swollen stoma with swollen stomach.

Sigh.... so sorry.

My stoma was hugely swollen before I went to the ER a few weeks ago, had to cut the wafer as big as it goes... it can be a hernia symptom. I was very distended too, although I had no output. I think you need to keep an eye on it. If your stoma gets purplish, then you definitely need to go to the ER, as it's not getting enough blood (that's why I needed the surgery) ... also if you're vomiting a lot.

Seems a good sign that you have output.... maybe try heat, moving around, massaging the area etc.... but much as you don't want to.... this could be a go back to the hospital thing.... hope not. Hang in.

I was advised to drink warm beverages if I ever felt like I had a blockage. Specifically warm grape juice if you can get that. All of the tips that blueglass gave are things I have heard before also. I hope this clears for you quickly!!

  I'm sorry!!!! wish it were better news- keep us posted!

How are you doing now? Thinking of you.

OK, the doctor thinks what is going on is that the hernia is causing my issues. On the ct scan, it shows the omentum being pulled in the hernia sac. They think the intestines is also being pulled in the sac and being strangled periodically and somehow managing to free itself.

He is going to do exploratory surgery and then will decide exactly how to proceed. Not sure when I will get this because we only have 19 more days of school and I would like to finish the school year if at all possible. Ugh

I was instructed to go to the ER if the pain increases, fever, stoma changes colors and it won't turn back red when I lay down, etc. The normal things that we would go to the ER for.

I'm so upset with these stupid ass parastomal hernias. Can they be ever truly be fixed???

They saw the hernia on the ct scan, so we know it's there. I'm not sure if he will move the stoma. With this being my 4th hernia on the right side, I think moving it to the left would be a good plan. Unfortunately, I have heard that moving the stoma isn't always a sure thing either and many on this board and the uoaa board have said getting the hernias fixed is useless and I will get another one. :(

Right now, I have no choice and you definitely had no choice with yours because your stoma had no blood supply.

I wish you could call me. Do you live in the States? I would like to hear about the time leading up to your emergency surgery. I'm scared. My stoma is still very swollen.

Blueglass, I looked for a way to send you a private message and didn't see a way. Hmmm. Then I looked to see if I had an email address on file. I have no clue. You do not, so I can't email you. Let me know if you see a way where we can send an email or private message and we can exchange phone numbers.

I have had decent output, but stoma is still swollen. I guess he will stay swollen until I get this hernia fixed. Thank God I have some cut to fit wafers. Otherwise, I would be screwed.