Drain tube out long story

Today was finally my appt with my surgeon. She could not get her little finger into my stoma. They removed the drain tube and had me eat some stuff there. She suggested a banana!!!!!!!!!!!!!! That is a shortcut to disaster! So i had yogurt and an ice cream. A bunch of liquid came out of my stoma then it took from 3 to 7 pm for the yogurt to come out and i had to chase it with grape juice.

The small bowel oral omnipaque (gastrograffin) test of monday showed my stomach was vertical and it never had been. I asked if the stomach rests on the colon as it looks to on diagrams. Now that mine is gone without my consent. I did not say that but wanted to know what she would say. She said no the removal if the colon did not cause that then in the next breath she said people who have surgeries their organs often shift around (sort iof what i meant). I never had a vertical stomach until now an my colon had been in me!

She could not slide the tube in and out each time she tried but iother times it would go in. She said she could feel my small bowwel spasm so gave me an antispasmotic to tske if i got pain after eating.

The finger exam the rsident did on friday showed stoma to be tight and felt it too! Then the next day when i changed the appliance i saw some scars in the underside of the stoma. Just like the ones that appeared on my 2 stomas ago after a crack from that resident back east. I had pictures and asked the doc about them she immediately said let me ckeck your stoma (not as in looking at it but as in with the wafer and eakins still on it and just going in and out with the tube and attempting the finger exam.

Then she got poo on my wafer before putting the bag back on. Then a resident said very curtly to me: YOU UNDERSTAND YOU HAVE NO STENOSIS she was very curt and the tone in her voice was impolite. Well there is one or i would not have needed the tube.

So they had me eat and uit took 4 hiura for yogurt to pass. I asked flat out if the stima was made wuth tension due to my body forming so much scar tissue. As in not placing blame but just asking. The doc said no but on one side i had more fat than on the other so when she matured the stoma it came out crooked. WHAT!!!!!!!!!!!!

I do not know if any yogurt is still in me but the grape julice seemed to be clear so i have to assume. They put me up some very smal. Catheters to put in my stoma if i swelled way up. I asked for the size they had oput in thwere as i don't want the stoma closing up anymore than the size of a 24 french catheter. It took a lot to get them to do that. Then it took a lot to have them give me a syrnge to flush the stoma as i had been toikd of friday by the felloew. I said noithing i wiuld do if not needed. The fellow said we will tsake care of that for yiu.

I said if i don't have the equipment that would leave me going to the ER again. So they finally gave me the stuff. So i hope this stoma does not close up tonight. I really don't think they know what to do yet are trying to avoid surgery whcich if this will work i am fine with!!!!!!!!!

But if you all had been treated the way i have, would you fly on med plane (costly) to another consult nearer home that i have for the 24th. This doc said a follow up with her after xmas. But she is gone tomorrow until after xmas ( and she is away so much) if i flew east in the pressurized medical flight cabin (as in reguklar air plane) i might rupture because this stoma is stenosed, then i would have to stay east. But if this is not "fixable" then the consult back east would not be able to do anything. He will not opi over the phone and has to see things. Thus makes sense but whew what do i do?

This docs office here was cornered as a nutirtiinist who was trying ti help goit me a friday appt as i could not eat due to not being able toi pass stuff. I have been. A moanth with no food. Just priotein drinks. They did the ruight thing by putting in the tube but now that its oiut will the stoma continue to close. The tiny strip oif yogurt that came iut of it indicates a very narrow passage. A working stoma just puts out poo and gas. So what woiuld you all do? Hope i can sleep and do not get a closed stoma when i sleep. I asked if the fascia scarring softens in time like the fellow said and the doc said i don't know. RJ

Thanks. Had i listened to my inner wisdom$ i never would have gotten into this mess. Not sure if you were in on original issue, but that is in the past. I am air lifting med evac on sunday to a doc on the east coast who agreed to see me i need at least TPN for nutrition. This place is CFICaRE style (SEE IF I CARE). So unreal. Love the signs all around that say The patient comes first! Not here. RJ

Lucky, jeeze if your stoma is an emergency they need to just do it. At least you are offered the tpn. I have not even been offered and i am down about 15 pounds. Packing up. Basically being blown off here. Med evac sunday praying i last and can get some help. Now i have whole nights with no output. Severe pain just now from even liquid intake. This is not good. Even chicken cream soup gunked up behind stoma tonight. Trying to chase it out. Have to pack room. Can you find another surgeon? Pray for me and i pray for you. RJ

Thx for idea. But this is stenosis. Grape juice and splenda so far. Be glad you get results from the M. Lots can go wrong with astomas. But neded my first one to save my life. Glad i traveled 4 years. Til that stoma stenosed. Pray for me. RJ

Thanks i ambaffled too good luck to you rj