Ileostomates prone to kidney stones and gall stones too?

I know we with ileos or those without the use of our colons are more prone to kidney stones due to dehydration that is why we have to drink drink drink. But I also read that we are prone to gall stones and the anti-gallstone diet says don't eat too much fatty stuff and don't eat eggs, etc, etc. then they proceded to list all the stuff I can eat with an ileostomy.

Though some can I can't do green leafies, salads, etc, all the roughage type veggies and fruits that are in the non-fat category.

The dairy I eat and drink I make sure is low fat or no fat such as skim milk etc.

BUT, this is a catch 22. Are there any long time ileostomates or those without colon who have had issues with either kidney or gall stones?

Or is this one of those things that MIGHT happen, but also might not type of things.

Rosemary

Oh, wow 80's. That must have been rough. Yeah, if people have to be on a med to treat a disease state that can create issues. Plus your dehydration. Hope you do NOT get any more.

Just out of curiosity, how did you pass the stone? Did they give you an IV and a LOT of pain killer?

Or did they have to go get it?

I have a family history of gall bladder disease, hope I don't get an issue with that. I gotta start cutting out chocolate for sure. Rosemary

although my UC is gone i continue to have PSC, for this i have been prescribed a vit C & calcium tablet ( in addition to Ursofalk), last time i visited my consultant for my 6 monthly visit, he stressed that i should only take 1 tablet per day, they are available without prescription in the chemist & as they taste OK i was inclined to take a 2nd one some days, my consultant advised that there is a very real risk of kidney stones & i am to stick to the 1 tab per day - as the PSC does not cause me any bother i tend to forget about it - its something i must research into

cheers

My son is 14, colon removed August 30, 2011.   Oct 10 first bout of horrific kidney stones.   November 9th second bout of kidney stones.  Nov 15th had lithotripsy to blast the stones that he could not pass.    No one told us this was a side affect of having your colon removed due to dehydration.  they also told him to drink 2-3 times the amount of water that the normal person should drink and to stay away from caffienated drinks.

 

I have labs done every 3 months and take no supplements of calcium only the calcium in the food I eat. I was told to drink 2-3 quarts of water with some broth per day. There is a whole list of foods and drinks that have different substances in them that can make different types of kidney stones. I just got home and it's late but I will post specifics tomorrow. Bottom line I was told is that if you drink enough water it just dilutes everything down so much that you can eat a wide variety of foods.

Were your son's stones made of calcium, uric acid, or I forget the other substance? And will look it up tomorrow. Depending on the type of stone it is, then your recommended diet is made. Sorry your son has suffered so much from this side effect of colon removal. One thing on top of another.

I had no choice but to have my ileo as I had severe gut injury and would have died without it, but when I found out you can get kidney stones and gall stones I tried to really drink a ton of water and avoid foods bad for gall bladders. It is a very fine line and also has to do with how your body metabolizes things and if you are prone to these things inherently. I will look up the food lists for you tomorrow. Thanks for posting.

Rosemary

Bluegrass, let us know what you find out. Issues like UC and past meds may put things in a different ballpark for you. BUT I had a very educated nutritionist who told me that calcium in dairy products or green veggies is so much more easily absorbed in foods and very much less likely to form a stone than supplements. She was medically affiliated, so do bring this up with your doc. But your doc is your own personal source of best info.

Mother of Teen,

Now that I'm awake and it's not so late I remember what the three types of kidney stones are. They are either calcium, uric acid, or oxylate stones. Find out which kind your son had and that is how you determine foods and liquids to limit. BUT drinking LOTS of water is always the protocol.

Oxylates are in chocolate, instant coffee, tea, wheat germ such as wheat cereals, grape juice etc. You can google to get whole list.
Uric Acid stones usually form from too much protein, but again without a colon good hydration is key.
Calcium stones form from calcium but there is something more. It is how calcium is metabolized. I think there has to be a balance of calcium and magnesium intake in the diet. I am not real sure on this one, but check with your doc.

If you live in a hot climate that can really cause an issue in terms of dehydration.

I sure am praying for no more issues but my diet is so limited anyway that I just sort of eat what I can drink a lot of water and hope for the best.

Also I THINK I read that UC or Chrone's backgrounds lend themselves to stones more than like a trauma type thing which necessitates an ileo without any underlying disease, but you will have to ask an MD about that. I have no MD after my name I have just done a lot of research trying to find ways to stay as well as I can.

Gall stones run in my family and eggs are a number one offender for that, but that is one of my main sources of protein, so wish me luck. I wish your son and you good luck. Good luck.. Rosemary

esoR said...
Blueglass, let us know what you find out. Issues like UC and past meds may put things in a different ballpark for you.

I checked w/my primary doc, and she said this is an excellent question and its a balancing act between keeping my bones healthy and not overdoing it and getting kidney
stones. She said that since I'm not doing much weight bearing exercise w/the bed rest, that she would favor staying on the calcium at least until I'm exercising more again, and she reminds me to stay hydrated.

I see my gi doc in Feb and will wait til then to see if he knows of any studies etc. It's surely not a rare thing for someone w/an ileo to have bone density issues from steroid use.

Rosemary, I do take 2000 IU of vit D a day, although I just had blood work and it was low.... my primary doc offered to prescribe 50,000 iu for a few weeks to get it back up. The last time I'd been checked was 2 yrs ago and it was fine then....

No one has mentioned estrogen patch to me.... could be that age, but not happening yet....

My gi did give me the name of an endocrinologist to see when this wound healing thing is done..... so that's on the list of longer term issues to address.

What is so bad about the bone meds in your opinion? I have not researched that yet.

thanks

thanks, good to know....