Has anyone heard from Rosemary???

hi larasmom thx for asking.  i fianlly got seen today due to intervention of a nutritionist. thank god.  they took the tube out and checked the stoma with a pink y  finger exam.  this resident said it was not as tight as it had been.  not sure how she knew as she did not do my emergency check and tube dec. 2 but then they put the tube bback in.  it reallly hurt when they put it back.  then while i was changing my appliance the tube fell out.  my social worker i hired went to get them.  i asked them to show me how toput it in myself.  they showed me.  i did it in a way that did not hurt. 

i had reported a lot of pain like the start of a small bowel obstruction  pain when i had some sherbert and some broth so they are going to do some test monday to see if any adhesion strictures farther up they do not think so

they said if no narrowings show then i have to start back on real food.  i siad nothing but liquids clear ones go thru me.  they said if i back up ican flush the tube and they will show me how.  jeeze!  isaid the reason i quit eating was the stoma will not put out waste.  they said the pain may be from havinng not eaten.

they said in 3 to 6 months the scarring behind the stoma should soften.  i do know there is some rule about if you need a new stoma one is not supposed to be done before 3 to 6 months.

the actual surggeon did not show for the appointment.  interesting.  not sure if she was even around.  but the fellow that was in on my case was there.  seemed like he was hearing me.  he said the test monday would be me drinking gastrograffin.  he said there would be diarrhea.  i know that one time tracy said her technicain said that you could not get gastrograffin down orally.  tey have barium listed on the directions but i have an allergy to that.  they said tell them monday when i am at the test.  if the stuff they give me gives diarrhea like he said then won't i dehydrate?  right now grape jujice is coming out of me.  he said that thes test was to prove to me no issues further up.

so i got seen.  progress made.  i told him it was right after they took the really wide tube out of my stoma that it basically slammed shut and i ended up in the ER and needed the permanent drain tube (for now anyway)  he did not say if my thoery was right.  but i did hear if you stretch a stoma too much it will react by closing due to the inflammation.

the drain tube goes in about 4 inches.  it also has to go around some bend in my small bowel behind the stoma.  I so wish my st0ma of 2007 had not slammed shut this year.  id do not kno0w why it would after this loongg, but now is now.  scary huh?

i do have a consult for dec 24 on other side of country and want to ask before i fly in a costly medevac plane  with cabin pressurized to ground level if i should hang here and see?  the consult will give me no info over the phone or by fax.  they want to see me.  logically but...........what would you all do?  RJ 

Sunnee

Yes it did hit me between the eyes when he said to prove to you.........that there are ni kinks forther up. But then the resident woman said i will see if i can get the test right away. But it was too late hence the monday test. But yes attitude!

The appt the 24th is on the east coast with a surgeon that was highly recommended by a surgeon who wrote the article "stomas getting it right this time". Or words to that effect. That doc who wrote the article is relocating and won't be up and running for awhile. So he recommended this other one. I sent my records and some questions. He does not opin until he has seen you and likely dione a stoma finger exam (auuugh!).

Until i saw the fellow and resident who did the finger exam on friday i could pass liquid thru the stoma and drain tube while lying on my right side. Now i cannot and i don't know why. They said the tube cannot go in wrong. Which i guess it can't. But why so little output on my right? To me that says there is an issue.

So monday the test to rule out adhesions further up. The resident said that would mean surgery (NOT WANT IT DONE HERE!!!!!!!!!!!!!!) But if emeegency where do i go? If it is done with barium it could get stuck. Dirs say barium (had a reaction to that when i was a kid) the fellow said it would be gastrograffin drink that wuld shoot rught thru me. As sarah said the gastrograffin would not be as tellng as the barium in terms of adhesions kinks as the gastrograffin gives bad diuarrhea and wiuld go rt thru.

I never ever would have come out here had i even had an inkling that this surgeonwould do a total colectomy of my unused colon when revusing th. Ileostomy stoma. My cilon was fine and i had made it very cleAr and sge had seen that i am a severe scar tissue former. I did not consent to a total colectomy and she never mentioned even the idea of removing it. Had she i wouk never have let her touchme.

The op report comes to a pint and says enough small bowel had been mobilized to make a good spouted stoma. She culd have stopped there. Then it says attention was turned to the rest of the abdomen and she had a retained cilon. Then another page and a half abiut a colectomy! Why!!!!!!!!!!!!

R

Too weak. And that is how they get you