HealingWell
Search Close Search
☰

Tips For Loop Ileo?

Support Forums
>
Ostomies
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 7/20/2014 2:42 PM (GMT 0)
Have you tried a more rigid convexity? Have you tried the convex inserts? Is it the stoma's hole or the underside hole below the stoma (it has a technical name but I can never remember it!)?

Are you able to bulk up your output with food or supplements?
Posted 7/20/2014 3:30 PM (GMT 0)
I'm surprised that no one has mentioned Friar's Balsam Ointment...the name is longer than that. It's available from Wellca.com of Canada. There are many people who frequent this site that swear by it. It will sting like the dickens, but just for a short while. It's antiseptic as well as super sticky.

After I clean my stoma area, I apply it to the skin around the stoma, dry it with the blow dryer, then place an eakin seal on top of that, then the wafer. I get seven days out of this arrangement.
Posted 7/20/2014 3:30 PM (GMT 0)
I'm surprised that no one has mentioned Friar's Balsam Ointment...the name is longer than that. It's available from Wellca.com of Canada. There are many people who frequent this site that swear by it. It will sting like the dickens, but just for a short while. It's antiseptic as well as super sticky.

After I clean my stoma area, I apply it to the skin around the stoma, dry it with the blow dryer, then place an eakin seal on top of that, then the wafer. I get seven days out of this arrangement.
Posted 7/20/2014 11:02 PM (GMT 0)
Rigid convexity doesn't last a day. Not sure what you mean by "inserts". The stoma droops down like an elephants trunk, with the back of said "trunk" squished against my belly. This is where the output slit is, so you don't actually see it exit the stoma, it just cascades down my belly, like a dirty polluted Niagara.
When I had my leak on Saturday, it was just after food and fluids. What fun changing was, an hour of mopping up waste from my belly, right leg, backside, the toilet seat.............
Posted 7/21/2014 3:30 PM (GMT 0)
Silent,

I had a really rough time of it with the Loop Ileo, the thing would just constantly put out stool like 24x7, it never took a break even when I was trying to change the ostomy. ugh

It was a nightmare but at the about 2 1/2 to 3 month mark my small intestine started to heal and things noticeably started to slow down but no-where near the end-ileo output.

Besides finding the right ostomy products for you I'd also try and slow things down as much as possible and get the output to be less liquid which means less stool on your skin. Have you asked for any Lomotil, Loperimide, tincture of Opium and Metamucil? They gave me all 4 to try and slow down and thicken my output.

I suffered for 14 weeks with the Loop-from-hell. I recently had my reversal and all my suffering was worth it, my BMs from day 1 has been 3-5 a day, I've been able to sleep through the night and at the 3 week mark I was able to pass gas without sitting on the toilet. I know it doesn't help much but keep looking forward to life after the Loop-Ileo.
Posted 7/21/2014 4:02 PM (GMT 0)

ks1905 said...
Silent,

I had a really rough time of it with the Loop Ileo, the thing would just constantly put out stool like 24x7, it never took a break even when I was trying to change the ostomy. ugh

It was a nightmare but at the about 2 1/2 to 3 month mark my small intestine started to heal and things noticeably started to slow down but no-where near the end-ileo output.

Besides finding the right ostomy products for you I'd also try and slow things down as much as possible and get the output to be less liquid which means less stool on your skin. Have you asked for any Lomotil, Loperimide, tincture of Opium and Metamucil? They gave me all 4 to try and slow down and thicken my output.

I suffered for 14 weeks with the Loop-from-hell. I recently had my reversal and all my suffering was worth it, my BMs from day 1 has been 3-5 a day, I've been able to sleep through the night and at the 3 week mark I was able to pass gas without sitting on the toilet. I know it doesn't help much but keep looking forward to life after the Loop-Ileo.

I have tried Loperamide, Codeine and Fybogel (Ispaghula husk, that you mix with water and drink, gross!).
Loperamide is useless and Codeine only works in doses that I would never tell my doc I've taken! The Fybogel is an oddity, sometimes it stops liquid output in it's tracks, others it has no effect.
Thanks for posting though, I've been spending a lot of time wishing I'd stuck with the end ileo, and to hear how well others are doing after takedown gives me hope that it will all turn out for the best.
Posted 7/21/2014 6:26 PM (GMT 0)
SL,

I had to take all 4 medications listed above at the same time and they helped me somewhat but it was tough with the Loop. You may need a mixture of medications instead of just trying one and giving up on it. Both Lomotil and Tincture of Opium are controlled substances in the States, you may have a better outcome with them than Loperamide which really didn't do much for me either but all together everything did help me with less liquid output.

My loop was putting out about 1.5 liters a day, sometimes a little more and sometimes a little less. When I was in the hospital it started by putting out over 5 liters a day which was brutal, the surgeon wanted to reverse me while I was still in the hospital but they gradually added all 4 medications and it did help enough were they felt safe releasing me from the hospital with the Loop Ileo after 2 weeks.
✚ New Topic ✚ Reply
12