Posted 11/16/2011 11:20 PM (GMT 0)
Today has been a very stressful day. I had to go into hospital for the dye test to check I'm ready for my reversal which is booked for next wednesday. It didn't start well when my radiologist doctor couldn't speak english.
They first expected me to remove my bag on the table under the xray machine, not giving me a chance to go and empty it first or do it in any sort of way I was comfortable with. I'm stressed enough with this whole situation so it didn't really help.
Next the nurse told me that the dye was going to go in through a tube and would come out into my bag... I emediatly thought this was werd because they were aiming to check my small bowl... the part the surgeon wanted checked was the join between the small and large bowl (around the appendix area) which meant that the dye had to go downstream not up also because he wanted it to act as a lubricant for any stools left in my bowl... deffo not going to work that way if I'm having my small bowl checked and all the dye goes back into my bag. So my mum and me tried to explain this to the doctors who prceeded to leave me bagless on the table for 45 minutes while they tried to understand what we were saying, finally getting hold of my surgeon who informed them that THEY WERE DOING IT WRONG an we were correct that they were trying to test the wrong part.
By this point I was distraught. I haven't come to terms with the whole having a bag thing as it is and having the bag off for such a long period of time meant that it went EVERYWHERE. I was literally covered in excriment, I was shaking from how stressed I was and couldnt stop crying, everything was just going wrong. The doctor didnt seem to care that I was absolutely covered and due to it running down the sides of my body was actually laying in my own crap. By this point my mum had got pretty annoyed and insisted that it got cleaned up, the doctor started and despite repeating over and over again and it being visible how much pain my skin is in around the stoma due to leakagess he jabbed around the edges extremely hard to the point i was actually screaming in pain.
The doctor the just left and didnt come back for a good 25 minutes (me still bagless and leaking on the table) and then a new doctor came that was english so i could actually understand what was going on. (dont get me wrong, i dont have a problem with foreign people doing things but i need to understand them when they talk to me or i dont feel safe and comfortable) This doctor then tried to tell me that both the up and down stream openings are inside the stoma, i have never been told this before and after a lot of uncomfortable jabbing around he decided that he was unable to find this opening so took the tube out and oh what a suprise EVERYTHING not just the dye that was put in but a LOT of excriment came out with it and they were just all like 'its fine its just the dye' the dye was clear and this was most deffo not just the dye. They then left me to get to a public toilet to try and clean myself and the stoma and sort out my bag which in itself was extremely awkward to do in that kind of environment i found.
So I basically came away form this whole thing very tense, upset and stressed which doesnt help anything. My surgeons secutary is getting him to call me tomorrow but I'm just so confussed. How is it possible for someone supposedly trained to do these things to get it so wrong and also my main question
I've been looking online all evening and i just dont really understand all the medical stuff i see so i was wondering if anyone here that knows more about it could tell me.... I was told as I have a loop ileostomy there is the main stoma where the waste comes into the bag and a very small bit underneath with a tiny hole just below it, is this what they are like?? because ive now been told two contradicting things about what they are suposedly like.
Sorry for this being so long i am just very stressed and now worried the fact the test didnt happen will mean my operation being prosponed. I can not handel that, i need to get rid of this bag now, im in constant pain from the skin around the stoma, i dont sleep in fear its going to leak and it hurts, its effecting my life so disructively i cant handel it being put back any further. I cant believe ive been waiting so long for this test and i go to have it done and they are incompitent to do it