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4 weeks out from Ileostomy. trouble eating

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Posted 6/12/2021 7:12 PM (GMT 0)
My girlfriend last november had her ileostomy reversed. Long story short that did not go well and they ended up putting the bag back. Now 4 weeks out from her surgery she had been able make progress in her diet and things were looking great. Now however she was just in the hospital for a partial blockage. After 2 days in the hospital she was still in pain and couldn't handle any sort of food or drink else she would be in major pain. Her scans came out clear though so they sent her home. 3 days have come and gone and she still can't even sip water without horrible pain. She still has output, it isn't a lot but probably half of what she would normally have. As most of you can imagine, sitting here unable to help or do anything is miserable. She also has a nasalgastric tube(I think that's what they call it) that was used during her surgery for feeding but it hasn't been used since she has gotten back from the hospital 4-5 weeks ago. I was wondering if anyone has any advice on what is going on or what we can do.
Posted 6/13/2021 3:24 AM (GMT 0)
Hans378,

I am sorry your girlfriend is having these issues. It is very hard to watch someone you care about struggle.

Is she at home....and they left the NG tube in? Where is her pain? What is she trying to do about it? What do they think caused her obstruction...was it due to intestine inflammation or due to food?

When I have a NG tube in I can not eat or drink. My stomach hurts and cramps...plus that tube feels like it is stabbing me. If I am understanding you correctly they sent her home with the tube intact? Is that correct? When they send me home from the hospital after having a NG tube it takes my stomach about 3 weeks to heal where I can eat solid food. I drink ensure, SCD diet chicken bone broth (the recipe is online) and clear foods. I stay away from carbonated drinks.Sometimes I can eat Ramon noodles without any of the enclosed seasoning...with a little butter or real cream in it. When I eat or drink...its at room temp....too hot or cold causes more pain. My output is not as much because I am not eating as much.

If they send me home with a clear scan and I had a partial obstruction...its taken me up to 2 weeks on fluids before I start to feel better. Then its still soft foods like runny oatmeal, soups, scrambled eggs.

Now if they think there was inflammation..that's a little different. If there is inflammation I go straight liquids until it eases....and that's taken a month or longer... Very uncomfortable.

Regardless-she needs to stay hydrated. That's hard to do. I drink/eat things at room temp when I am going thru this type of a situation.

I hope she feels better soon.

Clo
Posted 6/13/2021 5:20 AM (GMT 0)
Thank you for the well wishes and the advice. Yes she still has her tube in. It has been in for about a month. I had wondered if the tube was causing issues. I’m not sure if she had a blockage or inflammation when we had to go to the ER last. I’m hoping and praying this is only a couple day long or week long issue. I don’t mean to be dramatic but honestly am not sure how long she can last like this.
Posted 6/20/2021 1:06 AM (GMT 0)
Hans378,

Checking in and hoping things are improving for your girlfriend and you.

Clo
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