what happens when the crohns comes back?

Alohamomof4

New Member

Joined : Jan 2012

Posts : 19

Posted 1/3/2013 7:48 PM (GMT 0)

I had my entire colon removed ( minus 3 inches at my rectum) 9-17-12 and I am now starting to get hints at a flare coming back... I almost died from this dang disease in september.. ( my colon was the worst my doctor had ever seen.. after being the top CR surgeon in the portland area for 22 years) the entire thing was horrid and HUGE.. think the size of a football..I am getting my life back and finally starting to be a mom to my kids..I have failed on every single med out there .. and 2 studies.. so there is nothing they can do but cut it out..what happens in these situations? how much can be removed? Thanks for the info guys :)

Brian84

Regular Member

Joined : Mar 2005

Posts : 460

Posted 1/3/2013 9:11 PM (GMT 0)

I had my entire colon and rectum removed in June of 2010. My biopsies showed no signs of crohns disease in the small intestine. about a year later I started having random pain a little bit behind my stoma. I had a barium follow through done and they said my crohns was back because they saw inflammation.
I was on every medicine, including steroids and trial medicines before I had my surgery and nothing was working. They ended up putting me back on remicade and imuran and it has been helping.

dietcoke

Regular Member

Joined : Jul 2008

Posts : 186

Posted 1/4/2013 4:50 AM (GMT 0)

Alohamomof4,
What are the symptoms that you are experiencing that makes you think you are flaring? I have crohn's colitis too and am nervous about it reappearing elsewhere.

Good luck and I hope it doesn't return for you!

Larasmom

Veteran Member

Joined : Sep 2011

Posts : 876

Posted 1/4/2013 3:27 PM (GMT 0)

I am back on Humira after my surgery to make sure it does not come back.

So far so good!

Post Edited (Larasmom) : 1/6/2013 6:16:24 AM (GMT-7)

flchurchlady

Veteran Member

Joined : Jul 2007

Posts : 2765

Posted 1/6/2013 12:48 PM (GMT 0)

Alohamom,
I'm sorry that you've been through so much and think you're flaring again.

They can remove your rectum and parts of your small intestine, if the disease is active there. We have approx. 22 feet of small intestine and need some of it in order to absorb nutrients [not sure how many feet], but you don't need a colon or rectum. The more small intestine you can keep the better. Please keep us posted on how you're doing and what you find out.

God bless,
Cecilia

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