rule my life (she did love me and do tons for me growing up so I fully acknowledge all she did for me growing up) but then in her old age she started running me ragged and I never realized that I was foresaking living my own life in exchange for servicing her. She was simply growing older, getting dementia,and arthritis, the aging process. BUT being so close to it, I did not recognize I was giving my life for her. Now she is comfortably in a nursing home all in one piece and I am the one who got severely damaged. That not her fault, but the stress of dealing with her instead of recognizing that she needed a full time nursing staff, was what drove my bowels nuts. Then the misdiagnosis, wrong surgery, falling in with bad docs, the suit, etc etc. Again, not her fault, but my life steam rolled over me in a chain reaction.

So I'm praying I stay well as an ileostomate to live life the way I should have been living it since I was say around 45. I'm now 54. I guess we are all trying to make up time lost, live life retroactively, and we are likely the only ones who understand this train of logic. (all of us on this board I mean.)

Anyway, San Diego is beautiful. Once a long time ago I flew out there to the zoo to see penguin encounter. It was closed for renovations. I flew 3,000 miles to see penguins and they were in a refrigerated truck. I couldn't even peek in the windows. It reminded me of the Chevy Chase movie Family Vacation where he drove his family cross country to Wally World and it was closed. ANyway, I loved San Diego.

Fascinating that Hodaya has relatives and people right in California. It would be sooooo much fun to all get together sometime.

Rosemary
Posted 9/27/2010 10:32 PM (GMT 0)
I sure hope CC had some good appliance ideas for Lizzie rather than more surgery. Allie, when you can and you're up to it, give us an update. I know you are dealing with your own issues around now if I remember correctly. Good luck with that.

Rosemary
Posted 9/27/2010 11:38 PM (GMT 0)
Rosemary   I* know what you mean its approaching the anniversary of my fathers death Oct 14,   I have been dealing with my mother who is getting dementia, and she is a very demaning woman and has been all her life.  So to de-stress somedays I just tell her I am not well enough to come visit, just for the fact that by the time I leave her house I want to head right to the store for a six pack of beer and a pack of cigs...but I dont smoke anymore but being around her for hrs makes me want to.

So I see her as much as I can and do what I can for her, but have backed off cuz it really takes a toll on me.  And her daily reminder of what I had told her years ago its getting old.  I told her that when her and daddy get older I would never put them in a home and would always take care of them.  Now daddy has passed and she keeps saying"well you have been so ill how are you going to take care of me , you promised"  crap I cannot win for losing..I told her she is fine right now and I am on my road to recovery so back off..lol

I can only do what I can at the moment... so live life and enjoy, throw away the stress and just be...

Leslie

Posted 9/27/2010 11:44 PM (GMT 0)
Amen Leslie, I love your closing motto. I guess we all fall into it some time or other don't we. Rosemary
Posted 9/28/2010 1:34 AM (GMT 0)
Rosemary Thanks sweetie, I get my MRI on Wed so hopefully It wont take to long to find out what is going on with my brain....

Leslie
Posted 9/28/2010 2:25 AM (GMT 0)
Congratulations Future!  It sounds like you are doing very well!  Are you home?  If so, that would be a really quick release from the hospital.  Did they do a total colectomy or a subtotal (I have two inches of colon left)?

Val

Posted 9/28/2010 5:47 AM (GMT 0)
Gilda,

my BIL lives and works in San Diago, and his colorectal friend Bard Cosman also lives in San Diago, but works at UCLA.

i hope you feel better so you can work a bit too, just getting out of the house is so important. my boss is back from his vacation on Oct 1st, but i wont be able to talk to him before Sunday. i'm not sure i want to go back to this job, but if he agrees to my dr's letter, then i should go back, cuz if he agrees and i don't go back, then i lose my compensations. i have a job interview today at an engineers office, just 10 mins walk from my house!! i never ever had a job interview this close to home lol. working this close to home would be neat! with my current job (8 yrs) i had to travel with 2 busses each direction and it would take me 1 1/2 hrs to get there. anyway, will see.

Rosemary, oh that would be so awesome to meet you guys :))) i've never been to the U.S.A (mostly b/c i've been so sick + finanace not so great) and i don't see my self coming for a visit in the U.S in the near future, but if and when it happens, i'll sure let you know!!

Leslie, good luck with the MRI, hon! i really hope it sheds some light on your situation and drs are able to know what's going on. hope you're feeling good, hugs your way!!
Posted 9/28/2010 6:28 AM (GMT 0)

Hi Ladies,

 

Sorry for the delay...I had two more classes start up, so now I am taking three online courses for the next five weeks! I have a degree in speech and hearing sciences, but didn't enjoy it enough to go for graduate work in it, so I'm going back to nursing school. Super excited, but not sure that my body will let me finish on time (wouldn't be the first time), as I am really not feeling well...going to try anyway, though! All of my current info is en route to Mayo, so hopefully it won't be too long before I can go back for an appointment. Time isn't on my side...I think February is when I age off my parents' insurance. Yikes!

 

Please keep praying for Lizzie! Her follow-up in Cleveland went well; they are trying a different appliance, but so far she's only getting about 24 hours before having to change everything. They want to do a gastrograffin contrast to see if the bump on her stoma is a fistula, so she will have that done at home. Her surgeon said that she does have the option of moving the stoma to the left side- if it comes to that, surgery will have to wait until February because she has had so many surgeries in such a short amount of time. Keep praying they can find an appliance that works for her!!

 

Gilda - I am thrilled to hear that Diflucan may be the answer to your problems! That would be wonderful! What kind of riding did you do? I have been riding almost my whole life, primarily dressage. I miss it so much...haven't sat on a horse in about six years because of my health. Do you have any plans to get back in the saddle? You should!

 

Sarah - I am so glad the doctor believed you about the altered blood panels. That is very encouraging! I agree with you- I do think you need consistent hormone testing because a quick 2-3 day inpatient stay could very easily miss something. How are you feeling? Were you able to get the heart ultrasound scheduled? Any other news?

 

Better call it a night before I completely fall asleep at the computer. I tried to proofread, but I don't really trust my eyes at this hour! Love and prayers to you all!!!

 

Allie

Posted 9/28/2010 1:27 PM (GMT 0)
Allie,

I have my ultrasound tomorrow, will see if it might make me go a step forward.

I am feeling really crap and exhausted.
Wile I had the immune reaction and some time afterwards my endocrine symptoms were improved which would be consistent with the different labs.
Now, I am obviously back to the old symptoms: insomnia (I slept only three hours yesterday), terrible muslce weakness (can't stand up from a sitting position when not unless sitting on a chair) and the other symptoms I attribute to the ecdocrine problem

In addition lately, I have experiecened more belly/gut pain that I used to have after the ileo. I have an episode of bacterial overgrowth - not sure if this could be the problem but I have had it for some time now since the antibiotics/xifiaxan have not kicked in yet and I did not experience this kind of pain until now .
we decided to stopp all antibiotics hoping that the gut flora will alter so that it will repsond to the antibiotics again.
I had a pretty bad night with belly pain and nausea last week, and I tend to have more pain and fullness/nausea after eating. Moreover, I have a strange new pain in my lower abdomen that does not seem to be linked with eating and I don't know where it is coming from - gut, bladder etc.
I want to have a CT/MRI of my gut because of the increased symptoms and to check for a possible carcinoid tumor in the gut and for the liver alterations which were stated by ultrasound.
I found out my flank pain may be related to the enlarged liver and that I also have a pressure pain in the liver area.
I think these are pretty good reasons for performing a CT/MRI but I think that I won't get it since my GI would like to pass this issue to the endos and the endos always perform blood drawins first and IF there was something abnormal then you would have the right to get a CT/MRI.

Post Edited (pelztier86) : 9/28/2010 8:06:27 AM (GMT-6)

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