HealingWell
Search Close Search
☰

soso much trouble

Support Forums
>
Ostomies
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 1/3/2013 3:04 AM (GMT 0)
Have not posted as been trying to line up help. Have hired care givers and a soc worker to help me get answers. Place in west basically left me with stenosed second stoma revision (third in all) this one with a permanent drain catheter. Have severe gut scarring very likely from the unconsented colectomy. Would not have gone there had I had clue the doc would take out colon when redoing ileostomy stoma as the dic saw that adhesions was my issues.

At new consult closer to home, I was told wait 6 months for adhesions to soften and move stoma to ither side in a other big open surgery. Doc I consulted with uses electrocautery (known to create adhesions) not so sure of this. Dec 28 had partial small bowel obstruction on only a boost breeze clear protein drinks. Horrid 18 hours. Since then am only able to hydrate myself.

Asking about TPN tomorrow as I am emaciated. Blood levels off. Dizzy weak from no food since this last stoma stenosed nov. 21. How was I to know the most recent doc would take my colon unconsented? Never signed for, not part of the plan, not part of the discussion.

Very worried weak and hungry. Am following some leads and hoping things can be done, but am in a dark space right now. Anyone know how safe it is to leave a stoma drain tube in for?

Cannot believe this. Rose
Posted 1/3/2013 1:55 PM (GMT 0)
RoseMary:
So sorry to learn that you continue to struggle. Yours has been a long and bumpy pathway.

I hope that you can find a medical team close to your home that is attentive to your needs.
Posted 1/3/2013 2:14 PM (GMT 0)
I think internal adhesions are beyond everyonme. More surgery means more scar tissue. Thx for reply. Am doing some networking but, I think it's beyond medical science at this point. I will keep trying. Rosemary
Posted 1/3/2013 5:10 PM (GMT 0)
Are you able to pass output through the drain tube?

Even if you decide to go on TPN the intestines will continue to produce waste (sloughing of cells, mucus, digestive enzymes, etc) that will need to exit as output.

I had to undergo several surgeries (unexpected/emergency) in succession after an extensive intestinal peroration with peritonitis. Subsequently, I developed abdominal adhesions. I endured several partial/full small bowel obstructions in the first several months after surgery. Very frustrating. However, the passage of time has eased the number of obstructive episodes that I experience and the episodes that I do have are less intense. I guess what I am suggesting is that time and patience (if you have the option) without additional surgical trauma may find you in a better position a few months from now then you are today.

Whatever decisions you make, I hope for you a brighter and better horizon.
Posted 1/3/2013 5:34 PM (GMT 0)
If I keep the output total liquid I can pass it thru the tube but not at night depending on position.

They did mention that TPN they are trying to avoid because of the intestinal cell sloughing and bacteria you mentioned. They want to use my gut IF they can.

Wow you have had a time! They are thinking 6 months if time if I can survivie. Consult at 4 PM
Will let you know. Rose
✚ New Topic ✚ Reply