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am i weird to like my ileostomy bag BE HONEST PLZ

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Posted 10/28/2011 12:01 AM (GMT 0)
so i am just scared to get the finished j-pouch sugery the third one wich is indecember. so i was thinking maybe i should just keep it !!!!! some say give the j-pouch a chance idk ig im just real scared for the 3rd scaredi feel some WEIRD sence of comfort though tongue
Posted 10/28/2011 12:06 AM (GMT 0)
Who cares if you're weird? But, my vote is no.

I am very happy w/my ileostomy. If you would have asked me years ago when I was healthy, I would have thought it weird to like it.... but after being sick for so long, I feel much differently.

Really hope you can focus more on healing from this surgery, rather than worrying about the next ones, if there are next ones.... plenty of time for that.
Posted 10/28/2011 12:58 AM (GMT 0)
You're not weird at all... I love my ileostomy! :-) Just take it one day at a time and try not to worry about your next surgery. If you're not ready to have it done on December 3rd, then you can postpone it until you're ready.
Posted 10/28/2011 2:58 AM (GMT 0)
Nope, you are not weird one little bit.   I am another one who loves her ileostomy [Lillie the Iley.]  

I had some rough times over the last 2 years and I actually chose a permanent Ileostomy over drugs [poison IMHO.]  I in no way suffered as much or as long as many others on this board, but I knew this decision was right for me.  I researched as much as I could and checked the posts in the archives of this board and other boards.

As others have pointed out, you have time and don't need to make your decision by Dec.  Don't rush it and take some time to see if you want to live with a bag forever.   In my case it has given me my life back and I can enjoy life my grandchildren.  I am so thankful for my bag.  If I were younger, I honestly don't know what I would have done.   It is a personal choice and in time you will know what you want to do.  { { { H U G S } } }

Posted 10/28/2011 3:40 AM (GMT 0)
Nah, whatever is good with you is what is right for you. One thing about having an ileostomy is that it is on the outside of us. If anything ever went wrong medical people would have a visual aid. When something goes wrong with something inside of you, some medical people tend to label us as crazy or whatever as there is no visual aid. I ran into this with my internal injuries an adhesions which lead me to need the adhesion take down and the ileostomy bag. Would rather turn back time and be all in one piece, BUT compared to being gut injured as labeled as crazy after the injury and before the ileostomy, I would rather have the ileostomy. If anything ever went wrong all I would have to do is point to it. Voila, visual aid nothing to prove or argue about.

Just my experience as to why I am comfortable with it. I can never be put back together, but if some miracle thing was invented to get rid of ALL adhesions etc and I was ever offered the chance to TRY a reconnect, with all I've been through, I would likely say NO THANKS.

Rosemary
Posted 10/28/2011 1:42 PM (GMT 0)
No, you are totally not weird to like your ileo. It's given you your life back. I had mine 9 months and I didn't mind it at all because I was so grateful to be feeling well again. However, I'm really happy with my j-pouch now. There is an adjustment period - for me it was a little longer than most people's - but I feel like everything is functioning as it's suppose to now and I feel great. Jpouch.net has a lot of stories about people who have gone that route. Most are really happy they made the choice. The one thing I do not miss about the bag is the cost of supplies. Mine were always around $150 a month just for the basics and we had to pay that out of our pockets because we have a high deductible that has to be met first. It does add up.

It's your decision to make and I'm sure you'll make the one that's best for you.

 

Posted 10/28/2011 3:07 PM (GMT 0)
If you are loving life with your ileo then you can keep it as long as you want or indefinitely . And no, you are not weird! :)

As for me, I love my J pouch! :)
Posted 10/28/2011 8:57 PM (GMT 0)
Nothing is weird in what you are saying. What I think is really fantastic is that you are having these kinds of thoughts so soon after surgery. I will be getting a j-pouch this winter, and have had my stoma since April. But it took me a bit more than 2 months to begin having even slightly positive feelings about it. Now I'm acutally into my 7th month with it and don' think about it during the day unless I'm emptying, and have tender, caring thoughts about the stoma when I'm changing the bag. Those kinds of feelings helped me heal from the initial trauma, but it took a while for me to get there. That's why I think it is amazing that you are thinking about keeping it. Just give yourself some time for your feelings to come full circle, then you can decide.
Posted 10/29/2011 2:44 AM (GMT 0)
thanks ill definetly go to that website i think im just fearfull of the next sugery because this one went so great!!!!!!!!!!!! i do love my stma though (mr.wiggels) :D
Posted 10/29/2011 5:29 PM (GMT 0)
I don't think its weird either I'm totally happy with my bag!
Posted 10/31/2011 1:49 AM (GMT 0)
and with a name like Mr. Wiggles, how could you not love him! :-)
Posted 10/31/2011 2:00 AM (GMT 0)
I don't think it's weird at all. You don't have to decide anything right now. My surgeon told me he has had people go a year or more in between having the pouch made and having their ostomy taken down just because the timing wasn't right for them or they weren't sure, etc. Give yourself time. You are still very early in the process.

For what it's worth, I absolutely loved my first stoma once I got used to taking care of it, etc. I saw Pedro as the thing that took away years of sickness and pain and made me healthy and well again....how could I not love him? I'm still happy to be moving forward with the j-pouch process (though I wish this second stoma was as nice as my first!) but I know I could easily live a full and happy life with an ostomy if needed.
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