Ileosotomy Reversal Surgery Scheduled/Should I?

hi painshot,

sorry you had so many complications. i had the anal manometry test twice before my TC and on both times couldn't expel the baloon. i had my whole colon removed and my small intestine attached to my rectum, but i couldn't manage b/c i couldn't expel the stools, so i opted for an ileostomy.

i say first have the test and see how it goes, maybe meantime things have improved. good luck!

Thank you for your respones.

Despite the 2 years of having "the bag" ,I have not been able to  adapt to the ileostomy.

Having lupus, the bag erodes my  skin,and I have not had the success of like others with it.

The reversal is scary because the 1st surgery I coded and was  on the vent x 2 mos.(later to find out I was

missing several sutures at site of where they connected my small bowel causing me to become septic

and bleeding out).I was givin last rites.

Karen it is a war with my immune systerm and the bag,my body won't get onboard.

I really appreciate the support,

I feel alone and scared in the medical nightmare/dilema .  

Karen
"not going well" ,I am afraid to ask what this means ??????????????
My surgeon is aware of what i went thru the 1st surgery and said I probably should be on the internet making my mindset already worse.
I am 2 weeks from surgery and I still feel i may back out.My doc's understand my relutance but the other side of the coin is living with SLE/lupus and a loop ilieostomy where when you change the appliance/bag ny skins rips and starts to bleed and will not heal.
In the AMA's new England Med. Journal i was written up about my TC and loop and what happened.they found less than 1.5% of the population survive.
Do I hope the next time I have the same luck if they break out the defibrillator?
Or live in 24 hr. pain and be glad i am "just alive"?
Thank You very Much

hey

i dont quite understand all your words but am i correct in saying they think people like yourself dont survive operations?

No - no one wants to 'just be glad to be alive' if they are in constant pain.  It sounds like you have no choice in the matter with your skin coming off and not healing!!! I expect you have tried special types of bags for sensitive skin.....

I am sorry your drs are not being very helpful.  sue bear mentions a K-pouch and that might help with outlet problems i dont know.  praying for you. x

Hey

i have no idea what a k-pouch is - you might have to google to find out....

I think the most common problem is lots of bowel movements after a reversal of an ileostomy - if you dont have your large bowel that is. Lots of ppl manage however and the bowel sorts itself out after a while. However ppl with colonic inertia - like myself - could end up stil having constipation problems. so i that is only 'horror' story i know of... most ppl get through ok.