Think my Crohn's is back :(

I am so, SO  depressed...I think my Crohn's has reappeared, in my stomach.

Just the last week or two I've had some really bad indigestion. Like to the point where I'm sleeping sitting up even with Prilosec OTC, and without the Prilosec I can't even speak because my esophagus feels like it is going to explode. I NEVER had indigestion before this. And now it's like every night.

I'm really trying not to think about it being Crohn's, but that seems stupid not to consider it. I am just so disappointed. I thought I'd have longer to enjoy my health. This is so not fair. I am going to see my gastro dr on Thursday, and hoping that it may be something else that can actually be fixed, but I feel like this is inevitable.

I know you guys can't diagnose me, but I just would love to hear some sort of words of wisdom or SOMETHING right now. I'm just in disbelief that I may have to deal with all of these expensive and dangerous and frustrating drugs that don't work AGAIN. I was so hoping that I was done with that. This is SO NOT FAIR. I've been through enough. And it's not like you can have your esophagus removed. I have to live like this for the rest of my life.

:( I need 1,000 hugs.

So sorry...... I have a friend who has Crohn's and thought it was in her stomach.... her gi doc (also mine) said it's a very rare site for CD, less than 5% of cases. So, it could be Crohn's, but more likely it's something else. Hope I'm right.... so sorry you're suffering this way, hope you get relief soon.

Stephanie...MUCHO HUGS SWEETIE!!!!

Lets hope what Blueglass says is the same for you...

80'2,

OMG! I hope it is not Chrones in your stomach! I did not even know it could go there, but I don't know that much about it.

Praying for you a million times over this is not the case.. Let us know what you find out.

HUGS!! Rosemary

Hi Cece,
Thanks for thinking of me! I went to my GI and they put me on some Nexium for acid reflux. They want me to try it for a few weeks and see if I see any difference, and then if I don't they'll do a scope. The good news is they don't think it sounds much like Crohns, but they're not ruling it out yet. I really hope they're right! They said acid reflux is really common, like it's half of the patients they see at their office. So that could possibly be the case.

Fingers crossed!!
Stephanie

Thinking of you and sending hugs....

Dillon also has trouble with acid reflux. Docs have never been worried by this.

i had a lot of trouble with acid when i still had UC, and i was on protonix for it, worked so much better than any of the other things, but it is a bit pricey, the copay was higher than the other meds.
very glad to hear its not your crohns though!

Hey,

My favorite, beautiful, ostomy chick can't have Chron's in the stomach !

It may help, it may not, but when I was having esophagus pain, went to a GI, and he said "sounds like acid reflux...take a pill!" Well, after reading side effects of prilosec, I decided to NOT take the pill..instead, googled acid reflux (there is a website dedicated to it..just can't remember..)

There are lots of natural things one can do, if it is acid reflux, to reduce symptoms...I didn't know chocolate could irritate the stomach so...I thought it was ALL good for you!

Since my surgery, the abdomen is fine..but, all my joints now seem to hurt...

Lots of hugs to you chick!


jimmy