J Pouch and unwanted Weight Gain

People with jpouches have their rectum removed and a pouch is created for stool collection. The pouch is made from the end part of the small bowel. The only piece remaining is the cuff, which is usually a couple centimeters. That can get inflamed, or the pouch itself, but that would be considered cuffitis or pouchitis. I think you need to go to your surgeon and have them take a look to see what you're dealing with. Inflammation in the pouch, whether it was the cuff or the pouch itself, wouldn't mean you need to have surgery. There are treatments, often curative. Some people have it chronically, even in that case, there are medications you can try.

Are you on any drugs that would cause the hunger? Have you had blood work to check for other issues that could cause weight issues, such as thyroid?

I've had the opposite since my jpouch surgery. I seem to have a lower appetite. I had really bad side effects from prednisone and my weight was up and down like crazy, I was always hungry. Since surgery, I've completely leveled out. I am back to my "old" (preUC, PrePred) eating habits. With a jpouch, you go to the bathroom more, I would think it's a little harder to keep weight on.

I have 2cm of my rectal cuff left and it's definitely gets inflamed. I also get fissures regularly. No pouchitis but I do daily enamel flushes and I add manuka honey if things feel off so I've been able to keep pouchitis at bay. The only place I feel inflammation is the rectal cuff.

I'm not on any meds at all and no other conditions that I'm aware f that would cause the weight gain. I was a heavy UC sufferer before. I was about 220 pounds when I first got UC (I'm 5'8) and stayed in the 190 most of my life. 3 years ago I got health for real and dropped to 15 with diet and exercise. I stayed 165 theough all of my surgeries but by December I was up at 185 and then peaked again at 190. Yes I'm still smaller bc I have more muscle mass now but still about 20 pounds too heavy. I want to be back down to 170ish. I'm about 188 now. Just can't drop the weight! When I had my ileostomy I could eat anything and didn't gain a pound. I went on a week long cruise and lost weight! Sorry but being fat my whole life I loved being able to eat what I wanted and not gain. Now I'm so fustrated bc I worked so hard to get the weight off healthy and now it's back. Grrrr

Reading Suebears answer made me think of something else. My doctor said when patients are recovering and healing from major surgery that our metabolism can require 500-1000 more extra calories.

I think when people first have an ileo or are going through multiple surgeries for a jpouch our metabolisms are up. So in addition to finally being healthy once you are healed your body needs fewer calories than it needed for several months.