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Posted 7/31/2015 8:27 PM (GMT 0)
I had my stoma moved a few months ago. My old stoma always had a lump behind it, and now that I'm losing weight, I realize that the lump is still there, behind the incision where my stoma used to be. The new stoma doesn't have a lump behind it.

When the lump was behind my stoma, the medical folks just said that sometimes it heals that way. When I talked on the phone about feeling the lump again now, the nurse said not to worry about it, since it's hard it's probably scar tissue, not an incisional hernia, which would feel liquidy.

I don't think it's a big deal, although the lump gives me a rather weird looking belly. It's about the size of a big plum (or small peach), most prominent when I've been standing for a while... sticks out enough so I can definitely see the curve (presume if I lose more weight, it'll be more visible ...after surgery I thought the scar just was at a funny angle and would change over time).

I think it's highly unlikely that it's a tumor or something, as I just had surgery and a CT before, and surely they would have noticed then if something was awry, as that's exactly where the surgery was. I see my gi in a few weeks, and will have him poke around just to be sure.

No problem to solve here, just wondering what kinds of lumps you might have left after surgery....
Posted 8/1/2015 3:08 AM (GMT 0)
I don't know if it's the same thing, but I have a bit of a lump/bulge above and to the right of my stoma (if I'm looking down at it). Sometimes it is more pronounced than others, but not too noticeable with my wafer on. I have pushed on it when I don't have a wafer on and I can feel it move and kind of make it go away, and I can also see it moving when my intestine is wiggling around during a bag change. I've had a scan and had it looked at by my surgeon and have been told there is no hernia...but was also not given a great explanation of what it could be. My WOCN said that sometimes there isn't a hernia, but a weak spot in the instesinal wall, so that sometimes whatever is behind that area pushes closer to the surface...if that makes sense.
Posted 8/3/2015 8:44 PM (GMT 0)
I'm getting the idea that the body heals in some very weird ways that sound like what you just described.... just talked to the NP from my surgeon's office.... going out of town tomorrow and was just getting a bit nervous... I don't have the surgical notes from my last surgery, wanted to check what she did about the hernia behind my old stoma site.... she sutured it, no mesh. I think it may be that the hernia pushed back through.... so now it's not blocking anything, but is still there. Nurse said, "could be." But she also said the fat behind a scar sometimes pools in an unusual shape and that it could be scar tissue. Sigh. She said no reason to cancel my trip... just go to the ER if I have a bad obstruction. I'll see what my gi says next week and maybe schedule an appt w/the surgeon.

Sigh.... this last surgery really threw me....
Posted 8/11/2015 4:08 AM (GMT 0)
After surgery I was thin from being so ill. But in the past year I have gained weight ( too much) and now my belly looks like it has a valley down the middle where my scar is. I have a large bump on my non stoma side that is about the size of a peach. I was worried about it because I could see it moving when my intestines were working. I thought it may be a hernia. I had it checked and the surgeon said " you are just getting fat again and the scar tissue will not stretch like normal tissue." Maybe it is scar tissue?

My stomach is ugly and lumpy but I have come to accept it most days even though I would really like to lose a few pounds to see if it helps make my lumps smaller. I wear alot of dresses to hide my stomach bumpiness. I just need more self control with food. I could eat so little when I was sick that now I enjoy the things I denied myself eating to avoid crohns pain.
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