Posted 8/10/2012 8:26 PM (GMT 0)
Just back from seeing my consultant this afternoon. Stuck his finger in my stoma and said 'hmmm yes that is very tight isn't it'.. He now wants me to have a small bowel follow through.
I'm praying that it is the problem and he can fix it, since the only other option he thinks is that it's small bowel motility disorder or some sort of intestinal failure. He doesn't think it's adhesions.
Symptoms aren't that much different to before I had this stoma put back in July 2011 which does worry me and means that a stenosis of the stoma is a bizzare coincidence. Almost constant nausea, feeling full and inconsistent output, can't eat, wiped out, bloating etc. Sometimes I get what I assume is like a partial blockage and then very watery output. Feeling pretty ropey a lot of the time and I'm not really training much. Wonderturd mentioned that she also gets bright yellow frothy output which I do too.. literally lurid yellow. Not sure what that's about?
After the surgery in 2011 initially I felt better. Since then things have slowly become more difficult, I've been eliminating more and more foods and am now pretty much existing on low residue foods and on bad days just liquids and meal replacements. I've upped my intake of rehydration solution (1200ml per day) instead of sports drink all the time (as well as other fluid on top) and trying to force more protein down, but some days the smell of food makes me feel sick. Sometimes my stomach sounds like a washing machine and things sound like they are having to work overtime to move things along.
It comes and goes, and some days are better than others, so I guess the stenosis (if there is one) isn't that narrow or severe, but I guess if it's there it's causing a problem. I am praying that's the problem and it can be fixed.
I guess I'll have the small bowel follow through next week sometime, but consultant is on holiday until end August anyway so won't be able to do anything until Sept.
Just wondered if anyone else had any input or experience? not sure I've come across anyone on here with small bowel motility disorder?? if so would anyone know if there is any sort of treatment? I took prucalopride (Resolor) last year which is a new drug used to treat constipation.
Rosemary does this sound like stenosis to you?
I thank God for this forum everyday.. it is such a lifeline. Thank you all x