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Stage V, 14 days in hospital.
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Parkinson's Disease
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Sonseeker
New Member
Joined : Nov 2009
Posts : 1
Posted 11/9/2009 7:34 PM (GMT 0)
Hi, This is my first post. My mom is in stage V of PD. She has been diagnosed for 15 years. She has been in the hospital for 14 days. She initially went in because she was passing out and having seizure like symptoms as well low blood pressure. In the weeks prior to her hospitalization she began have diariaha. She was also sleeping more and more, having diminsia, and having difficutly swallowing. All attempts to stop the diariah have failed. They are testing stool samples and she had a cat scan of her abdomin and so far no red flags. Yesterday she had it so severe that she became extremely fatigued and was shivering. She has a continuos IV and they are giving her potasium and now magnisium because her levels are so low. She is also being treated for a low heart rate. I've spoken to my dad is the one who makes decision regarding her care about
bringing her home and going on hospice. My dad is in denial that she is in the process of dying. I don't blame him. They've been married for 48 years and she is his life. However, it is painful to watch her suffer all of the needles, etc. and not be in a home environment. I spoke to my dad about
whether or not he would want her to have a feeding tube. He does agree that he doesn't think that would be the best way to go. I feel that she has only a short time left because the diariah is so severe and her health is decling. My dad is a minister and I know it's tough for him, I too believe in miracles and pray for one but I also have to face reality. I know God alone has the answers to how much longer she can survive in this condition. Has anyone experienced their love one going through this type of crisis? I would be curious to know what kind of treatment as well as what you experienced. I appreciate you thoughts and taking the time to read this.
dogblueman
New Member
Joined : Feb 2009
Posts : 4
Posted 11/9/2009 8:19 PM (GMT 0)
life ,takes us to many twist & turns ,but believe in your faith , and i,ll pray for your mum!
Ronnies_girl
New Member
Joined : Nov 2009
Posts : 10
Posted 11/12/2009 5:24 AM (GMT 0)
Hi, I too have been dealing with a very similar situation with my Mom. She's had PD for 16 years and we (she) have recently been in and out of the hospital. My Mom had 7 days of the same thing (seizure like symptoms and terrible loose, watery stools (11 days for the trots). I brought her home because I couldn't watch her suffer in the hospital. She had a really hard time with the potasium IV, she said it hurt, they tried to add a neutralizer and it didn't help. They did get her blood pressure stable and after jumping up and down they let me bring her home. They also found a MRSA. (Staph infection in her blood stream) Have you checked for that???
I found a "House Call" Doctor who put my Mom on Keppra and the seizures stopped (thank heaven). The diarhea stopped about
2 days after we came home. I talked to the Doctor's at length about
options and was told by them that a feeding tube was an option but in my Mom's case they thought she ran to high of a risk for infection for one. She didn't want it anyway. I have round the clock care for my Mom and after talking with her we filled out the paper work to have her just live out her days at home under a physician's care. She wanted nature to do whatever it needed to do so I have just finished making those arrangements for her. I guess her caregivers and I are her Hospice but she's happy to be home and it shows. My Mom also has trouble swallowing, seems like it was harder after the seizures but now that they've stopped it's better. She sleeps almost all of the day.
I treasure every second that she
opens her eyes and smiles at me.
My Mom is all I have ever had and I feel like our time is ending. My only goal is to make her comfortable, pray for no more suffering and just hold her hand and wait to see those beautiful gray blue eyes look at me.
Just think about
what your Mom would want, where she'd want to be and follow your heart....
You'll be in my prayers!
Take Care~
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